Amazing read

[Guest guest]

forwarded with permission from another list, orignially posted by a

semi-recovered (his words) 47yr old man with autism and immune problems:

As much as anything else,this is a story about gross negligence of the

medical establishment.Negligence and stupidity.Three months ago,I

marked the 40th anniversary of my being diagnosed with autism.I was in

the first grade at the time.No thought was given at the time,to the

relationship,of ASDs,to acute infections in early childhood,and the

autoimmune reactions of same.

I had acute bacterial meningitis,and pneumonia,when I was a baby,and

spent my 5th,6th,and 7th month of life in the hospital.My mother was

told there would be complications,but the doctors at the hospital did

not tell her what they would be.I developed hemianopia in my left

eye.I had serious delays in almost every area of development,except

speech.I was profoundly autistic.I had chronic ear infection well into

my 40s.Chronic pneumonia.Inflammatory bowel disease,beginning at age

five.Recurring meningitis.Rheumatic fever at age seven,that developed

into chronic heart,joint,and lung disease in that order.

On top of all that,I never experienced puberty.Only now,do I

understand the neuroendocrine reasons behind this.

I saw doctor after doctor,year after year trying to receive a

diagnosis,and treatment for my assorted health conditions,with no luck

at all.Only rarely did I ever meet a doctor,who thought it was at all

unusual,to see somebody in their 20s,30s,40s,whose body had grown to a

reasonable adult height,without experiencing puberty.Basically a 5'8'

child.But if these doctors thought it noteworthy,they never thought it

worth changing.Nor did any doctor I ever see connect the dots from

neuroendocrine deficiency,and autoimmune disease.I had to figure all

this out on my own,as well as finding the alternative healthcare

products to effectively treat my assorted sundry conditions.

I had made great progress on my immune problems,but there was a lot of

neurological problems I had not been able to reverse.Two months ago,I

had three major seizures,immediately followed by an acute flareup of

meningitis.My sister is also epileptic(Not to mention schizophrenic.)

,and I want to see her neurologist.I had a CT done,of my brain,and I

found evidence of many subacute/subclinical seizures,over a period of

years,if not decades.

I immediately went online,and began researching treatments for seizure

disorders,and cognitive decline,and immediately stumbled on GABA,and

L-glutamine,which I have to buy online,from people who sell

body-building supplements.Now I understand why.Within days,after

starting on them,my seizures stopped.The next week,my brain fog

lifted,for the first time decades.Then,I began to notice I was able to

put together truly rational thoughts,for the first time in my life.And

not just occasionally,or one or two here and there,but all of the

time.It feels weird.My impulsiveness is gone,and I can see the results

of what I do.I actually tell somebody if I am going out,and where.The

other day,I actually felt empathy for another person.It felt weird.

Well you get the picture.

The most recent developments are neuroendocrine.I noticed yesterday,my

voice is starting to change.I am just noticing the first,fine

sproutings of body hair,and I have to shave every other day.Not once a

month.At almost 47 years of age,I am growing up.I wonder if this

means,I will live an extra 20-30 years than " normal " ?Also,I finally

understand how people can " outgrow " severe diseases,once all of the

normal hormones kick in.

[Guest guest]

Thanks Natasa for forwarding this. I love hearing these stories of

these brave and determined people who, despite their considerable

difficulties, have battled against all the odds and come up trumps.

I wish we could see them on every news stand in the country.

I would really like to get in touch with this fella. Is it possible

you could put me in touch with him?

Thanks

Zoe

>

> forwarded with permission from another list, orignially posted by a

> semi-recovered (his words) 47yr old man with autism and immune

problems:

>

>

> As much as anything else,this is a story about gross negligence of

the

> medical establishment.Negligence and stupidity.Three months ago,I

> marked the 40th anniversary of my being diagnosed with autism.I

was in

> the first grade at the time.No thought was given at the time,to the

> relationship,of ASDs,to acute infections in early childhood,and the

> autoimmune reactions of same.

>

> I had acute bacterial meningitis,and pneumonia,when I was a

baby,and

> spent my 5th,6th,and 7th month of life in the hospital.My mother

was

> told there would be complications,but the doctors at the hospital

did

> not tell her what they would be.I developed hemianopia in my left

> eye.I had serious delays in almost every area of development,except

> speech.I was profoundly autistic.I had chronic ear infection well

into

> my 40s.Chronic pneumonia.Inflammatory bowel disease,beginning at

age

> five.Recurring meningitis.Rheumatic fever at age seven,that

developed

> into chronic heart,joint,and lung disease in that order.

>

> On top of all that,I never experienced puberty.Only now,do I

> understand the neuroendocrine reasons behind this.

>

> I saw doctor after doctor,year after year trying to receive a

> diagnosis,and treatment for my assorted health conditions,with no

luck

> at all.Only rarely did I ever meet a doctor,who thought it was at

all

> unusual,to see somebody in their 20s,30s,40s,whose body had grown

to a

> reasonable adult height,without experiencing puberty.Basically a

5'8'

> child.But if these doctors thought it noteworthy,they never

thought it

> worth changing.Nor did any doctor I ever see connect the dots from

> neuroendocrine deficiency,and autoimmune disease.I had to figure

all

> this out on my own,as well as finding the alternative healthcare

> products to effectively treat my assorted sundry conditions.

