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Thanks Steve--I just ordered Ojibwa tea the other day for other

reasons. I am glad to hear it may help with the sleep issues.

> Things that have helped with us include glycine and Ojibwa Tea.

> Taurine, inositol and 5-HTP have also helped a lot, but these would

> not be suitable for everyone.

>

> Steve

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--- In , " tod_s_2000 " <tod_s_2000@y...>

wrote:

> I know her yeast is under control right now, and she is so limited

on

> food that she will eat, and there are no phenolic foods in her diet.

> This is really puzzling me.

All foods have phenols, just some are higher than others.

Also consider the supplements you are using, most caused my son to

have sleep problems.

Also consider adding magnesium, that helps some kids.

Good luck.

Dana

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I just meant the foods she eats aren't major culprits. I will add

magnesium. Thanks

-- In , " danaatty " <danaatty@y...>

wrote:

>

> > I know her yeast is under control right now, and she is so

limited

> on

> > food that she will eat, and there are no phenolic foods in her

diet.

> > This is really puzzling me.

>

>

> All foods have phenols, just some are higher than others.

>

> Also consider the supplements you are using, most caused my son to

> have sleep problems.

>

> Also consider adding magnesium, that helps some kids.

>

> Good luck.

>

> Dana

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Hypoglycemia causes problems?? Her mother is hypoglicemic, so that is

a possibility??

-- In , TwoTonks@a... wrote:

> In a message dated 7/25/2003 9:49:46 AM Central Daylight Time,

> danaatty@y... writes:

>

>

> >

> > > I know her yeast is under control right now, and she is so

limited

> > on

> > > food that she will eat, and there are no phenolic foods in her

diet.

> > > This is really puzzling me.

>

> Consider hypoglycemia.

> Debbie

>

>

>

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Thanks--I will give it a try!!

> In a message dated 7/25/2003 11:52:29 AM Central Daylight Time,

> tod_s_2000@y... writes:

>

>

> > Hypoglycemia causes problems?? Her mother is hypoglicemic, so

that is

> > a possibility??

> >

>

> NOTHING helped my son sleep better than feeding him as though he

had

> hypoglycemia. My son never slept more than two straight hours until

he was 4 1/2.

> Around the age of four, I'd been studying hypoglycemia (which I

have mildly),

> wondering if my son could have it. We consulted the pediatrician we

were using at

> the time and discussed hypoglycemia. He ran a quick urine test,

asked some

> questions, checked the urine and said my son did not have

hypoglycemia.

> Thankfully, by that time, we'd already lost lots of faith in

pediatricians, and

> continued studying it on our own. We found that doing an actual

test for hypoglycemia

> is inaccurate (a real test, which involved taking blood

periodically for

> hours), and is especially inaccurate on kids. We read a bunch of

online

> questionairres about hypoglycemia, and on each of them, my son

scored very highly,

> meaning he very likely did have hypoglycemia.

>

> We decided we had nothing to lose by feeding them as though he had

> hypoglycemia. Very briefly, this meant five small meals a day, lots

more protein,

> avoiding foods with high glycemic indexes, feeding protein FIRST if

giving fruit or

> foods with higher glycemic indexes, feeding one or more

meals/snacks a day of

> ONLY protein. As for sleeping, the last snack of every night was

also ONLY

> protein.

>

> After two or three days of this, my son slept five straight hours

for the

> first time ever. His sleeping only improved after that, and his

hyperactivity

> decreased a lot also. His attention seemed better, and he had fewer

spacy/foggy

> episodes. Feeding for hypoglycemia was probably the biggest

breakthrough we've

> had with my son, seconded only by treating for yeast (which another

doc said

> my son did not have since his stool tests always came back clean of

yeast).

>

> I think yeast is tied up in hypoglycemia somehow, and when we

started

> treating for yeast also, ignoring those clean stool test results,

he began sleeping

> through the entire night. My son is also very sensitive to highly

phenolic

> foods, and eliminating those also helps him sleep more soundly.

>

> Of course all kids are different, but this is what really, really

helped my

> son to sleep.

>

> Good luck,

> Debbie

>

>

>

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Hi ,

Somehow my career took away my 'night person' life, and ever since I

have pretty much fallen asleep early, by 10 pm, but from 3-4 am I am

wide awake (and so is my brain - I think alot, make notes, write ideas,

in the summer I get out of bed and go sit outside) after 4 am I sleep

till about 7 or 7:30 - maybe 8.

I just had to accept my 3 am 'crazies' and try to make them work for

me, lol. There is still a part of me that thinks my insomnia is a

result of being pumped up on Ritalin during my teens.

~ Gretchen

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Has anyone else noticed sleep problems with there children? Our

Daughter underwent a sleep study at Mayo Clinic and we were told that

she is waking up about 13 times an hour and only sleeps about 70 - 80%

of the night. The neurologist believes once we address this it will make

a big impact in her development. Just curious if anyone else has seen

this.

