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Is anyone using any other brand, other than Nordic Naturals for VitaminA supplementation? I'm interested to know as I'd like to try Vit A, butthe Nordic Nat. has rosemary extract which is not ideal for us (becauseof epilepsy).

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Is anyone using any other brand, other than Nordic Naturals for VitaminA supplementation? I'm interested to know as I'd like to try Vit A, butthe Nordic Nat. has rosemary extract which is not ideal for us (becauseof epilepsy).

>>>I use Twinlabs Allergy A & D - its dry - retinol acetate. It depends what you want the vitamin A for really - for example if you were doing the Megson protocol you would need to use CLO to get the Cis form of A.

Apologies also for empty mails, I have a new no ball mouse and its doing things I don;t tell it too and real quick!

Mandi x

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,

I use Carlson's lemon flavoured CLO. I don't know if there is

rosemary in it though--it doesn't say on the bottle that there is.

http://www.carlsonlabs.com/product_detail.phtml?prodid=00205

Anita

>

>

> Hi,

>

> Is anyone using any other brand, other than Nordic Naturals for

Vitamin

> A supplementation? I'm interested to know as I'd like to try Vit

A, but

> the Nordic Nat. has rosemary extract which is not ideal for us

(because

> of epilepsy).

>

> emily

>

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Kirkmans cod liver oil

Comes in flavoured or unflavoured Vit A+D

Also choice of capsules or liquid.

We used plain liquid.

Its the retinol form of Vit A.

Joanne

>

>

> In a message dated 01/05/2007 21:10:40 GMT Standard Time,

> emilyscorer@... writes:

>

> Is anyone using any other brand, other than Nordic Naturals for

Vitamin

> A supplementation? I'm interested to know as I'd like to try Vit

A, but

> the Nordic Nat. has rosemary extract which is not ideal for us

(because

> of epilepsy).

>

>

>

> >>>I use Twinlabs Allergy A & D - its dry - retinol acetate. It

depends what

> you want the vitamin A for really - for example if you were doing

the Megson

> protocol you would need to use CLO to get the Cis form of A.

>

> Apologies also for empty mails, I have a new no ball mouse and its

doing

> things I don;t tell it too and real quick!

>

> Mandi x

>

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Guest guest

>

>

> In a message dated 01/05/2007 21:10:40 GMT Standard Time,

> emilyscorer@... writes:

>

> Is anyone using any other brand, other than Nordic Naturals for

Vitamin

> A supplementation? I'm interested to know as I'd like to try Vit

A, but

> the Nordic Nat. has rosemary extract which is not ideal for us

(because

> of epilepsy).

>

>

>

> >>>I use Twinlabs Allergy A & D - its dry - retinol acetate. It

depends what

> you want the vitamin A for really - for example if you were doing

the Megson

> protocol you would need to use CLO to get the Cis form of A.

>

> Apologies also for empty mails, I have a new no ball mouse and

its doing

> things I don;t tell it too and real quick!

>

> Mandi x

>

Hello

we`re using Nordic nat. but the labels here in Norway doesn`t say

anything about rosemary extract. It has " 100% natural orange oil " , I

don`t know if that indicates the same ingredient? We have a

tremendous effect on our kid with Nordic nat. but of course we don`t

have any problems with epilepsy

Tor Helge

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Thank you to Mandi, Anita, Mona and Joanne, for all the replies.

Have had a look at all of them and I've finally decided to go for the

Kirkman Cod Liver Oil but only after driving myself crazy with

indecision. I find it really hard to decide on the brand of supplement,

when there is so many choices around but suppose this is the case when

starting out until you get to know what works for your child etc.

Mona, the rosemary extract is mentioned in the ingredients on the Nordic

Naturals website (unless the info on their has not been updated).

Now I'm not a coward and not one to give up easily but this " marathon "

is really hard work and I am only at the start but if it was not for

this group and all the inspiration and the fighting power from all of

the parents, I think I could crawl under a chair right now and throw the

towel in (but I WILL NOT!!!).

Did any of you find your kids getting worse in some respects at the

start of biomed? Before biomed Norman used to get the odd runny nose

and he'd recover quite quickly, now he is constantly ill and unable to

get to school. Is there any explanation for this?? Is it anything to

do with having an over active immune system before biomed and now that

we are trying to heal the gut and supplementing, something is happening

(sorry my biomed language and understanding of it, is terrible, but hope

you can make out what I am going on about).

Ok I will go now (not under the chair LOL!), but to try and work out how

to clear the impaction we've just found out he has, and before you all

think I'm such a miserable person.... has there been a full moon

somewhere???!

emily

> >

> >

> > Hi,

> >

> > Is anyone using any other brand, other than Nordic Naturals for

> Vitamin

> > A supplementation? I'm interested to know as I'd like to try Vit

> A, but

> > the Nordic Nat. has rosemary extract which is not ideal for us

> (because

> > of epilepsy).

> >

> > emily

> >

>

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>

> > Did any of you find your kids getting worse in some respects at the

> start of biomed? Before biomed Norman used to get the odd runny nose

> and he'd recover quite quickly, now he is constantly ill and unable to

> get to school. Is there any explanation for this?? Is it anything

to

> do with having an over active immune system before biomed and now that

> we are trying to heal the gut and supplementing, something is

happening

> (sorry my biomed language and understanding of it, is terrible, but

hope

> you can make out what I am going on about).

