Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 I want to start Edith on a probiotic. I would prefer powder so that I don't add to her pills (I know I could always open caps). I would like B subtilis in it because DeFelice says it's a good place to start. I was considering BioKult -- hellish expensive -- has anyone used it? The other poss I'm aware of is Primal Defense (as per Mandimart fractionally less expensive). Anyone got any views?xxSally Sally, we use Bio-Kult with good results. I've used it now for a year. It seems to be one of the cheaper ones! Nutricentre have them 3 bottles of 60 for £32.85 with your 25% TA discount that's not too bad at about 14p per capsule. The Klaire Therbiotics works out to be about 43p per capsule with the discount!! I don't think there are any inexpensive probios really. We also use BioCare bioacidophilus which is cheaper than either of those but I just don't see the results from it like I do the Therbiotics and Bio-Kult. HTH, not sure if I've said anything useful...! Darla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 I want to start Edith on a probiotic. I would prefer powder so that I don't add to her pills (I know I could always open caps). I would like B subtilis in it because DeFelice says it's a good place to start. I was considering BioKult -- hellish expensive -- has anyone used it? The other poss I'm aware of is Primal Defense (as per Mandimart fractionally less expensive). Anyone got any views? >>If you ring the biokult people you can get 10% discount. A pot of primal defence last ages. Can't say I have heard of this one is talking about.......... They are both good stuff, good probiotics don't come cheap Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 It's a bacteria which is in both of them. You know what is like -- it's the sort of thing they give pigs. Actually she says it's a sort of sewage digester -- it's transient so she says start with it and it may clean the grot out of your insides. Then move onto something more pleasant sounding to replace the grot with good bugs. That's her theory as I grasped it complete with mental picture of pig sewage. >>Chap at DAN pointed out all probiotiocs are transient. Not sure what is special about this one. Biokult and PD are SBO's (Soil Based Organisms) so more transient than others and good choice IMHO. BioKult - its great stuff IMHO and tastes better than PD but I use both of them with Sacc B and CP1 and occasional Culturelle Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Hi Sally We have been using BioKult for nearly 3 years with good results. We did about 9 months only using BioKult and then added in others such as CP1, and Culterelle. We had to start quite low at only half a capsule every other day and then gradually build up. I think others may say that they started even lower than this. Low and slow is the answer with probiotics. The maker of BioKult will happily talk to you on the phone if you want advice. He is the husband of Natasha McBride who wrote Gut and Psychology Syndrome. I find BioKult to be one of the least expensive probiotics and give it to my NT son as well. Good luck with what you chose. Kay. probiotic I want to start Edith on a probiotic. I would prefer powder so that I don't add to her pills (I know I could always open caps). I would like B subtilis in it because DeFelice says it's a good place to start. I was considering BioKult -- hellish expensive -- has anyone used it? The other poss I'm aware of is Primal Defense (as per Mandimart fractionally less expensive). Anyone got any views?xxSally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Yes it's very helpful, thanks. It's not really cheap if it doesn't work is it? What sort of results do you see from BK and Klaire? Do you rotate them? The Biokult site seems to say that its £32 for one bottle. Maybe I've got that wrong or the Nutricentre has got a very good deal. They sound like the ones to me Sally rexel45@... wrote: > > In a message dated 26/04/2007 14:10:41 GMT Standard Time, bobsallyeva@ > ntlworld. com writes: > > I want to start Edith on a probiotic. I would prefer powder so that I > don't add to her pills (I know I could always open caps). I would > like B > subtilis in it because DeFelice says it's a good place to > start. I > was considering BioKult -- hellish expensive -- has anyone used > it? The > other poss I'm aware of is Primal Defense (as per Mandimart > fractionally > less expensive). Anyone got any views? > xxSally > > > Sally, we use Bio-Kult with good results. I've used it now for a > year. It seems to be one of the cheaper ones! Nutricentre have them > 3 bottles of 60 for £32.85 with your 25% TA discount that's not too > bad at about 14p per capsule. The Klaire Therbiotics works out to be > about 43p per capsule with the discount!! I don't think there are any > inexpensive probios really. We also use BioCare bioacidophilus which > is cheaper than either of those but I just don't see the results from > it like I do the Therbiotics and Bio-Kult. > > HTH, not sure if I've said anything useful...! > Darla > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.463 / Virus Database: 269.6.1/776 - Release Date: 25/04/2007 12:19 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 It's a bacteria which is in both of them. You know what is like -- it's the sort of thing they give pigs. Actually she says it's a sort of sewage digester -- it's transient so she says start with it and it may clean the grot out of your insides. Then move onto something more pleasant sounding to replace the grot with good bugs. That's her theory as I grasped it complete with mental picture of pig sewage. Sally Mum231ASD@... wrote: > > In a message dated 26/04/2007 14:10:40 GMT Standard Time, bobsallyeva@ > ntlworld. com writes: > > I want to start Edith on a probiotic. I would prefer powder so that I > don't add to her pills (I know I could always open caps). I would > like B > subtilis in it because DeFelice says it's a good place to > start. I > was considering BioKult -- hellish expensive -- has anyone used > it? The > other poss I'm aware of is Primal Defense (as per Mandimart > fractionally > less expensive). Anyone got any views? > > >>If you ring the biokult people you can get 10% discount. > > A pot of primal defence last ages. Can't say I have heard of this one > is talking about....... ... > > They are both good stuff, good probiotics don't come cheap > > Mandi x > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.463 / Virus Database: 269.6.1/776 - Release Date: 25/04/2007 12:19 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 that's really helpful, thank you Sally Kay & Steve wrote: > > Hi Sally > > We have been using BioKult for nearly 3 years with good results. We > did about 9 months only using BioKult and then added in others such as > CP1, and Culterelle. > We had to start quite low at only half a capsule every other day and > then gradually build up. I think others may say that they started even > lower than this. Low and slow is the answer with probiotics. The maker > of BioKult will happily talk to you on the phone if you want advice. > He is the husband of Natasha McBride who wrote Gut and > Psychology Syndrome. > I find BioKult to be one of the least expensive probiotics and give it > to my NT son as well. > > Good luck with what you chose. > Kay. > > * [Autism-Biomedical- Europe] probiotic > > I want to start Edith on a probiotic. I would prefer powder so that I > don't add to her pills (I know I could always open caps). I would > like B > subtilis in it because DeFelice says it's a good place to > start. I > was considering BioKult -- hellish expensive -- has anyone used > it? The > other poss I'm aware of is Primal Defense (as per Mandimart > fractionally > less expensive). Anyone got any views? > xxSally > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.463 / Virus Database: 269.6.1/776 - Release Date: 25/04/2007 12:19 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Is the primal defense supposed to be hard, like you have to scrape it up with a scoop to get some out?Mine is, and I'm wondering if it's still good. >>No its supposed to be loose powder but they are very hardy bugs so I expect they can stand some scraping! Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 > > > >>If you ring the biokult people you can get 10% discount. > > A pot of primal defence last ages. Can't say I have heard of this one > is talking about.......... > > They are both good stuff, good probiotics don't come cheap > > Mandi x Mandi, Is the primal defense supposed to be hard, like you have to scrape it up with a scoop to get some out? Mine is, and I'm wondering if it's still good. Anita > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 ARRRGHHH! That's what I was afraid of. I just wrote the Garden of Life people to ask them if they think it would still be good. Fingers crossed for the hardy bugs :-) Anita > > > In a message dated 27/04/2007 