Re: Peta/was: Re: Ethan's recovery

[Guest guest]

I don't think we can compare one child to another, the spectrum is so very wide.

My oldest is very HFA and youngest very severe, they do not have the same approach either biomedical or anything else.

I tend to look at it as though it were a race with my oldest already half way to three quarters down the field and the youngest right at the back.

I have found in all these yrs only one thing that works as a positive for both my children and that is enzymes.

It's just my experience but you would have thought as they are brothers who are both on the spectrum there would have been more things that would have worked for both, but not the case here.

Vicky

[Guest guest]

Hello

I dont have colds anymore and i believe its due to 750mg of milk thistle a day. i know that sounds a lot but im an adult and it works for me

aleixs

Thanks I will never give up hope ( though I do have lapses!) and it does seem to take such a long time to undo damage. And because of the one step forward, two steps back that most of us seem to have than I suppose we are always geared up for a regression which if it had never happened in the first place then we would have been easy going, laid back parents.Here we have great progression ( in language and cognition) followed by stimminess, controlling behaviors and irrational and anxious behaviors. Unfortunately I cannot detach myself from Charlie's progress ie he does well and I do well but then when he regresses ( and I can't figure out why) then so do I.How many years did it take you for her to lose her diagnosis? And did she have the MMR? When you said about anything that used to throw her off ie a cold it makes me think well Charlie has a cold at the moment so maybe that's it. I think autism can drive you crazy! Peta -- In Autism-Biomedical-Europe

, " Cochran " wrote:>> Thanks, Peta. She is recovered cognitively. Used to be anything would throw her off, a cold, the wrong supplement, yeast, etc, etc, but it has been 15 months since I have seen anything I would consider problematic. I tested her and then didn't trust myself and sent her out for two more testing sessions and there is no dx. >

> Even the trained eye of the special education teacher couldn't pick anything up as the children who were chosen to be peer modelers are not allowed to have any dx, not even adhd or add. The asd kids in our school district go to school year round so she will participate this summer.> > Her labs look good, even her IgG levels which were a mess in the beginning are now all at normal levels. We are due for more blood work. She is not on any diet, eats normally, looks healthy. She still takes a multivitamin and CLO. But I still see some fragility. She gets a few more colds than other kids and she gets tired a little quicker, needs more sleep, etc. So we're still working on it.

> > What I'm slowly realizing is that regardless of having been on the spectrum she had/has some underlying health problems that would have needed attending to. We no longer get any reaction to chelation so the metals are probably gone but she will still react to antiviral treatment which indicates to me that her immune system is not fully functioning.> > I would never give up hope and while I don't think we have answers for all the kids (yet) I think there are enough answers to give lots of them a chance for pretty good, full life. To me, it takes a long time, at least double or triple the time it took for them to get sick. I wish you and your Charlie the best, Peta.

> > > > Re: Ethan's recovery> > > Wow you have done so well with her. She has lost her diagnosis hasn't > she? But you are obviously still worried that she could regress again > is this because of a gut feeling or tests that show that biomedically > she isn't fixed yet?> Peta

> > > > > >> > > > Hi I have been thinking about Ethan's recovery and I think

> his > > > father > > > > said they recovered him without chelating. > > > > > > <<<Just to be clear here and not mean, recovery means different

> > things > > > to different people. Stan will readily admit that Ethan still > has > > > issues; i.e. word retrieval problems and others. He still > requires > > a > > > diet to maintain gains. He is also in his dad's private school > so > > we > > > have no way of knowing how he would function in any other > venue. He > > > certainly is much improved.

> > > > > > Stan contends that if you address viral issues the metals will > be > > > excreted, great if true, but he has never offered any proof of > > this. > > > He points to a rash as proof, not proof to me or anyone else, > but > > it > > > should be easy to measure this as lots of kids have been on > Valtrex > > > and there should have been UTM tests performed. IMHO, this > > connection > > > between viral treatment and metal excretion is extremely > > speculative.> > > > > > > > > > > > > > > I have watched the video but > > > > I wondered if anyone knew in more depth what they did, I mean > was > > it > > > > mainly valtrex? Did he have the MMR? It would be interesting > to > > know > > > > how many of the recovered kids had the MMR and how many > didn't. > > > > Peta> > > >> > >> >>