Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 I have sure learned a lot from CMT. I sometimes ask myself if I would be as compassionate and understanding as I am now if I didn't have CMT. I know many people that don't have to struggle with a health issues that are plenty compassionate. My husband for example is very compassionate more so then I am. I don't look at CMT as a gift. I look at it as something that happened in my genetics that I need to make the most of. We all have a different way to look at CMT in-order to deal with it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Dear Kay: What wondereful words. Life is an attitude and you definitely look at the glass as being " half full " . I may be somewhat predjudice (since you are my sister) but I appreciate your outlook on lifes challenges. Love you and happy Easter!!!! (also in rainy Oregon) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 I never thought of CMT as " gift " until I reached adulthood and I saw myself as a very independent, strong woman. I feel my childhood CMT experiencess gave me that. Also this " gift " has given me courage to fight any battle, and self-esteem to know I am a special, unique person. Sometimes I reflect/mediate on my involvement in the CMT community and I am amazed to look back at when I began with just 'an idea' and look where we are now. The gift of CMT has motivated me to design the CMT postage stamp, and it keeps motivating me in the writing I do for HNF. For me, the best action I can take as a result of this " gift " is to keep on 'giving'. If I did not have CMT, I might have just turned into a Yuppie Scum as many of my friends did, leading very empty, unfilled lives, with no love, no motivation for good and certainly not 'giving'. They have a hard time understanding how I can be so happy. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Hello Gretchen, My first symptoms started at four years. It was to be 59 years before I was diagnosed by an alert neurologist. Understanding those decades of progressive problems and shortcomings was a mystery until the diagnosis gave a name and expectation to the disorder. I definitely felt empowered when the reasons for the mysteries became known to me. I agree that understanding the problem makes one more sensitive and giving in terms of helping others to live with the disorder. This quite naturally spills over into ones life in other areas. EdM from NH Quote Link to comment Share on other sites More sharing options...
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