01:13:56 GMT Standard Time, > mysuperteach@... writes: > > Is the primal defense supposed to be hard, like you have to scrape it > up with a scoop to get some out? > > Mine is, and I'm wondering if it's still good. > > > > >>No its supposed to be loose powder but they are very hardy bugs so I > expect they can stand some scraping! > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 If I remember, I ordered my first bottle from the biokult site and it was far more expensive than nutricentre. Go figure. I do rotate them as seems to get a bit irritable if I don't. He can tolerate about 3 days on one and then I give another. I also noticed that his stools would *deteriorate* after he'd been on the same one for a while so rotating them keeps his stools in better *shape* (for lack of a better descriptor!) The probios made a huge difference in his stools - they sorted out a lifelong (only 2 years old though) problem with horrible acrid loose stools. I can only assume that they also improved his nutritional state as the quality of his stools was so vastly improved. They went from yellow to brown in a week or so. He brightened up and was just generally a happier chappie. I have to watch it though as when I give him too high probios they seem to make him unhappy - it's a constant balancing act. I can give him a whole Bio-Kult but a whole Therbiotics gives him constipation unless his stools are already loose to start with. Good luck! Darla Yes it's very helpful, thanks. It's not really cheap if it doesn't work is it? What sort of results do you see from BK and Klaire? Do you rotate them? The Biokult site seems to say that its £32 for one bottle. Maybe I've got that wrong or the Nutricentre has got a very good deal. They sound like the ones to meSally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 If I remember, I ordered my first bottle from the biokult site and it was far more expensive than nutricentre. Go figure. >>Bioklut direct is only in 120 capsules, NC do 60 vcaps in a pot and the TA discount isn't 25% at NC for that product is 15% - confusing I know Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 Oh it's interesting that he says they are all transient. I thought some were supposed not to be. There's a list somewhere of transient/colonising with the implication that the colonising ones replenish your gut. I thought that was the idea of using them or eating yoghurt with antibiotics. However the idea that you need to keep giving them argues the other way. I think B Subtilis is used in animal husbandry to keep the animals insides clean so that there is a lot of research about it and it's easily available so cheap. I will start with Primal Defense because I want to use a powder. At the moment I feel I'm constantly giving her handfuls of pills. She's being very good about it but even so. xxSally Mum231ASD@... wrote: > > In a message dated 26/04/2007 20:28:31 GMT Standard Time, bobsallyeva@ > ntlworld. com writes: > > It's a bacteria which is in both of them. You know what is > like -- > it's the sort of thing they give pigs. Actually she says it's a > sort of > sewage digester -- it's transient so she says start with it and it > may > clean the grot out of your insides. Then move onto something more > pleasant sounding to replace the grot with good bugs. That's her > theory > as I grasped it complete with mental picture of pig sewage. > > >>Chap at DAN pointed out all probiotiocs are transient. > > Not sure what is special about this one. Biokult and PD are SBO's > (Soil Based Organisms) so more transient than others and good choice > IMHO. > > BioKult - its great stuff IMHO and tastes better than PD but I use > both of them with Sacc B and CP1 and occasional Culturelle > > Mandi x > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.463 / Virus Database: 269.6.1/776 - Release Date: 25/04/2007 12:19 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 What's it called? Is is prescription or OTC? > > > > > >> > > > > > >> > > > > > >> msmith1928, > > > > > >> > > > > > >> I am afriad that I don't have much to offer you. The GI doc > > > > couldn't find anything to blame for my bloating issues so he ended up > > > > giving me an antibiotic that flushed out the GI tract. I am taking > > > > asodopholis and so far so good (except for today of course). The idea > > > > was that my flora was out of wack and I could have had bad pockets in > > > > places with imbalance. Sugar would definitely set me off and > > processed > > > > foods. Going to a potluck was total russian rollet. My PA issues have > > > > just shown up (at least the low K and high BP) in November last year > > > > and I have been having the digestion issues for 15+ years. > > > > > >> > > > > > >> I have actually had a bad day of bloating for the first time in > > > > months. I am so hoping it isn't from the eplerenone. I have only been > > > > on it for a couple of days. That would really suck. > > > > > >> > > > > > >> Assuming you have been tested for celiec? > > > > > >> > > > > > >> I am so sorry that you have been going through the disgestive > > > > problems. I sympathize. And I am double sorry to hear that you are > > > > having to cut out so much good stuff from your diet. I hope that some > > > > day soon you can put all of that stuff back in your diet and days of > > > > bloating are a thing of the past for you. > > > > > >> > > > > > >> Hoping for a clear cut diagnosis and treatment on your PA! > > > > > >> > > > > > >> Cheers, > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> Hi , > > > > > >> > > > > > >> First off - congratulations! > > > > > >> > > > > > >> I just read your story and as usual, noticed some > > similarities to > > > > my own. The main thing I wanted to compare notes on was digestive > > > > issues, if you don't mind. > > > > > >> > > > > > >> I've had digestive problems my whole life, and when I was around > > > > 30 I was diagnosed with fructose intolerance, which means I lack the > > > > enzyme to break down fructose in my liver. Symptoms are vomiting, > > > > diarrhea, and bloating (and eventually, enlarged liver, jaundice, and > > > > out-of-whack blood panels, if it gets really bad). Treatment is to > > > > avoid fructose (found in almost all fruits as well as many fruits > > that > > > > we commonly call " vegetables " ) and fructans (a type of carbohydrate > > > > found in many grains). I've also been lactose intolerant since birth. > > > > > >> > > > > > >> Cutting out grains, fruits/many veg, and all lactose worked > > GREAT > > > > and kept my symptoms away for several years, until I presented with > > > > high BP. Gradually I started getting a milder version of the above > > > > symptoms (mainly, bloating and feeling uncomfortably full). This has > > > > gotten worse as the PA has gotten worse. > > > > > >> > > > > > >> Now that I have a diagnosis, my doctors think once the PA is > > > > treated the digestive issues will go away again. I'm still waiting > > for > > > > a decision on the course of treatment (and hoping adrenalectomy is an > > > > option). > > > > > >> > > > > > >> I'm curious to know if your symptoms are at all similar, and if > > > > so, if they go away while you're on eplerenone. For me I know the > > > > lactose/fructose problems are something that won't go away, but I > > sure > > > > hope the milder problems do! > > > > > >> > > > > > >> Two of my doctors have differing theories about why the problems > > > > are happening in conjunction with PA. One thinks it's when my K > > drops, > > > > it impacts my muscles (including smooth muscle of the > > gastrointestinal > > > > tract). The other thinks it's a response to salt. I'd sure love to > > > > resolve it, whatever the cause > > > > > >> > > > > > >> Thanks in advance for any input you are willing to offer! > > > > > >> > > > > > >> -msmith1928 > > > > > >> 45, female, 5'3 " , 120 lbs, 1cm left adrenal nodule, supine > > > > aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking > > > > supplements); 25mg spiro caused gynecomastia; no HTN meds; current > > > > meds are 20MEQ K 3x/day, singulair 10mg, norethindrone .35mg, > > > > cyclobenzaprine 5-10mg when needed, fexofenadine 180mg when needed; > > > > low sodium, fructose- and grain-free diet; known drug allergies > > > > include PCN, sulfa, tetracycline > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 The doctor gave me 4 boxes (30 day supply) of samples so I am not sure if it is prescription or not. The box says Align Probiotic Suppllement for digestive care. Kellie Sent from my Samsung Epicâ„¢ 4G msmith_1928 wrote: >What's it called? Is is prescription or OTC? > > >> > > > > >> >> > > > > >> >> > > > > >> msmith1928, >> > > > > >> >> > > > > >> I am afriad that I don't have much to offer you. The GI doc >> > > > couldn't find anything to blame for my bloating issues so he ended up >> > > > giving me an antibiotic that flushed out the GI tract. I am taking >> > > > asodopholis and so far so good (except