Comfort and Trust at

[Guest guest]

Hello Everyone,

Just pop in to share a bit the way I feel today... just for now.

I have not being so well in myself recently. At the moment fighting depression,

fatigue and pain...and try to do my best really.

That is the why I did not post much this week.So sorry! I had a word with my

doctor only by phone and decided to wait another week or two and fight more

because I really would not like to start to take anti-depressants again ... My

GP told me that I do take far too much supplement etc...need to be careful

regarding side effects drugs etc...that is true!

She commented about the weather changes, and my mood swings, etc...

and the fact that I have been in Brazil with my whole family and

friends for quite long time has affected me somehow.

Here I am by myself and I do need to re-adapted again , and I have

been doing so far! But also been crying out of no reason, sleeping quite a lot,

and having not much energy inside me.

I did feel this before, many years ago when my mother pass away and

things got very difficult.

It is comfortable to come here at and being able to share with

you all my friends. It make me feel better somehow in myself

because I do know I am not alone here.

Sometimes life is a bit hard but surely they will be a light at the

end of the tunnel.

Hopefully I will see privately an orthopesdist in May 22nd and see

what is wrong with me regarding my hips and walking difficulties

also. If I would have wait to see one orthopedist through the NHS

would take more than 6 months...it is really mad, so I will need to

pay quite a lot to go private, but this time I just can not wait !

Even like that I am doing my daily exercises, pushing myself as much

as I can...

Today, once more after the pool I felt very bad with my legs, maybe

because of the stress at the moment the legs got much weaker,I just

don't know why?

Anyway , It is just an moment I hope it will pass in time...!

I really believe that slowly I will find a solution or a reason why

my hips are so bad right now. That been driving me really unwell and worried

quite a lot!

Thanks Everyone for your time.

Have a Great Day!!!!!!!!

Take Care

Joana in London

[Guest guest]

Joana,

Hang in there!! You are strong enough to handle what comes your way. All of us

with CMT are very strong. When we get up get dressed, brush our teeth, etc.

with pain and no feeling or weakness, we have to be strong. And, thankfully we

have each other. When you feel down, make yourself turn on your computer. We

are right here.

We can all thank Gretchen for the gift of never having to be alone.

Take care Joana. I was told once that if you have the blues to do what is in

front of you. Meaning, if there is a stack of laundry to fold, start with the

washcloth. Do what is in front of you to do. Making tea is always a favorite

of mine.

Take care, and I will keep you in my thoughts,

[Guest guest]

Dear ,

You are SO RIGHT here.

Yes,I am strong and fighting always...I won't give up...

We are not alone here...

I am so VERY grateful always to be here and this is already a great

gift and receiving so much caring from everyone it is wonderful

feeling...feels like a BIG family.

I wish I could see the faces of all of you...lol!!!!!!!

Thanks for your good thoughts !

Hugs

Joana

>

> Joana,

>

> Hang in there!! You are strong enough to handle what comes your

way. All of us with CMT are very strong. When we get up get

dressed, brush our teeth, etc. with pain and no feeling or

weakness, we have to be strong. And, thankfully we have each

other. When you feel down, make yourself turn on your computer. We

are right here.

>

> We can all thank Gretchen for the gift of never having to be alone.

>

> Take care Joana. I was told once that if you have the blues to do

what is in front of you. Meaning, if there is a stack of laundry to

fold, start with the washcloth. Do what is in front of you to do.

Making tea is always a favorite of mine.

>

> Take care, and I will keep you in my thoughts,

>

>

>