Dr. Shy et al

[Guest guest]

Hello All,

Just a note to say that I have been going to Dr.Shy and the CMT clinic

for evaluation, Data Base inputs, testing, and AFOs from

-Fillipis. Three trips so far and not quite there yet. I'll post a

long comment with pictures when complete.

Tonight at Maunday Thursday services, our church tried a foot washing rite which

was very nicely received. I participated and felt that it had double meaning for

me although I might have offered my left foot as it is the worse of the two.

There was no embarrassment with showing the deformities walking back afterwards

barefoot.

I am reminded that religious topics are verboten here, but it was such a

pleasant experience that I wanted to pass it on. I wonder how much of our pain

and embarrassment is internally generated. Perhaps we might find some help in

not being angry, worrisome, and impatient with the symptoms.

Focusing on the pain can make it worse. I remember the hair shirt thing

with Sir More (I think) from college readings and wonder if we

might think of CMT/HNPP as an added aggravation in life that makes us

that much more concerned with being a mensch to our fellow men.

Certainly, directing our concerns outward lessens the effects of this

disease on our natures.

EdM from NH