for today of course). The idea >> > > > was that my flora was out of wack and I could have had bad pockets in >> > > > places with imbalance. Sugar would definitely set me off and >> > processed >> > > > foods. Going to a potluck was total russian rollet. My PA issues have >> > > > just shown up (at least the low K and high BP) in November last year >> > > > and I have been having the digestion issues for 15+ years. >> > > > > >> >> > > > > >> I have actually had a bad day of bloating for the first time in >> > > > months. I am so hoping it isn't from the eplerenone. I have only been >> > > > on it for a couple of days. That would really suck. >> > > > > >> >> > > > > >> Assuming you have been tested for celiec? >> > > > > >> >> > > > > >> I am so sorry that you have been going through the disgestive >> > > > problems. I sympathize. And I am double sorry to hear that you are >> > > > having to cut out so much good stuff from your diet. I hope that some >> > > > day soon you can put all of that stuff back in your diet and days of >> > > > bloating are a thing of the past for you. >> > > > > >> >> > > > > >> Hoping for a clear cut diagnosis and treatment on your PA! >> > > > > >> >> > > > > >> Cheers, >> > > > > >> >> > > > > >> >> > > > > >> >> > > > > >> >> > > > > >> >> > > > > >> Hi , >> > > > > >> >> > > > > >> First off - congratulations! >> > > > > >> >> > > > > >> I just read your story and as usual, noticed some >> > similarities to >> > > > my own. The main thing I wanted to compare notes on was digestive >> > > > issues, if you don't mind. >> > > > > >> >> > > > > >> I've had digestive problems my whole life, and when I was around >> > > > 30 I was diagnosed with fructose intolerance, which means I lack the >> > > > enzyme to break down fructose in my liver. Symptoms are vomiting, >> > > > diarrhea, and bloating (and eventually, enlarged liver, jaundice, and >> > > > out-of-whack blood panels, if it gets really bad). Treatment is to >> > > > avoid fructose (found in almost all fruits as well as many fruits >> > that >> > > > we commonly call " vegetables " ) and fructans (a type of carbohydrate >> > > > found in many grains). I've also been lactose intolerant since birth. >> > > > > >> >> > > > > >> Cutting out grains, fruits/many veg, and all lactose worked >> > GREAT >> > > > and kept my symptoms away for several years, until I presented with >> > > > high BP. Gradually I started getting a milder version of the above >> > > > symptoms (mainly, bloating and feeling uncomfortably full). This has >> > > > gotten worse as the PA has gotten worse. >> > > > > >> >> > > > > >> Now that I have a diagnosis, my doctors think once the PA is >> > > > treated the digestive issues will go away again. I'm still waiting >> > for >> > > > a decision on the course of treatment (and hoping adrenalectomy is an >> > > > option). >> > > > > >> >> > > > > >> I'm curious to know if your symptoms are at all similar, and if >> > > > so, if they go away while you're on eplerenone. For me I know the >> > > > lactose/fructose problems are something that won't go away, but I >> > sure >> > > > hope the milder problems do! >> > > > > >> >> > > > > >> Two of my doctors have differing theories about why the problems >> > > > are happening in conjunction with PA. One thinks it's when my K >> > drops, >> > > > it impacts my muscles (including smooth muscle of the >> > gastrointestinal >> > > > tract). The other thinks it's a response to salt. I'd sure love to >> > > > resolve it, whatever the cause >> > > > > >> >> > > > > >> Thanks in advance for any input you are willing to offer! >> > > > > >> >> > > > > >> -msmith1928 >> > > > > >> 45, female, 5'3 " , 120 lbs, 1cm left adrenal nodule, supine >> > > > aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking >> > > > supplements); 25mg spiro caused gynecomastia; no HTN meds; current >> > > > meds are 20MEQ K 3x/day, singulair 10mg, norethindrone .35mg, >> > > > cyclobenzaprine 5-10mg when needed, fexofenadine 180mg when needed; >> > > > low sodium, fructose- and grain-free diet; known drug allergies >> > > > include PCN, sulfa, tetracycline >> > > > > >> >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 Or is it the DASH?