Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 > Is there a connection? Can chelation negatively affect sleep pattern? Our eperience is that it can for the child and the adult, but it can have greater long term gain - we hope. First of all, Autism whatever the cause, created extensive sleep problems since about a year of age or so. For example being up all night. We have noted improved sleep patterns (both on and off chelation) since last July which we think relate to the ultimate benefits of chelation (mercury detox). During the treatment though, and especially since we have become somewhat more agressive in terms of increasing the dose to 100 mg of each for an 86 lb. 8 year old every 3 hours for ALA and every 4 hours for DMSA over the last month, sleep has been compromised, but I think that I see a propensity for her to dream, and perhaps to augment her experience while doing so. Keep in mind that we really do not understand alot about sleep, and less about how it is affected eith autism, or by chelation. Joe Marciano Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 > Is there a connection? Can chelation negatively affect sleep pattern? Our eperience is that it can for the child and the adult, but it can have greater long term gain - we hope. First of all, Autism whatever the cause, created extensive sleep problems since about a year of age or so. For example being up all night. We have noted improved sleep patterns (both on and off chelation) since last July which we think relate to the ultimate benefits of chelation (mercury detox). During the treatment though, and especially since we have become somewhat more agressive in terms of increasing the dose to 100 mg of each for an 86 lb. 8 year old every 3 hours for ALA and every 4 hours for DMSA over the last month, sleep has been compromised, but I think that I see a propensity for her to dream, and perhaps to augment her experience while doing so. Keep in mind that we really do not understand alot about sleep, and less about how it is affected eith autism, or by chelation. Joe Marciano Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 In a message dated 7/24/2002 1:00:39 PM Central Daylight Time, linda@... writes: > Hi Carol, > I have been on both Ambien and Trazodone. They are not considered RA meds. > I was using them before I was diagnosed with RA. They fall into a > different catagory. I would definately get something to help you sleep. > Neither of these worked for me very well, but any amount of sleep will help > you. > > P > > I have never tried Ambien, but have used Trazadone for about four and a half years (with a few breaks in between). I started taking it for sleep problems and moderate depression. I know every medication works differently on different people - the Trazadone works well for me. If I stop taking it, there are no side effects other than that I go back to not sleeping. I have no addiction problems and no stomach problems with it either. I also started taking it several years before the RA and Lupus diagnosis. Alice in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Hi Carol, I have been on both Ambien and Trazodone. They are not considered RA meds. I was using them before I was diagnosed with RA. They fall into a different catagory. I would definately get something to help you sleep. Neither of these worked for me very well, but any amount of sleep will help you. P Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Carol, in my study I too must tell them anything new I am taking...supposed to checkl first. I take generic norflex every day (same as flexeril)and I take restoril for sleep which is very generic for ambien...same stuff...no hangover effect and sleep soundly.I asked before I started my supartz shots in my knee.....she told me long as it isnt anything steroid wise in my system like getting a shot of kenelog. I asked about my trigger pt injections and she said they were fine cos they go to muscles not joints? I know this is going to sound awful to some of you but I am so glad there is no one needing to sleep with me every night...I dont know how people with RA and FM manage. I am all over the bed ...I have spells at nights sometimes where I am up and down all night to move legs , etc. and dont even try to borrow one of my pillows .........and then when I do get to sleep sometimes I just need to stay there ...I dont make many appts for early morning cos of never knowing when I might get a lousy night. Anyway...Good Luck Carol....Judy in AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Hi Carol...Trazadone is an antidepressant, and Flexeril is a muscle relaxant. Trazadone didn't work well for me, and I had unpleasant side-effects with Flexeril. I use 50mg elevil for sleep, and Robaxin for muscle problems. Your sleep is SO important. I hope & pray you get some relief soon. Love & Hugs... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 << I know this is going to sound awful to some of you but I am so glad there is no one needing to sleep with me every night...