Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 > > > > Been on the phone for 30 mins, kept taking it wider - 1:100 why is > nothing > > being done, kids refused treatment - if we had 1:100 blind kids > there would be > > public outrage, research and special schools for them - we just get > ignored > > - you can;t get from 1:10,000 to 1:100 in 10 years with genetics - > something > > is happening to them - why is nobody in Governent and medical > profession > > asking WHY > > > > That as a parent I have to take very opportunity open to me to > raise > > awareness of the issues we face and thats why we wear t-shirts. > > > > Firends having to travel to USA to get treatment for kids the > scream in pain > > every day - ignored by the NHS > > > > That this is the " invisable " disability and people are nasty if > they think > > your child is misbehaving but put the t-shirt on they smile and are > nice to you > > - thats a more positive environment for my kid - when he > understands enough > > to decide for himself - he can choose whether or not to wear the t- > shirt. > > > > They now want to speak to Bob Lowdnes again at TWAS - I said the > much > > reported excuse of not wanting to birng attention to the disability > was NOT the > > reason, given Sam wears the other shirts on school trip on a weekly > basis for 2 > > years now. > > > > These days we don't hide disabled kids in attics - they are part of > the > > community > > > > OMG buzzin now, this was a reseacher - I bet her boss says its too > policital > > to run with the story now > > > > Mad Mandi x > > > Quote Link to comment Share on other sites More sharing options...
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