New To The Forum

[Guest guest]

A friend and I started BFL January 1st, and I must admit that I have

been secretly reading all of the posts everyday, without posting

anything myself. I am in my 5th week and so far no extreme changes.

I took a 4 week picture, and noticed some subtle differences, but not

enough to get excited about. Maybe if my 8 week pics look better, I

will get brave enough to post a picture of my progress. Anyway, I

wanted to say hello and thank everyone for all their great posts.

BTW- I have seen some complaints about the Fool Yourself Cookies being

too dry. Maybe this will help, I add a couple of TBLS Light Chocolate

Or Light Vanilla 8 Continent Soy Milk and only put half of the baking

powder in. You have to cook them longer, maybe 5-8 minutes, just keep

an eye on them until they set up. Anyway, they are more the

consistency of a No Bake Cookie as opposed to say a dry biscuit.

Anyway, just thought I would share.

[Guest guest]

Cara,

Welcome.

I would advise immediately finding the nearest doctor who has been

properly trained in early intervention by Miss Mehta and knows how to

diagnose and treat infants, in particular. Have you had an MRI

already to determine whether it was ideopathic? If not, that is the

second step, immediately following the diagnostic x-ray.

If you visit the " database " section on the Infantile Scoliosis

yahoogroup here (look to the right for links) there is a database

where you can see the names of most of the doctors who have been

trained and have a pediatric frame for casting. Those doctors are the

ones who can best advise.

We had a brace on our son at 10 months, because we were told that was

what we " should " do - then another surgeon told us it was NOT

recommended because it presses on the ribs - causing more rib

deformity because infants do not have calcified (hardened) bones and

the external pressure doesn't stabilize the spine the way it does in a

child, but instead bends the ribs inward and allows the spine to

remain curved and/or deteriorate further.

Sandi

[Guest guest]

I believe Sandi has covered most of my thoughts, however, you can go to:

www.infantilescoliosis.org and order a DVD on early treatment. While there you

may want to read my son, Evan's story. He was in his first POP jacket at 3mo

old.

Feel free to email me if I can help you out in any way.

and Evan

" *\\o/* San *\\o/* " wrote:

Cara,

Welcome.

I would advise immediately finding the nearest doctor who has been

properly trained in early intervention by Miss Mehta and knows how to

diagnose and treat infants, in particular. Have you had an MRI

already to determine whether it was ideopathic? If not, that is the

second step, immediately following the diagnostic x-ray.

If you visit the " database " section on the Infantile Scoliosis

yahoogroup here (look to the right for links) there is a database

where you can see the names of most of the doctors who have been

trained and have a pediatric frame for casting. Those doctors are the

ones who can best advise.

We had a brace on our son at 10 months, because we were told that was

what we " should " do - then another surgeon told us it was NOT

recommended because it presses on the ribs - causing more rib

deformity because infants do not have calcified (hardened) bones and

the external pressure doesn't stabilize the spine the way it does in a

child, but instead bends the ribs inward and allows the spine to

remain curved and/or deteriorate further.

Sandi

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

ok no we dont have one but we should buy one so u can see them thats a good

idea, how much r they usually?

Re: New to the forum

Cara,

Welcome.

I would advise immediately finding the nearest doctor who has been

properly trained in early intervention by Miss Mehta and knows how to

diagnose and treat infants, in particular. Have you had an MRI

already to determine whether it was ideopathic? If not, that is the

second step, immediately following the diagnostic x-ray.

If you visit the " database " section on the Infantile Scoliosis

yahoogroup here (look to the right for links) there is a database

where you can see the names of most of the doctors who have been

trained and have a pediatric frame for casting. Those doctors are the

ones who can best advise.

We had a brace on our son at 10 months, because we were told that was

what we " should " do - then another surgeon told us it was NOT

recommended because it presses on the ribs - causing more rib

deformity because infants do not have calcified (hardened) bones and

the external pressure doesn't stabilize the spine the way it does in a

child, but instead bends the ribs inward and allows the spine to

remain curved and/or deteriorate further.

Sandi

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[Guest guest]

Hi Cara,

Welcome! I first want to say that your story of your son brought

tears to my eyes. My son's name is also Max who was also diagnosed

at 4 months with infantile scoliosis with a curve in the low 20's.

He also wore a TLSO brace for 3 months for 20 hours/day. We live in

the mid-west (Wisconsin)with my home town being Chicago. We've had a

long journey with Max's scolisis from getting 4 different opinions

and getting Max casted by 3 different doctors(including Miss Mehta).

Max is now 2 1/2 years old in his 9th cast. After going to

Children's Hospital locally, Marshfield, WI then to Madison,

Milwaukee, and Chicago, Max is getting treatment at Shriner's

Chicago by Dr. Sturm.

We were very hesitant to get Max in a cast as we were repeatedly

told all a cast would do is hold his curve and not correct it. Until

we met Dr. Sturm who was the doctor who wanted to give Max a chance

in a cast. Dr. Sturm traveled to Philadelphia to get trained by Miss

Mehta in Fall of 2006 and then hosted a ETP training by Miss Mehta

at Shriner's Chicago in August, 2007. Dr. Sturm is very proactive in

wanting to help children of all ages with scoliosis especially our

babies! He is a great surgeon. The Shriner's organization is a

blessing. We are very grateful for the treatment Shriners Chicago is

able to provide Max.

From our experience, my biggest regret is not getting Max casted

sooner than 13 months of age. We tried the TLSO brace from a doctor

in Madion, WI, but had we found Dr. Sturm sooner, we should've gone

with the cast.

I strongly urge you to get as many opinions as you need to in order

to make the best choice for your Max.

Please e-mail me if you'd like.

I wish you all the best.

Aekta

>

> HI! My name is Cara and my son Max was diagnosed with infantile

> ideopathic scoliosis last month at the age of 4 months. He just

got his

> TLSO last week and I HATE it. Everytime he eats or sits up he

pukes. He

> was beginning to roll over and sit up and now he just lays on his

back.

> I took his brace to your orthotist and they cut out the belly part

and

> put a black band but the puking has continued.

> I am at a point where I feel like maybe we should get a second

opionion

> on treatment options. Can anyone fill me in on their thoughts. His

> degree of curve is 21 degrees without the brace.

>

> Thanks!

>