>> It's certainly taking a toll on my marriage. Not that we're having problems, but it seems more like we're roommates than husband and wife lately. That's why he suggested I go in today and talk to the Dr. and get something for sleep. It went really well. He prescribed Ambien (for short term use) and said take one every second night. He said that will keep it more effective, and there's less risk of addiction that way (although he said it's not really that addictive). If I am still having problems in a month, he will change it to Trazodone. We're hoping once I'm on the Remicade I will be able to sleep better. Thanks to everyone who replied today. I love you all so much, and appreciate your friendship immensely. Love and hugs, Carol Re: [ ] Sleep problems Carol, in my study I too must tell them anything new I am taking...supposed to checkl first. I take generic norflex every day (same as flexeril)and I take restoril for sleep which is very generic for ambien...same stuff...no hangover effect and sleep soundly.I asked before I started my supartz shots in my knee.....she told me long as it isnt anything steroid wise in my system like getting a shot of kenelog. I asked about my trigger pt injections and she said they were fine cos they go to muscles not joints? I know this is going to sound awful to some of you but I am so glad there is no one needing to sleep with me every night...I dont know how people with RA and FM manage. I am all over the bed ...I have spells at nights sometimes where I am up and down all night to move legs , etc. and dont even try to borrow one of my pillows .........and then when I do get to sleep sometimes I just need to stay there ...I dont make many appts for early morning cos of never knowing when I might get a lousy night. Anyway...Good Luck Carol....Judy in AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Carol: I also had a problem with trazadone....the wierdest nightmares you can imagine...they told me that is a side effect...also the ambien...I expressed concern about addiction to a sleeping aid and my doc said ....in these diseases sleep concerns are more worrysome than addiction.....if you dont sleep the pain is much worse and he felt an ambien a night was better than not sleeping....anyway sorry for buttin in.....Kathi in OK --- Tess_St_Pierre@... wrote: > Hi Carol...Trazadone is an antidepressant, and > Flexeril is a muscle > relaxant. Trazadone didn't work well for me, and I > had unpleasant > side-effects with Flexeril. I use 50mg elevil for > sleep, and Robaxin > for muscle problems. Your sleep is SO important. I > hope & pray you get > some relief soon. > > Love & Hugs... > > Tess > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Elavil is the only thing thing that keeps me sleeping at night. The only drawback to it is that it causes weight gain. --- Tess_St_Pierre@... wrote: > Hi Carol...Trazadone is an antidepressant, and > Flexeril is a muscle > relaxant. Trazadone didn't work well for me, and I > had unpleasant > side-effects with Flexeril. I use 50mg elevil for > sleep, and Robaxin > for muscle problems. Your sleep is SO important. I > hope & pray you get > some relief soon. > > Love & Hugs... > > Tess > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi Kathi, Your input is always welcome!!! I took the Ambien last night and slept great! I didn't realize how sleep deprived I was getting. I do seem a little less sore today after a good night's sleep, too. I worry about every med I take. It's my avocation, I think. I've come to the conclusion that it's a trade off to have a better quality of life, and I just have to be careful and ever diligent. Love and hugs to my Okie friend, Carol Re: [ ] Sleep problems Carol: I also had a problem with trazadone....the wierdest nightmares you can imagine...they told me that is a side effect...also the ambien...I expressed concern about addiction to a sleeping aid and my doc said ....in these diseases sleep concerns are more worrysome than addiction.....if you dont sleep the pain is much worse and he felt an ambien a night was better than not sleeping....anyway sorry for buttin in.....Kathi in OK --- Tess_St_Pierre@... wrote: > Hi Carol...Trazadone is an antidepressant, and > Flexeril is a muscle > relaxant. Trazadone didn't work well for me, and I > had unpleasant > side-effects with Flexeril. I use 50mg elevil for > sleep, and Robaxin > for muscle problems. Your sleep is SO important. I > hope & pray you get > some relief soon. > > Love & Hugs... > > Tess > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Carol: I am so happy you had a good night.....I know how you feel about the drugs..It is one of my biggest fears and I argue all the time about it...but if it works what can you say.....poor asked what I was taking and I sent her a list I think it scared her so bad she hasnt been posting (LOL)...anyway HURRAH for your good nights sleep.....hugs and love back at you....your Okie friend --- Carol <carol@...