Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 Janine, Please let us know what the ortho says on Monday. Hopefully it will look better by then. The swelling that you describe is normal. :-) I'd still mention it to your ortho though. I'm sorry to hear Isabella has a cold. I hope she gets well soon. > Hi there > Thanks for the responses on the skin chafing, the cortizone seems to > have helped although the skin on her forehead still looks a little > wrinkly and is still a little discolored - like wind burn almost. I > am going to call the orthotist first thing Monday if it doesn't look > better by then. > Now a new question - we let Isabella sleep overnight in the helmet > last night - she slept great - 7 to 6, usually she is up around 5 - > but her right eye looked puffy and swollen this morning. I gave her a > couple of hours without the helmet and it looked better, so now she > is napping in it. I did a search and found a couple of posts from > another member mentioning swelling, but I am not sure if it was > determined that this was normal or not? Isabella is still battling a > nasty cold so I am not sure what is from the cold and what is from > the helmet! You would think after 8 months this whole parenting thing > would get easier, right ;-)? I guess I am just a naive first time > mother! > Anyway thanks for your help > Janine & Isabella (banded 1/31/03 at 8 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 Janine: Glad to hear how great Isabella slept in her band! Definitely check with your ortho about the swelling on Monday, it is most likely the " normal " swelling or fluid retention many babies get in their band, but it's certainly something to ask your orthotist. Let us know what they say. Debbie Abby's mom DOCGrad MI p.s.....parenting only gets harder & harder!!~ LOL > > > Hi there > > Thanks for the responses on the skin chafing, the cortizone seems > to > > have helped although the skin on her forehead still looks a little > > wrinkly and is still a little discolored - like wind burn almost. I > > am going to call the orthotist first thing Monday if it doesn't > look > > better by then. > > Now a new question - we let Isabella sleep overnight in the helmet > > last night - she slept great - 7 to 6, usually she is up around 5 - > > but her right eye looked puffy and swollen this morning. I gave her > a > > couple of hours without the helmet and it looked better, so now she > > is napping in it. I did a search and found a couple of posts from > > another member mentioning swelling, but I am not sure if it was > > determined that this was normal or not? Isabella is still battling > a > > nasty cold so I am not sure what is from the cold and what is from > > the helmet! You would think after 8 months this whole parenting > thing > > would get easier, right ;-)? I guess I am just a naive first time > > mother! > > Anyway thanks for your help > > Janine & Isabella (banded 1/31/03 at 8 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 I might be odd. :-) I had extremely intense pain at first, with very little to no swelling. SOmetimes I would get swelling a few days after the pain, seems the pain level and swelling had little relation to each other at times. My casual observation is that whatever part of me hurt, it began to have a sort of pattern, and I would have pain for 12 hours or so, gradually get some kind of swelling, over the next 12 hours or so, then it would begin to subside. The cycle would seem to complete within say 36 hours and begin somewhere else. I also noticed something else. After the pain would begin to subside, if I would take a warm bath, the spots that caused the most intense pain would turn bright red in the bath! Then I would also get this swelling with little pain - mostly in my wrists and fingers that would first swell slightly, then discolor red or purple or black, and it would stay that way for months. I " grew ridges " on top of both hands near my wrists for over a year before MTX. They slowly went away after MTX began. 2 fingers on each hand the middle knuckle on each also swelled and turned black and stayed that way for over a year. They do this now from time to time for a week or so and then it recedes again for a few weeks and then comes back. Very odd. - In , " lindajbelle " <lindajbelle@y...> wrote: > Good morning, > > I am wondering how many people had pain before the swelling and how > long it took before the swelling occured. I have all the pain and am > on plaquenil but the swelling is not there, yet!. However sometimes > my fingers feel very thick. > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 This is similar to what happened to me, too...lots of pain with minor swelling that kind of came and went. I've still never had the " typical " RA swelling where your joints look really red and feel hot. Most of my swelling has been in my fingers or wrist, or sometimes just around one knuckle. And sometimes my rheumatologist can see or feel swelling where I can't, like in my feet or elbow. --- In , " dreamer_plus " <dreamer_plus@w...> wrote: > > I might be odd. :-) > I had extremely intense pain at first, with very little to no swelling. SOmetimes I would get swelling a few days after the pain, seems the pain level and swelling had little relation to each other at times. My casual observation is that whatever part of me hurt, it began to have a sort of pattern, and I would have pain for 12 hours or so, gradually get some kind of swelling, over the next 12 hours or so, then it would begin to subside. The cycle would seem to complete within say 36 hours and begin somewhere else. > I also noticed something else. After the pain would begin to subside, if I would take a warm bath, the spots that caused the most intense pain would turn bright red in the bath! > Then I would also get this swelling with little pain - mostly in my wrists and fingers that would first swell slightly, then discolor red or purple or black, and it would stay that way for months. I " grew ridges " on top of both hands near my wrists for over a year before MTX. They slowly went away after MTX began. 