Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Hello, I to fold over the upper end of the socks and trim away some of the strap to let the velcro catch the sock and hold it up. That beats garters! lol EdM from NH On Thu, 13 Apr 2006 22:40:24 EDT rasbun@... writes: > Hey guys, I always folded the end over the top of my braces. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Sally, I do hear you loud and clear. In the begining you should use them few hours a day until you get used to them. It took me a while until I was able to wear them the whole day. I wear one pair of socks under my AFOs which I fold over the plastic part so it doesn't touch my leg and then I use another pair of socks over them. I found this the best. I hope you (or your family member) feels better after using them for a while, they are the best to help with balance and of course walking without them I wouldn't know what to do, but I always wonder if there is something better to help me, and of course there is always the challenge to find a good pair of shoes. Wish you lots of luck Spy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Hi Larry, Just had to tell you how inspirational your post was. I truly believe everything in life comes down to decisions. We can decide to feel sorry for ourselves, we can decide to be miserable....but we soon realize it's really no fun! 'Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 Hey Selfish Genome, I wear AFOs on both legs. I have Axonal CMT. I have more atrophy on the right than the left - at present. I have been wearing AFOs since last April. I can now WALK! I have noticed quicker deterioration of the calve muscles since wearing the AFOs it is b/c the AFO supports the lower limb and the large thigh muscles can do the work for the legs. Unitl I got the AFOs I wore an orthotic insole, they helped with foot pain, but my ankles were so weak, esp. the right one. I am sure when I am wearing pants, no one can tell that I wear AFO's. I believe I walk " normal " I have a lift on my shoes as well, so people may notice that my shoes are weird. The only downfall is I have one pair of shoes I can wear b/c they have been adjusted for my rolling our of the feet. Oh well, people just have to deal with it. I think we are more aware of our downfalls than others. Really I believe that people in general are a wee bit self centred so we are all more aware of " me " than the " other " so get the AFOs and enjoy your freedom of mobility. No one needs to know you wear them. Mine are white, but my orthotist suggested a " funky " colored plastic. At the time I was too self conscious to even consider it, but next pair will be wild to H with what everyone thinks These are now part of WHO I am so world - deal with it!. My orthotist told me of a client who would buy two pairs of jeans. One pair was to be cut up to cover the AFOs b/c he tucked his pant legs into the AFO. said it was a royal pain in the butt to cover them but he did it so this guy would feel " normal " good luck to ya! In , " selfishgenome " <selfishgenome@...> wrote: > > Dear Friends, > > I am new in this group and recently diagnosed with CMT4, an axonal > autosomal recessive hereditary motor sensory neuropathy. The first > symptoms appeared 6-7 yeas ago when I was 18 years old. I did not > pay attention much until recently that the disease progressed and > caused me lot of problems. I have developed sever foot drop such > that approximately all lower leg muscles have been atrophized and > nothing has remained. > > As I thoroughly searched in the web and also my physicians > mentioned, it seems that there is definitely no particular cure for > CMT at present; neither probably would be in our life-time > especially for this rare type. > > The incident has caused me lot of stress in the past couple of years. Progressive, incurable, inborn and genetic-based, social outcast, increasing disability in walking, marriage difficulties, … all of these features made me to loss all my hopes for the future life. I do not know I am paying the price of what and why god treated me this wrong way. > > But now I do not want to put these issues, as they may adversely > affect group members. I want to ask you about Ankle Foot Orthosis, > if any of you has tried it yet. I have a heavy gait and I am > embarrassing when stumbling and staggering in front of people in > university, family, street. > > To tellyou the truth, I loathe to be considered as a disabled or crippled youngster. I would like to know two issues about AFOs and I would be very happy if someone can tell me something about them. > > First is it possible to obviate my gait completely by a proper AFOs? If no, to what extend it can help in my case? And second, If I use a good custom-made one, is it clear that I am wearing a brace either by observing the way that I am walking or the noise that it may produce? > > I mention that I have developed a fairly severe muscle atrophy, > however I am quite strong and live independently. It seems that my > tenacity in walking has made the remaining muscles quite strong, > although there exists a clear and rather heavy gait and bones and > joints are bearing a large pressure. But since proximal muscles are > healthy and strong, I feel I can take advantage of AFOs and thus > decided to ask you about that. > > Best wishes and kind regards > > Selfish Genome > Quote Link to comment Share on other sites More sharing options...
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