>

> I had made great progress on my immune problems,but there was a

lot of

> neurological problems I had not been able to reverse.Two months

ago,I

> had three major seizures,immediately followed by an acute flareup

of

> meningitis.My sister is also epileptic(Not to mention

schizophrenic.)

> ,and I want to see her neurologist.I had a CT done,of my brain,and

I

> found evidence of many subacute/subclinical seizures,over a period

of

> years,if not decades.

>

> I immediately went online,and began researching treatments for

seizure

> disorders,and cognitive decline,and immediately stumbled on

GABA,and

> L-glutamine,which I have to buy online,from people who sell

> body-building supplements.Now I understand why.Within days,after

> starting on them,my seizures stopped.The next week,my brain fog

> lifted,for the first time decades.Then,I began to notice I was

able to

> put together truly rational thoughts,for the first time in my

life.And

> not just occasionally,or one or two here and there,but all of the

> time.It feels weird.My impulsiveness is gone,and I can see the

results

> of what I do.I actually tell somebody if I am going out,and

where.The

> other day,I actually felt empathy for another person.It felt weird.

> Well you get the picture.

>

>

> The most recent developments are neuroendocrine.I noticed

yesterday,my

> voice is starting to change.I am just noticing the first,fine

> sproutings of body hair,and I have to shave every other day.Not

once a

> month.At almost 47 years of age,I am growing up.I wonder if this

> means,I will live an extra 20-30 years than " normal " ?Also,I

finally

> understand how people can " outgrow " severe diseases,once all of the

> normal hormones kick in.

>

[Guest guest]

> >

> > forwarded with permission from another list, orignially posted by a

> > semi-recovered (his words) 47yr old man with autism and immune

> problems:

> >

> >

> > As much as anything else,this is a story about gross negligence of

> the

> > medical establishment.Negligence and stupidity.Three months ago,I

> > marked the 40th anniversary of my being diagnosed with autism.I

> was in

> > the first grade at the time.No thought was given at the time,to the

> > relationship,of ASDs,to acute infections in early childhood,and the

> > autoimmune reactions of same.

> >

> > I had acute bacterial meningitis,and pneumonia,when I was a

> baby,and

> > spent my 5th,6th,and 7th month of life in the hospital.My mother

> was

> > told there would be complications,but the doctors at the hospital

> did

> > not tell her what they would be.I developed hemianopia in my left

> > eye.I had serious delays in almost every area of development,except

> > speech.I was profoundly autistic.I had chronic ear infection well

> into

> > my 40s.Chronic pneumonia.Inflammatory bowel disease,beginning at

> age

> > five.Recurring meningitis.Rheumatic fever at age seven,that

> developed

> > into chronic heart,joint,and lung disease in that order.

> >

> > On top of all that,I never experienced puberty.Only now,do I

> > understand the neuroendocrine reasons behind this.

> >

> > I saw doctor after doctor,year after year trying to receive a

> > diagnosis,and treatment for my assorted health conditions,with no

> luck

> > at all.Only rarely did I ever meet a doctor,who thought it was at

> all

> > unusual,to see somebody in their 20s,30s,40s,whose body had grown

> to a

> > reasonable adult height,without experiencing puberty.Basically a

> 5'8'

> > child.But if these doctors thought it noteworthy,they never

> thought it

> > worth changing.Nor did any doctor I ever see connect the dots from

> > neuroendocrine deficiency,and autoimmune disease.I had to figure

> all

> > this out on my own,as well as finding the alternative healthcare

> > products to effectively treat my assorted sundry conditions.

> >

> > I had made great progress on my immune problems,but there was a

> lot of

> > neurological problems I had not been able to reverse.Two months

> ago,I

> > had three major seizures,immediately followed by an acute flareup

> of

> > meningitis.My sister is also epileptic(Not to mention

> schizophrenic.)

> > ,and I want to see her neurologist.I had a CT done,of my brain,and

> I

> > found evidence of many subacute/subclinical seizures,over a period

> of

> > years,if not decades.

> >

> > I immediately went online,and began researching treatments for

> seizure

> > disorders,and cognitive decline,and immediately stumbled on

> GABA,and

> > L-glutamine,which I have to buy online,from people who sell

> > body-building supplements.Now I understand why.Within days,after

> > starting on them,my seizures stopped.The next week,my brain fog

> > lifted,for the first time decades.Then,I began to notice I was

> able to

> > put together truly rational thoughts,for the first time in my

> life.And

> > not just occasionally,or one or two here and there,but all of the

> > time.It feels weird.My impulsiveness is gone,and I can see the

> results

> > of what I do.I actually tell somebody if I am going out,and

> where.The

> > other day,I actually felt empathy for another person.It felt weird.

> > Well you get the picture.

> >

> >

> > The most recent developments are neuroendocrine.I noticed

> yesterday,my

> > voice is starting to change.I am just noticing the first,fine

> > sproutings of body hair,and I have to shave every other day.Not

> once a

> > month.At almost 47 years of age,I am growing up.I wonder if this

> > means,I will live an extra 20-30 years than " normal " ?Also,I

> finally

> > understand how people can " outgrow " severe diseases,once all of the

> > normal hormones kick in.

> >

>