Mark

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We had the same problem. At 17 months old our daughter stopped sleepeing thru

the night. SHe would fall asleep for about 4 hours, wake for about 3-4

hours-happy as could be and then fall back asleep. After 16 months of this and

no help from any doctors, I finally took her for a sleep study and found that

she had about 101 obstructive apneas. I then took her for a CT scan of her

sinuses/adnenoids and found that she had very LARGE adenoirds. Two weeks later

she had her adenoids out and we have been sleeping through the night at least

9-11 hours straight.

---- " Mark D. Freis " <mfreis@...> wrote:

> Has anyone else noticed sleep problems with there children? Our

> Daughter underwent a sleep study at Mayo Clinic and we were told that

> she is waking up about 13 times an hour and only sleeps about 70 - 80%

> of the night. The neurologist believes once we address this it will make

> a big impact in her development. Just curious if anyone else has seen

> this.

>

> Mark

>

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My daughter of 26 months experienced this problem and we decided to try the

Therapeutic Listening program ......which consists of listening to a modulated

CD, twice a day for thirty minutes , and her sleeping has improved

significantly. My Occupational Therapist recommended this program to me and only

trained therapist can select the right program. Hope this helps.

" Mark D. Freis " <mfreis@...> wrote: Has anyone else noticed sleep

problems with there children? Our

Daughter underwent a sleep study at Mayo Clinic and we were told that

she is waking up about 13 times an hour and only sleeps about 70 - 80%

of the night. The neurologist believes once we address this it will make

a big impact in her development. Just curious if anyone else has seen

this.

Mark

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Oh yes. Have you tried melatonin? I give both my kids 2 mg about 30

minutes to an hour before bedtime. It has made a huge difference.

>

> Has anyone else noticed sleep problems with there children? Our

> Daughter underwent a sleep study at Mayo Clinic and we were told that

> she is waking up about 13 times an hour and only sleeps about 70 - 80%

> of the night. The neurologist believes once we address this it will make

> a big impact in her development. Just curious if anyone else has seen

> this.

>

> Mark

>

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Can the adenoids be swollen, or just very large without the tonsils being

swollen? I'm just curious about this, because I am trying to figure out what

is going on with my son. His tonsils were swollen, the ped. doctor put him on

antibiotics and singular, for suspected allergies. Three weeks later they

were getting swollen again, back to the ped, they said yes very swollen

tonsils and reffered us to an ENT. The ent said (this was a week later) the

tonsils look fine and prescribed nasonex (a steriod spray) for his nose so he

could

breathe better through it. But she also said that a saline spray would work

as well. This happened last week, and now he is just getting over a fever

that lasted a couple of days, his second time getting a fever like this in two

weeks. Not last night, but the two nights before it, his breathing was very

rapid and short. It seemed pretty normal last night. I've been online

trying to figure out what these symptoms mean. THe rapid breathing was pretty

scaring. I think he may have some type of allergy. I didn't give him any of

the fish oil or vit e yesterday cause I was worried it might make things

worse. He did have the tonsil problem before the initial tonsil swelling tho.

I

wondered if maybe he is allergic to fish? Or soy? Or milk? I don't know how

that kind of rapid breathing could happen from just having a stomach flu or

whatever he did have. There has been a lot of diarrhea too. One night a

couple of weeks ago, we went through Dunkin Donuts drive-through, and I got him

a plain cake donut. I remembered that he liked it the last (first) time he

tried one. He gobbled it up, and asked for another. I got him one, and he

ate that one too! The next day he had terrible diarrhea. So maybe something

in those donuts he is allergic too. All I know is this is driving me crazy

and I am worried about him. He almost never has had normal looking bowel

movements, they are usually very soft.

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Hello,

Does any one have sleep problems and are tired during the day? What kinds of

stuff that can help you out? I am going to go to a sleep disorder center to see

what's wrong.

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Hello

Yes, I have sleep problems all the time. My urologist said that my frequent

trips to the bathroom at night are a result of the damage done to my prostrate

by the CMT. I can't go more than 2 hours before I have to visit the men's room.

It is the pits, but what else can I do?

Mark

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Well, this appears to be a new one ...

May I ask your age? Ya know, prostates generally enlarge as we males age, with

difficulty emptying, urine retention, etc.

I Googled " CMT prostate " and came up with far to many refreences to certified

massage therapists and .... well, let's not go there.

>

> Hello

>

> Yes, I have sleep problems all the time. My urologist said that my frequent

trips to the bathroom at night are a result of the damage done to my prostrate

by the CMT. I can't go more than 2 hours before I have to visit the men's room.

It is the pits, but what else can I do?

>

> Mark

>

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Yea I have some sleep problems. I heard the recommended minimum amount of sleep

for the average person is about 8 hours. Well, my minimum is like 10 hours, I'm

struggling to stay awake if I only get 8 hours of sleep. I sleep until around

noon every day, and usually have some trouble getting up and going.

I'm not really sure how to address the problem, luckily I can work my college

schedule around it for now.

