Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Welcome Dennis, I can relate. My parents once had a child diagnosed with CMT - me. That was 43 years ago - I was 10. No Internet, no support, nothing was known, no way to connect with others. I saw private neurologists who did their best to treat symptoms as they appeared and said " come back in 6 months " . I just grew up living with CMT and managing best I could. Dad pumped alot of self-hypnosis stuff into me, Mom talked to schools to get me out of P.E. and docs gave me Ritalin for my fatigue. In the 1980's I started getting a CMT newsletter and as an adult became more interested in others with CMT and hearing about their lives. There is a Vitamin C USA CMT 1A clinical trial pending - funding. Participants will be pulled from the CMT Database. I'll post the info soon as I get it. I hope you'll find strength and help here. Ask any questions you need. Lots of parents with CMT kids here, too, to guide you. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
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