Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Hi Winnie, How does your daughter feel, does she think she is getting worse too? Over the years we certainly learn all the signs our bodies give us letting us know when we are malfunctioning again. And nobody knows our bodies like we do! Don't let the Doctors placate you. If you truly feel she is getting worse, kick and scream until they listen. The squeaky wheel gets the grease, I always say. The doctors don't see your daughter everyday and have so many other patients they can't possibly remember how she was the " last time " . Having someone go with you to the Dr. helps too. They never like " witnesses " . Sounds terrible but it works. Good Luck to you both. Hope Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 In a message dated 5/16/2006 10:33:34 A.M. Pacific Daylight Time, pooh5003@... writes: I am just scared for her in the world today. Any suggestions. Winnie I wish I had something to help . I am worried for my kids too I think we need to stay informed and do what we can. My kids seems pretty happy despite the CMT. But it is not easy at all. Quote Link to comment Share on other sites More sharing options...
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