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rchammer,

If you are of college age, cut yourself a break! My friend who teaches high

school thinks the HS schedules - starting school @ 7:30 or earlier - are

ridiculous for kids that age b/c studies have shown that people in their teens

(and early 20s) need far more sleep than younger kids or adults. I don't

remember exactly why, but she said that it had been proven, and that it was not

just teens being lazy, as parents have often complained.

Of course, CMT may also be playing a role, depending on how it affects you at

this stage in your life. When I was in college, I had pretty good balance

(compared to now) and decent stamina. I didn't get fatigued then the way I do

now. You may be different.

Keep in mind though, that there are other things that can affect how tired you

are, nutrition being one of them. And let's face it, college students are not

known for their great eating habits! (Kudos to you if you're good in that

department!) Also, living on campus is not conducive to great sleep, so if you

do live there, it may be having some effect on the quality of your sleep.

Finally, I have learned something about my own sleep recently. If I wake up an

hour or two before I am " supposed " to and try to go back to sleep for that extra

time, when I wake up I am severely fatigued. On the other hand, if I get up at

that first waking, I am perfectly fine, even if my total number of hours for

that night is only 5 or 6. I believe that by going back to sleep for the extra

hour or two, I am putting myself in the wrong phase of sleep for waking when the

alarm goes off, and so am horribly disoriented and tired for the first half of

the day.

Take a look at your activity levels and eating habits and yes, sleeping habits.

At any rate, it sounds like you are trying to take care of yourself and I

applaud you for that!

>

> Yea I have some sleep problems. I heard the recommended minimum amount of

sleep for the average person is about 8 hours. Well, my minimum is like 10

hours, I'm struggling to stay awake if I only get 8 hours of sleep. I sleep

until around noon every day, and usually have some trouble getting up and going.

>

> I'm not really sure how to address the problem, luckily I can work my college

schedule around it for now.

>

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I too have sleep problems. Freguently it's because of some degree of

pain and I can't get comfortable. All pain pills wind me up instead of

down . My doctor gave me Xanax and 1/2 of one helps a lot. I also have

a snoring husband and I got a white noise machine and that has helped a

lot. I need at least 8 hours and a little more is even better. I have

found if I sleep 10 or more hours because I am especially tired I have

trouble getting to sleep the next night and then I want to sleep longer

the next night and the circle continues. I do better if I set the alarm

and get about 9 hours and get up and get going even if I don't feel like

it.

All this being said there are still nights I can't sleep no matter what.

Rosemary

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Well, I hate to mention it, as Gretchen often gets upset, but if you

are in a medical marijuana state, medical marijuana is now -proven-

efficacious with 4 FDA " Gold Standard, " patient trials to combat both

neuropathic pain and sleeplessness, with the researchers quoted as

saying...

" Inhaled cannabis reduces pain and improves sleep compared to placebo,

and is well tolerated by patients with chronic neuropathy, according

to clinical trial data published this week in the Journal of the

Canadian Medical Association (CMAJ).

Investigators at McGill University in Montreal assessed the efficacy

of inhaled cannabis on pain intensity in 23 subjects with chronic post-traumatic

or post-surgical neuropathic pain in a randomized, double-blind,

placebo-controlled crossover trial. Participants in the study received a single

inhalation of 25 mg of 9.4 percent herbal cannabis or placebo three times daily.

All of the volunteers in the study suffered from refractory pain for which

conventional therapies had proven ineffective.

Researchers reported: “[H]erbal cannabis … significantly reduced

average pain scores compared with … cannabis placebo in adult

participants. … We found significant improvement in measures of sleep

quality and anxiety. … Our results support the claim that smoked

cannabis reduces pain, improves mood, and helps sleep.”

Emphases added by me.

But further, I think this is a problem with fatigue during the day,

and not sleep problems per se. I need more than 8 hours myself,

usually 9. But this does not keep me from needing actual rest between

3 and 6 P.M, and it keeps me from doing much after 11 P.M.

So here is the hard part... this may be a permanent feature of your

life, as it is of mine and many other CMTers, just downright fatigue

because it is simply harder to get through a day with CMT. It is a

great deal of work for your working muscles and your brain to get you

around without what is currently bothering you with CMT.

By permanent feature, I mean you may have to start living at a lower

level of activity. This means you have to carefully pick what you do,

and plan rest periods accordingly.

Another thing is that the activities you currently do may have to be

curtailed in some way. I know that bicycling through the foothills in

of the German Alps in extreme Southern Germany where I lived and

worked for a period in the 90s... it was fun and nice, but it was too

much output, and it seriously reduced my ability to work through the

day.

So you may have to examine more than just sleep problems when trying

to find an equilibrium with which you can live.

This is just my experience, and I hope it helps.

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When my husband was on marijuana, he became a doped up, tuned out

non-entity. He had to stop it. It may have helped with sleeping, but he

nodded off all day long and still had problems at night.

Elinor

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