What are the chances of a PE Aide having CMT?

[Guest guest]

Good question ,

I have often felt that the " 1 out of 2500 " people having CMT is

rather a low-ball estimate. It is quite possible the Aide does have

it. And at her young age, she may not have experienced it either

fully, or she may indeed have Type X, which, in females, is

sometimes 'mild' or even asymptomatic.

BUT, the Aide had no reason to talk to Adam about CMT and scare him

like that. If she really understood CMT, she would know we are all

different, due to our genetic codes. Perhaps you might want to invite

her to join us at .

However, back to the 'school issue' she seems to have been trying to

practice medicine without a license, and she has no right, nor does

anyone else in the school, to tell your son ANYTHING about CMT, or

disability, et al. Go into that Principal's office, get that Aide in

there too, and explain the Aide's conduct with Adam is unacceptable

and if you have to add it in writing into the IEP and OHA, that " no

one may give my son CMT information at any time " then do it! Also

include the Adaptive PE teacher in that meeting, since I'm assuming

he's supposed to be " managing " the Aide.

~ Gretchen