yearly Neurologist appointment update

[Guest guest]

Finally, I had my yearly Neuro visit. I weighed with scooter, got

off scooter and stood with crutches, while the assistant tried four

times to weigh it without me in it. She had to reset it to zero,

get in scooter and drive it up, and get off. It would not do. I

have a 22 " seat on it now but last year the scooter weighed 147 lbs.

so they used it and subtracted it out of total. So, while

definitely not accurate, it was 11 lbs. less than last year!!

Yeah...so I guess last month's dieting reduced me 11 lbs...ha!! I

could gain it back though in two days. I'm still on track though.

What's with doctors? I had an appt. with a certain doctor that was

there, but they sent in a different one on the team (India) and an

intern who always wants to know everything and says I haven't looked

at your file as they're typing all the time into the computer and

looking at the screen. I hate their new system. It's not really me

that there concerned with it's typing information into system.

It was funny. I was talking of an old injury where there was a knot

on my leg and they kept looking at my foot. I said LEG, LEG, LEG...!

Every time I go I get so frustrated. I saw the other two doctors on

the team and they barely looked at me and barely spoke. I really

need to change doctors I guess, I take it they don't want to mess

with me as I'm not a child. They do handle my questionnaires

whenever the long-term insurance people go quirky and want

explaination and proof that I'm still disabled. They fill the

paperwork out and mail back promptly. I guess that's why I stay on

a yearly basis.

I did get the test lab order form for my DNA test. I'm to call and

they'll come out. I'm not sure I want to do this and may not. I

will have to pay 20% of cost and it's like $1,000.00 I think, but I

haven't called. It's really not worth $200 as I'm old and don't

have children so why would it really matter. I have Type 2,

variations do not matter as I'm 55 and they said if I were to have

other symptoms they would have shown their ugly heads by now.

Strange, I thought a lot of people were diagnosed in their 60s.

Since I was diagnosed at 8 yrs., early onset clearly means

something, like slower progression - maybe? I don't know. I also

got a company that takes medicare for equipment who may loan out a

power chair.

Ron - thanks for the Invacare M61 info. It looks to fragile for

me. I'm going to try one and all before purchase. Don't have the

money to go ahead anyway so it's something for me to do and keep me

out of the stores!! I'm not wanting a mid wheel drive, only rear

drive.

Onward thru the fog.

Donna B. in Texas