Hips

[Guest guest]

I am in the fifth week of my recovery, I had both hips replaced on Jylu 31st. I

was on a walker for 3 weeks, then two canes and now I can walk without canes but

use one for balance so I do not fall.

They had me up the day after surgery, I checkde the Mayo Clinic last September

and was going to have a Dr. Trouesdale do the surgery. I liked him and thought

he had the experience and answered all of my questions. We then looked around

Omaha where we live and I had the orthapedic dept at our medical center evaluate

my situation, I am a Psudo Achon.

I decided to let DR. Todd Sekundiak at the University of Nebraska Medical Center

do the surgery. He used several different medical equipment vendors to get the

correct hip replacements and he does around 160 replacements a year, most are

not the average replacement. I am still weak and still have pain where the

incisions were but the hip pain is gone, no pain at all. So far I am pleased

with my decision to have the surgery and my doctor.

Mike Dibben

Omaha Nebraska

HIPS

Hello group,

I just moved to South Carolina and I am having some hip problems. They keep

popping in and out. Sometimes I can walk and sometimes I can't.

The doctors here in Florence, well let's just say they don't instill confidence

if you know what I mean.

If you have had hip surgery recently how long did it take to heal? Were you in

a body cast? Approx. how long were you in the hospital? I know each person is

different but I need to get an idea. If you had a doctor that you trusted and

who did a good job will you please pass along a phone number and name?

Thank you

Chris

[Guest guest]

At 12:18 PM -0500 9/3/02, Dibben wrote:

>I am in the fifth week of my recovery, I had both hips replaced on

>Jylu 31st. I was on a walker for 3 weeks, then two canes and now I

>can walk without canes but use one for balance so I do not fall.

>

>They had me up the day after surgery, I checkde the Mayo Clinic last

>September and was going to have a Dr. Trouesdale do the surgery. I

>liked him and thought he had the experience and answered all of my

>questions. We then looked around Omaha where we live and I had the

>orthapedic dept at our medical center evaluate my situation, I am a

>Psudo Achon.

>

>I decided to let DR. Todd Sekundiak at the University of Nebraska

>Medical Center do the surgery. He used several different medical

>equipment vendors to get the correct hip replacements and he does

>around 160 replacements a year, most are not the average

>replacement. I am still weak and still have pain where the incisions

>were but the hip pain is gone, no pain at all. So far I am pleased

>with my decision to have the surgery and my doctor.

>

>

>Mike Dibben

>Omaha Nebraska

>

> HIPS

>

>Hello group,

>

>I just moved to South Carolina and I am having some hip problems.

>They keep popping in and out. Sometimes I can walk and sometimes I

>can't.

>The doctors here in Florence, well let's just say they don't instill

>confidence if you know what I mean.

>

>If you have had hip surgery recently how long did it take to heal?

>Were you in a body cast? Approx. how long were you in the hospital?

>I know each person is different but I need to get an idea. If you

>had a doctor that you trusted and who did a good job will you please

>pass along a phone number and name?

>

>Thank you

>Chris

>

I had two hip replacements (one each leg) about 6 years apart. I had

surgery in September and was up and running by December. A couple of

things to keep in mind (after I had the first surgery these hints

really helped a lot!)

1. Exercise the leg all you can with leg lifts in different

directions and stomach crunches BEFORE surgery. I know it is

difficult but it does help in the healing process. When they cut the

glute muscle in your fanny the comeback time after the second surgery

with the exercising (or toning) was one of the best investments in

" pain " (because by then believe me I was in pain!) that I did for

myself.

2. Regarding the incision (especially for Mike) THE BIGGEST TIP I

got, and good for all surgery, is to massage the incision area, if

you can reach it. Take your finger and make small circular motions

around the incision. This will stretch the tissue and keep the

scaring down. I didn't believe this when they told me, but did it

anyway, and did it where I couldn't reach. What a difference!

I've since done this with other surgeries and it really works. It

get's those nerves mending faster and the pain goes away quicker,

even though it sort of ouches while your doing it.

No body cast are needed in replacements. My niece had reconstruction

and they didn't cast her either. With replacement the best and

longest result for a stable prosthesis is to opt for bone marrow

fusion and not with glue. With Glue (or what ever they call it) you

are able to put pressure on right away, with the marrow you have to

wait until the bone grows around the rod. So, you start off with no

pressure, go to little, 25 percent, 50 percent and full after a

period of time.