> wrote: > Hi Kathi, > > Your input is always welcome!!! I took the Ambien > last night and slept > great! I didn't realize how sleep deprived I was > getting. I do seem a > little less sore today after a good night's sleep, > too. > > I worry about every med I take. It's my avocation, > I think. I've come to > the conclusion that it's a trade off to have a > better quality of life, and I > just have to be careful and ever diligent. > > Love and hugs to my Okie friend, > Carol > > Re: [ ] Sleep problems > > Carol: I also had a problem with trazadone....the > wierdest nightmares you can imagine...they told me > that is a side effect...also the ambien...I > expressed > concern about addiction to a sleeping aid and my doc > said ....in these diseases sleep concerns are more > worrysome than addiction.....if you dont sleep the > pain is much worse and he felt an ambien a night was > better than not sleeping....anyway sorry for buttin > in.....Kathi in OK > --- Tess_St_Pierre@... wrote: > > Hi Carol...Trazadone is an antidepressant, and > > Flexeril is a muscle > > relaxant. Trazadone didn't work well for me, and > I > > had unpleasant > > side-effects with Flexeril. I use 50mg elevil for > > sleep, and Robaxin > > for muscle problems. Your sleep is SO important. > I > > hope & pray you get > > some relief soon. > > > > Love & Hugs... > > > > Tess > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Great news Carol! I hope he improved sleep continues to make you feel better. I don¹t blame you For worrying about taking the meds, but not sleeping can cause problems too. Hugs, a > Hi Kathi, > > Your input is always welcome!!! I took the Ambien last night and slept > great! I didn't realize how sleep deprived I was getting. I do seem a > little less sore today after a good night's sleep, too. > > I worry about every med I take. It's my avocation, I think. I've come to > the conclusion that it's a trade off to have a better quality of life, and I > just have to be careful and ever diligent. > > Love and hugs to my Okie friend, > Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 I have tried resterol (sp?) and am now trying elavil...Neither seem to work...If I am awake at 1:30 a.m., I take an elavil...and sleep well from 4 - 7 or 8. So don't take it on work days...Should I take it earlier in the evening? I keep hearing that timing and food are important considerations in effective med use...what do you find works best for you? Marge Re: [ ] Sleep problems > Elavil is the only thing thing that keeps me sleeping > at night. The only drawback to it is that it causes > weight gain. > > --- Tess_St_Pierre@... wrote: > > Hi Carol...Trazadone is an antidepressant, and > > Flexeril is a muscle > > relaxant. Trazadone didn't work well for me, and I > > had unpleasant > > side-effects with Flexeril. I use 50mg elevil for > > sleep, and Robaxin > > for muscle problems. Your sleep is SO important. I > > hope & pray you get > > some relief soon. > > > > Love & Hugs... > > > > Tess > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Marge, for me I've found I have to take the elavil at least 90 minutes prior to bedtime...so I take it between 9-9:30pm and go to bed at 11. The Dr. said take it 30 minutes before, but that doesn't work for me. I have a " busy brain " and I really need time to wind down. Hoping for good rest for you... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 You've looked at yeast, too, right? Inosotol Tryptophan Good luck, Jill G. tod_s_2000 wrote: > Hey everyone--I have tried melatonin, benadryl, and killing > parasites, but my daughter still waits until 11:00 to go to bed, and > she wakes up every 3- hours during the night. Any suggestions to help > with this?? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 We've been using Clonidine (Rx) with good results. N > Hey everyone--I have tried melatonin, benadryl, and killing > parasites, but my daughter still waits until 11:00 to go to bed, and > she wakes up every 3- hours during the night. Any suggestions to help > with this?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 This problem corrected itself for us with the GFCF diet. Are you trying that? J > Hey everyone--I have tried melatonin, benadryl, and killing > parasites, but my daughter still waits until 11:00 to go to bed, and > she wakes up every 3- hours during the night. Any suggestions to help > with this?? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 --- In , " tod_s_2000 " <tod_s_2000@y...> wrote: > Hey everyone--I have tried melatonin, benadryl, and killing > parasites, but my daughter still waits until 11:00 to go to bed, and > she wakes up every 3- hours during the night. Any suggestions to help > with this?? We have avery similar thing going on, key things to rule out, yeast infection, phenol intolerance ( can be yeast if no phenols are being eaten), and supplement side effects based on methylation, see my message from yesterday on supplement side effects and also message 79347 on this board for background info one this issues. I would eliminate bad things before treating with new things Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 My son never slept more than 2-3 hours straight until he was 4 1/2. Around that time, I discovered he: 1) had hypoglycemia 2) had yeast overgrowth 3) had phenol reactions. Feeding for hypoglycemia (basically more protein, esp. just before bed) helped a whole lot in just three days. Working on all three had him sleeping through the night in just a few weeks. Good luck. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 my daughter still waits until 11:00 to go to bed, and > she wakes up every 3- hours during the night. Any suggestions to help > with this?? Magnesium. Mg Citrate if she has constipation, Mg aspartate, Mg malate, Mg glycinate, or Mg taurate if she does not. It does get absorbed better with food and better if dosing is frequent. It makes me too sleepy to take it throughout the day (this is pretty unusual though) so I take the whole day's dose at once. You can get some into her with epsom salts baths. Mercury is notorious for messing with magnesium and quite a few symptoms of mercury toxicity are actually from the mag deficiency it creates. Trudeau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Things that have helped with us include glycine and Ojibwa Tea. Taurine, inositol and 5-HTP have also helped a lot, but these would not be suitable for everyone. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 In a message dated 7/25/2003 9:49:46 AM Central Daylight Time, danaatty@... writes: > > > I know her yeast is under control right now, and she is so limited > on > > food that she will eat, and there are no phenolic foods in her diet. > > This is really puzzling me. Consider hypoglycemia. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 In a message dated 7/25/2003 11:52:29 AM Central Daylight Time, tod_s_2000@... writes: > Hypoglycemia causes problems?? Her mother is hypoglicemic, so that is > a possibility?? > NOTHING helped my son sleep better than feeding him as though he had hypoglycemia. My son never slept more than two straight hours until he was 4 1/2. Around the age of four, I'd been studying hypoglycemia (which I have mildly), wondering if my son could have it. We consulted the pediatrician we were using at the time and discussed hypoglycemia. He ran a quick urine test, asked some questions, checked the urine and said my son did not have hypoglycemia. Thankfully, by that time, we'd already lost lots of faith in pediatricians, and continued studying it on our own. We found that doing an actual test for hypoglycemia is inaccurate (a real test, which involved taking blood periodically for hours), and is especially inaccurate on kids. We read a bunch of online questionairres about hypoglycemia, and on each of them, my son scored very highly, meaning he very likely did have hypoglycemia. We decided we had nothing to lose by feeding them as though he had hypoglycemia. Very briefly, this meant five small meals a day, lots more protein, avoiding foods with high glycemic indexes, feeding protein FIRST if giving fruit or foods with higher glycemic indexes, feeding one or more meals/snacks a day of ONLY protein. As for sleeping, the last snack of every night was also ONLY protein. After two or three days of this, my son slept five straight hours for the first time ever. His sleeping only improved after that, and his hyperactivity decreased a lot also. His attention seemed better, and he had fewer spacy/foggy episodes. Feeding for hypoglycemia was probably the biggest breakthrough we've had with my son, seconded only by treating for yeast (which another doc said my son did not have since his stool tests always came back clean of yeast). I think yeast is tied up in hypoglycemia somehow, and when we started treating for yeast also, ignoring those clean stool test results, he began sleeping through the entire night. My son is also very sensitive to highly phenolic foods, and eliminating those also helps him sleep more soundly. Of course all kids are different, but this is what really, really helped my son to sleep. Good luck, Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 --- In , " tod_s_2000 " <tod_s_2000@y...> wrote: > Hey everyone--I have tried melatonin, benadryl, and killing > parasites, but my daughter still waits until 11:00 to go to bed, and > she wakes up every 3- hours during the night. Any suggestions to help > with this?? This sounds like my son when he had problems with phenols or yeast http://www.danasview.net/phenol.htm http://www.danasview.net/yeast.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 I know her yeast is under control right now, and she is so limited on food that she will eat, and there are no phenolic foods in her diet. This is really puzzling me. > > Hey everyone--I have tried melatonin, benadryl, and killing > > parasites, but my daughter still waits until 11:00 to go to bed, and > > she wakes up every 3- hours during the night. Any suggestions to > help > > with this?? > > > This sounds like my son when he had problems with phenols or yeast > > http://www.danasview.net/phenol.htm > > http://www.danasview.net/yeast.htm > > Dana Quote Link to comment Share on other sites More sharing options...
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