2 fingers on each hand the middle knuckle on each also swelled and turned black and stayed that way for over a year. They do this now from time to time for a week or so and then it recedes again for a few weeks and then comes back. Very odd. > > - In , " lindajbelle " <lindajbelle@y...> wrote: > > Good morning, > > > > I am wondering how many people had pain before the swelling and how > > long it took before the swelling occured. I have all the pain and am > > on plaquenil but the swelling is not there, yet!. However sometimes > > my fingers feel very thick. > > > > Thanks > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 I had pain first. I'm guessing some minor swellling started several months later. Not that you could see it, but I would notice my shoes were almost too tight to get on. The morning stiffness started even after that. Because I've been on meds from the beginning, I've only had a few times of really bad swelling and stiffness. It's always been addressed quickly with increased meds or new meds. But I have experienced enough to know that if I stopped my meds my whole body would freeze up and I'd be in bed a lot. --- In , " lindajbelle " <lindajbelle@y...> wrote: > Good morning, > > I am wondering how many people had pain before the swelling and how > long it took before the swelling occured. I have all the pain and am > on plaquenil but the swelling is not there, yet!. However sometimes > my fingers feel very thick. > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 --- In , " lindajbelle " <lindajbelle@y...> wrote: > Good morning, > > I am wondering how many people had pain before the swelling and how > long it took before the swelling occured. I have all the pain and am > on plaquenil but the swelling is not there, yet!. However sometimes > my fingers feel very thick. > > Thanks > > I never had much swelling. No heat or redness at all. Pain, yes. Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi , As for your question about swelling:I felt pain in my hands 4 years ago and told I was fine. 8 months ago was told I did have RA. I have been on Remicade for 5 months and just quit it. Been on MTX for a month and last weekend for the first time I had the fat swollen joints,with red and black and blue with sharp stabbing pain. At first I thought I had hit my hand on something and bruised it but by the end of the day my other fingers were the same and I couldnt bend my hands to a fist.It was so painful to just lightly touch my knuckles. I have had some bad pain before but not the swollen joints that you could see. My MRI showed significant damage my rhuemy said but my blood work shows low inflammation??? Its so hard to know and our bodies are so different. So I think I have had RA for at least 5 years and now on meds I feel way worse symtoms or it could also be that the RA has taken its time till now and just by chance has hit full force after all this time. I sure hope the swelling stays away for a while. Hope this helps. Take care Latisha lindajbelle <lindajbelle@...> wrote: Good morning, I am wondering how many people had pain before the swelling and how long it took before the swelling occured. I have all the pain and am on plaquenil but the swelling is not there, yet!. However sometimes my fingers feel very thick. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Hello Stetson Cowgirl, Yes, my feet are almost always swollen and have that freckle look. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Yikes. The scientific word " torture " comes to mind...... Thanks for the reply --it really helps, especially in those moments when i start wondering (again) if I'm just, I dunno, being a big baby or something. Lynda > the thing where he squeezes my joints and sees how many hurt. There's a > scientific name for that, but I can't remember... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Swelling is common. I never knew that the top of my feet were swollen until my shoes felt tight and needed to buy deeper shoes. Last night I dislocated my toe and when at the urgent care clinic, he was surprised that my feet and ankles were more swollen because he said everyone he has seen that has CMT have very swollen feet. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Jackie, I am sorry about your toe, hope you are feeling better today! Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Kim. Thanks! It is a pretty shade of purple and swollen and I have to use the scooter in the house to get anything done, since I can't hop! It was so stupid and a good reason why I should not do any more housecleaning! (LOL) Stuff like this always happens when you have things planned and trying to get a lot done, now I am forced to slow down. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Hello, it has been awhile since I have posted. Life had been extremely busy. I have been trying to keep up with posts, but the board sure has been busy. I have to say with this one, like most we get swelling. I hate looking at my foot after a day of heavy walking, it's awful. Then if I twist my ankle of course it is even worse. Take care (Ontario, Canada) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.