I was in the hospital 10 days for the first surgery and had general

anaesthesia. The second surgery was 5 days in the hospital about 7

days in a hospital rehab and home with PT twice a week. I also had a

saddle block done and NOT the general. It is tricky, but I faired

better.

My local Doctor was a peach, but wanted me to have what he thought

was the best and sent me off to new England Baptist Hospital in

Boston, and Doctor did both my hips (6 years apart). They are

personal friends and Dr had already done special situation

surgeries of this type and it was his speciality. I also had a

custom made prosthetics the first time (because at the time there

were no small ones available and I also have a bow in my thigh. By

the time the second surgery came around there were smaller

prosthetics available and I was able to cut at least three months off

my wait time (it took three months to have the custom made, AFTER I

had several MRI's done on my hip)

It was the BEST investment in my own future I could have done. My

quality of life improved dramatically and i would recommend it to

anyone.

--

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ºººº

Ginny Sargent

Life is like a school of fish....sometimes you just have to keep on

swimming upstream.

[Guest guest]

Where do you live?

> I'm wondering if any of you have any input regarding specialists

> dealing with severe hip dysplasia. According to our local doctor,

he

> hasn't and neither have the colleagues he's consulted with seen the

> level of hip dysplasia that my 4 year old daughter has, her type of

> dwarfism is Campomelic Dysplasia....

>

> Thanks,

>

> Beth

[Guest guest]

TO: Becky in Alaska,

Hi Becky,

I was just wondering how your recovery from hip replacement is

going? Are you able to work yet?

loriann

[Guest guest]

,

I am going to back up what the VA doc said to some extent. I went in for

neck (!) surgery with the knowledge and consent of my rheumy. I am not sure

that she was so knowledgeable about AS, so off I went to get those 2 discs

repaired. I woke up with 3 broken teeth and my neck was worse when I started

using my hands again than it ever was before surgery. If I only knew then

what I knew now about several aspects of treatment.

My son worked as an anesthesia tech while he was in nursing school. These

are the guys who set up the instrument trays--a high school diploma is all

that is required. ( He is a bit above average in brain power due to having a

proud mom, but he put this one together) The first words out of his mouth

when he heard of the problems with the teeth is that they must have had

trouble with entubation. Now he didn't know why, he just knew that there

were problems. Why a neurosurgeon would not make notations for these

anesthesiologists is beyond me.

I hope my experiences will help someone to make the right decisions for them

if they have AS. I wish I had known what I know now as there would never,

ever been neck surgery on this old gitl. The neuro said that there was a

tremendous amount of pressure on the nerves in the regions where corrections

were made and I just wasn't in the mood for losing use of both hands, so I

had the surgery done. Somewhere between the devil and the deep blue sea...

I have recently heard of a procedure which was called a 'mini hip' which

corrects for hip replacement on a first time replacement.. It requires only

an 8 " incision, very short hospital stay and a much shorter recup period.

Though I hope I never have to face it, chances are I will as my paternal

grandmother broke her hip and needed a replacement in her 80's and mother

had a broken hip in her 80's. Hers was fortunate if a broken hip can be

fortunate. It broke but didn't displace. So beware of that if any of you

have severe osteoporosis to go with the spondys. She walked around for 2

months being treated for arthritis instead of the doc looking further. The x

ray showed nothing and her hip wasn't found till the doc asked my brother

( whose degree is in poli sci!) if they should MRI. When that came back.

there was a line of blood where the fracture was. She was taken straight to

surgery and had what looked like 5 climbing nails put in that hop. I have

seen them on an x ray. Those docs can call those things 'pins' if they want

to, but I don't see how they don't pop through her skin they are so huge.

BTW the doc only decided to offer to do that MRI after mother had a rectal

bleed from the treatment for the 'arthritis'--an NSAID.

Enuff said here but I hope it was enough to help someone(s) out there.

If there are any questions I can answer, please write me at my email address

as I don't get to read posts as I would like to do. I am still swamped with

parent's business and don't see an end in sight.

