Re: Gut Peristalsis (Sal)

[Guest guest]

Caroline

Are you saying you cannot get the Pentasa prescribed here? My son

was on script for this from Royal Free for years. It was me who said

that they should change it to Asacol since it was easier to swallow.

He does not need even that these days BUT Pentasa was definitely

prescribable as are similar meds. If you have diagnosis I presume -

which was non-specific colitis (as well as ILNH of course).

Celia

>

>

> Hi Sally,

> For us when we saw Krigsman we were prescribed both Penatsa and

Zelnorm. The

> former for Infalmmation and the latter for Motility. Zelnorm, as

you know

> was withdrawn in the USA at the end of March. I was never convinced

it did much

> for Becks so also withdrwew it. Lets face it I am in enough shit

with the NHS

> so thot this would be a good Brownie point, toeing the party line

and all

> that, well almost!!

> Anyway, since stopping the Zelnorm has gradually started

posturing

> more and is definitely not the best. Weird cos her stools are

better on only

> Pentasa but I reckon maybe the Zelnorm, altho not producing such

good stools

> was deffo pushing things along better.

> We are soon going to see another Uk gastro, in the hope that her

diagnosis

> may be altered and then the Penatsa will be prescribed here.

> Lifes never easy is it?? Just to keep yopu in the loop. Hugs to

Edith.

> Caroline

> xxx

>

> _Re: THANKS SALLY _

> (http://groups.yahoo.com/group/Autism-Biomedical-

Europe/message/28654;_ylc=X3oDMTJzYjVnbG5sBF9TAzk3MzU5NzE1BGdycElkAzEz

Nzc3ODYzBGdycHNwS

>

WQDMTcwNTA2MTEwNARtc2dJZAMyODY1NARzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMTg

wMDM2OTQ

> 5)

> Posted by: " Eva family " _bobsallyeva@... _

> (mailto:bobsallyeva@...?Subject= Re:%20THANKS%20SALLY)

_bobsallyeva1 _

> (http://profiles.yahoo.com/bobsallyeva1)

> Thu May 24, 2007 12:55 pm (PST)

> Hi Caroline, I had you in mind when I posted it. It was the

anaesthetic

> effect on the peristalsis of the gut that made me think of

. It

> brought together several ideas and seemed to make sense. For me

too, it

> made SCD seem more attractive though no less difficult

> xx Sally

>