Guest guest Posted April 10, 2007 Report Share Posted April 10, 2007 Hi, just a few things, we have been treating gut bugs for 8 days now & (lovley but harder work since treatment!) has achieved 2 good poos tonight horaahhhhh Re: direct payments, I have been reading about success stories here, so can any one tell me do you get direct payment as a carer for yourself , or for your child with a disability there seem to be two types. Did you do an on line assesment or a visit from a social worker ? I live in Kent so this seems like a challenge I may be up for & considering, I had a hard day today I am in the right frame of mind to go for it. I took both my boys to the park & saw some one I knew with her 2 girls talking to her friend whilst her girls played, I said hello & talked about what we were doing with ( I must be soo boring now for about 2 minutes & that was it, was in tears & sobbing his heart out - I think he needed a wee urgently & the fear of hand driers entered his head, my 2 nearly 3 year old was demanding my attention as I am his playmate as was doing his own thing & I needed help. I didnt see the girl I knew any more after that as I was just coping with one situation after another. This is what I am used to, but when I see my friend in the distance still chatting & laughing to her friend it reminds me how demanding having a child with autism is & how I can't relax when I take them out. Luckily my boys both had bright green t shirts on so they were easy to spot & the park is seperated into sections, but there are lots of places that I would love to take them but can't manage & then I think about my smaller boy who is missing out ( I know this as he has become more demanding of my attention) but when I keep having to rescue from trying to jump from a climbing frame to go down a 'fireman pole' its hard to divide myself equally. ( he has been watching Lazy town!) Luckily they have a very good cafe & I had my contacts in so I could see Ed climbing whilst I treated his brother to an ice cream. There were more incidences like slipping down a climbing frame instead of climbing & saying 'I do it again' we have not had this repetative type of bahaviour for months! any I am tired. So although I have waffled on! could any one e - mail me with advice re direct payment. Thank you, by the way if any one wants to meet up soon so we can all be bio med enthusiastic together let me know Lara x Quote Link to comment Share on other sites More sharing options...
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