I miss all of you and hope everyone is getting better treatment for their

ailments these days. If there is a cancer survivor out there who is on the

anti TNFs, I am still looking for you. Please write.

GA

[Guest guest]

Hello Everyone,

I have been today to see an orthopaedist at the Royal Orthopaedic

Hospital and now I would have to wait a bit longer to find out more

about my hips problems.

He got in hands my MRI and he will show his radiologist to understand

better those images. He commented about me having a injections to reduce the

pain, and I said that is NOT what I would like to have it...I have done that in

Brazil and did not worked.

I need to find out the reason why is so bad like that. I need to find out the

problem and not masking the problem with pain killers again.

In any case, I will be praying a lot here and hope he would come with

better idea in the near future. I will let you know more as soon as know.

All the best to each of you.

Joana in London

[Guest guest]

Question, I have a son who had hip x-rays done within

the last month..16mos old now, former 27 weeker,

doesn't have DS (I have 2 boys who do), not crawling,

or walking..acts like he's in pain when placed on his

knees according to me and his p.therapist. X-rays

according to radiologist says " degenerative hip "

" cysts on each " " one socket larger than the other " and

the other statement was something about the hips not

being aligned properly. So, to the therapists and

myself, it explained so much. I took him to an

Orthopedic specialist, who says hips are fine. I

brought up x-rays, he says when hips were down, xrays

showed nothing, when hips were in " frog " position,

they showed those things which he felt was nothing. He

says re-xray in 2 months. Says it's rare to have a

child so young dx'd w/degenerative hips. In the

meantime, the ped says he saw what he saw..hips not

aligned and from my statements of his development, or

lack there of, he ordered those 1st xrays.

My question is this..Could that ALL be nothing? Could

it be all " flukes " on the xray? We Will definitely

re-xray in 2 months, but still baby isn't on his knees

crawling at 16mos...Should we be seeing another Ortho?

or just wait and see?

I feel that the ped felt there was something to

originally order the xrays, then the radiologist wrote

what she felt was going on by the xrays, and I want

the Ortho to be right, that it's nothing-but there's

that Mom part of me that is questioning the Ortho

(who's supposed to be great in his field) that it's

all just a fluke. What as parents would you do? if

anything. Just wait? Get a second opinion now? I

realize this isn't a child who has DS, but was hoping

to get some opinion since this subject is about hips.

Thanks so much. I know nothing said here would be

misconstrued as medical advice and would only

expressed opinions of parents, etc..on this group.

Thanks again,

Joy

__________________________________________________

[Guest guest]

THANKS!!!

I will upload this one instead. I was much longer winded on that day. ;-)

--Carol in IL

--------- Hips

Kathy had made an ortho file and asked that I repeat my 'story' so we can put it in the file.

My had subluxated hips and was being monitered and when the Ped Ortho hung her films up, my jaw dropped when I realized that her hips looked worse when they were in the straight down position and were perfectly seated in the socket when in the froggy postiion every OT and PT had been telling me to place to her in. I asked why on earth I had been given the information and his reply " I don't know, it's wrong". I just could barely believe it and so he went off to get a text book to show me the chapt on hips and the cure... guess what a treatment option for subluxated and dislocated hip is???

They put kids in braces, hareness or cast them in that froggy position.

A quick search of the web will yeild that same info.

So if you have been told to keep your baby's hips together, don't hold them on your hips, don't let them sit in a walker or bouncer with their legs spread... ignore it ( unless of course you have Doctor who is prescribing such care. If you don't have a Dr over seeing such advice, please double check with a good Ped Ortho before you continue on.

When you pull a child's legs down or together, you are literally pulling the hip bone out of the socket. I saw it with my own eyes.

If you scroll down the first x-ray it shows how the hip is being pulled downward with the legs straight. Now imagine how it would look if the child raised his legs up and you can see what I mean. Add the low tone will allows the muscles in our kids to REALLY stretch, and you can see where they could be trouble.

http://www.zadeh.co.uk/paediatricorthopaedics/paediatricorthopaedics.htm

--Carol in IL

[Guest guest]

Hi Joy,

For what 's it worth, I would get a second opinion as well. Did your ped recommend this ortho? If s/he did not, maybe the Ped would have an ortho in mind.

Good luck. Let us know what you find.

--Carol in IL