>

Hi ,

Your explanation sounds reasonable. Some of our kids (and some of us

moms too) are hyperimmune. That's not good. Your Norman may have

switched to being hypoimmune. Finding a middle ground for our kids'

immune systems is difficult work. There is some info on immune systems

in the virus file that may be of some help to you.

But, I do want to say that I wouldn't automatically rule out another

reason for this problem. My very first post on one of these boards was

a question about why my son seemed to be regressing again. I was told

that it was quite normal for kids to go up and down. And it is, but it

also isn't. I believe that my son's gut may have been receiving damage

from his diet that I didn't understand. His adrenals, probably as a

result of this damage, were falling apart. I think he was become more

and more malnourished.

A kid can go up and down, let's say if yeast gets bad, or you

introduce a new supp that he doesn't tolerate, but my son kept losing

hard earned gains over and over. We are still not anywhere near where

we were 3 months after his regression, when we had some wonderful

progress with GFCF. So, after more than two years and many, many

interventions, my son still isn't close to where he was after only one

intervention.

I don't want to scare you (under a chair ;-)) but I also don't want

people to believe what I did, that regression was kind of the norm. It

can be in certain situations for certain limited periods of time. But

if it goes beyond these limited constraints, something foundational

needs addressing. Of course, figuring out what that foundational thing

is can be difficult. I think the best course of action there is to

flood the boards with questions.

I hope this helps, rather than hinders.

Anita

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> > >

> > >

> > > Hi,

> > >

> > > Is anyone using any other brand, other than Nordic Naturals for

> > Vitamin

> > > A supplementation? I'm interested to know as I'd like to try

Vit

> > A, but

> > > the Nordic Nat. has rosemary extract which is not ideal for us

> > (because

> > > of epilepsy).

> > >

> > > emily

> > >

> >

>

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Hi Anita,

Your reply is really appreciated, and I think I understand what you are

saying so I will have to sleuth some more, and now that we have had

results back for his amino acids, urine organic, porphrins (which does

not look good), pterine tests, we are waiting to see Lorene at ATT

sometime soon (once daughter's SATs are out of the way) to get an

understanding and feel of what we need to address. We may then

hopefully have a clearer picture of what is going on.

I definitely don't think he has regressed in terms of skills but more in

terms of health (it's like a switch has been turned on). I am comforted

though that despite him coming down with one thing after another, he is

making slow and steady progress, he is not shuffling his feet when he

walks as he used to before and is in more control of his body, he has

began to look where he is going rather than just looking to the ground.

His awareness and response to people around him is improving (although

he continues to be completely mute and has not made any step to

communicating in any other ways but continues with limited body

gestures). This has to be positive, so shouldn't really moan, I guess.

Thanks again, you have been really helpful.

emily

> >

> > > Did any of you find your kids getting worse in some respects at

the

> > start of biomed? Before biomed Norman used to get the odd runny nose

> > and he'd recover quite quickly, now he is constantly ill and unable

to

> > get to school. Is there any explanation for this?? Is it anything

> to

> > do with having an over active immune system before biomed and now

that

> > we are trying to heal the gut and supplementing, something is

> happening

> > (sorry my biomed language and understanding of it, is terrible, but

> hope

> > you can make out what I am going on about).

> >

>

> Hi ,

>

> Your explanation sounds reasonable. Some of our kids (and some of us

> moms too) are hyperimmune. That's not good. Your Norman may have

> switched to being hypoimmune. Finding a middle ground for our kids'

> immune systems is difficult work. There is some info on immune systems

> in the virus file that may be of some help to you.

>

> But, I do want to say that I wouldn't automatically rule out another

> reason for this problem. My very first post on one of these boards was

> a question about why my son seemed to be regressing again. I was told

> that it was quite normal for kids to go up and down. And it is, but it

> also isn't. I believe that my son's gut may have been receiving damage

> from his diet that I didn't understand. His adrenals, probably as a

> result of this damage, were falling apart. I think he was become more

> and more malnourished.

>

> A kid can go up and down, let's say if yeast gets bad, or you

> introduce a new supp that he doesn't tolerate, but my son kept losing

> hard earned gains over and over. We are still not anywhere near where

> we were 3 months after his regression, when we had some wonderful

> progress with GFCF. So, after more than two years and many, many

> interventions, my son still isn't close to where he was after only one

> intervention.

>

> I don't want to scare you (under a chair ;-)) but I also don't want

> people to believe what I did, that regression was kind of the norm. It

> can be in certain situations for certain limited periods of time. But

> if it goes beyond these limited constraints, something foundational

> needs addressing. Of course, figuring out what that foundational thing

> is can be difficult. I think the best course of action there is to

> flood the boards with questions.

>

> I hope this helps, rather than hinders.

>

> Anita

>

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>

I am comforted

> though that despite him coming down with one thing after another,

he is

> making slow and steady progress, he is not shuffling his feet when

he

> walks as he used to before and is in more control of his body, he

has

> began to look where he is going rather than just looking to the

ground.

> His awareness and response to people around him is improving

All of this is wonderful ! This is the kind of progress that

you want to see. Imagine when you get his immune system working and

Norman feels healthier :-) We have seen very good things here with

Epicor for the immune system (in DH who had no immune system to speak

of) and I know lots of people really like Transfer Factor.

Best wishes,

Anita

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