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension The doctor gave me 4 boxes (30 day supply) of samples so I am not sure if it is prescription or not. The box says Align Probiotic Suppllement for digestive care. Kellie Sent from my Samsung Epicâ„¢ 4G msmith_1928 wrote: >What's it called? Is is prescription or OTC? > > >> > > > > >> >> > > > > >> >> > > > > >> msmith1928, >> > > > > >> >> > > > > >> I am afriad that I don't have much to offer you. The GI doc >> > > > couldn't find anything to blame for my bloating issues so he ended up >> > > > giving me an antibiotic that flushed out the GI tract. I am taking >> > > > asodopholis and so far so good (except for today of course). The idea >> > > > was that my flora was out of wack and I could have had bad pockets in >> > > > places with imbalance. Sugar would definitely set me off and >> > processed >> > > > foods. Going to a potluck was total russian rollet. My PA issues have >> > > > just shown up (at least the low K and high BP) in November last year >> > > > and I have been having the digestion issues for 15+ years. >> > > > > >> >> > > > > >> I have actually had a bad day of bloating for the first time in >> > > > months. I am so hoping it isn't from the eplerenone. I have only been >> > > > on it for a couple of days. That would really suck. >> > > > > >> >> > > > > >> Assuming you have been tested for celiec? >> > > > > >> >> > > > > >> I am so sorry that you have been going through the disgestive >> > > > problems. I sympathize. And I am double sorry to hear that you are >> > > > having to cut out so much good stuff from your diet. I hope that some >> > > > day soon you can put all of that stuff back in your diet and days of >> > > > bloating are a thing of the past for you. >> > > > > >> >> > > > > >> Hoping for a clear cut diagnosis and treatment on your PA! >> > > > > >> >> > > > > >> Cheers, >> > > > > >> >> > > > > >> >> > > > > >> >> > > > > >> >> > > > > >> >> > > > > >> Hi , >> > > > > >> >> > > > > >> First off - congratulations! >> > > > > >> >> > > > > >> I just read your story and as usual, noticed some >> > similarities to >> > > > my own. The main thing I wanted to compare notes on was digestive >> > > > issues, if you don't mind. >> > > > > >> >> > > > > >> I've had digestive problems my whole life, and when I was around >> > > > 30 I was diagnosed with fructose intolerance, which means I lack the >> > > > enzyme to break down fructose in my liver. Symptoms are vomiting, >> > > > diarrhea, and bloating (and eventually, enlarged liver, jaundice, and >> > > > out-of-whack blood panels, if it gets really bad). Treatment is to >> > > > avoid fructose (found in almost all fruits as well as many fruits >> > that >> > > > we commonly call "vegetables") and fructans (a type of carbohydrate >> > > > found in many grains). I've also been lactose intolerant since birth. >> > > > > >> >> > > > > >> Cutting out grains, fruits/many veg, and all lactose worked >> > GREAT >> > > > and kept my symptoms away for several years, until I presented with >> > > > high BP. Gradually I started getting a milder version of the above >> > > > symptoms (mainly, bloating and feeling uncomfortably full). This has >> > > > gotten worse as the PA has gotten worse. >> > > > > >> >> > > > > >> Now that I have a diagnosis, my doctors think once the PA is >> > > > treated the digestive issues will go away again. I'm still waiting >> > for >> > > > a decision on the course of treatment (and hoping adrenalectomy is an >> > > > o Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 I thought about that so since I think I have always been lactose intolerant I first cut out dairy then fruit then veggies. It actually got worse. The final week before going to the doc I was down to oatmeal chicken and soup. Is that probiotic pill something I could take long term if needed? Kellie Sent from my Samsung Epicâ„¢ 4G Clarence Grim wrote: >Or is it the DASH? > >Tiped sad Send form mi >iPhone ;-) > >May your pressure be low! > >CE Grim MD >Specializing in Difficult >Hypertension > > > >> >> The doctor gave me 4 boxes (30 day supply) of samples so I am not sure if it is prescription or not. The box says Align Probiotic Suppllement for digestive care. >> >> Kellie Sent from my Samsung Epicâ„¢ 4G >> >> msmith_1928 wrote: >> >> >What's it called? Is is prescription or OTC? >> > >> > >> >> > > > > >> >> >> > > > > >> >> >> > > > > >> msmith1928, >> >> > > > > >> >> >> > > > > >> I am afriad that I don't have much to offer you. The GI doc >> >> > > > couldn't find anything to blame for my bloating issues so he ended up >> >> > > > giving me an antibiotic that flushed out the GI tract. I am taking >> >> > > > asodopholis and so far so good (except for today of course). The idea >> >> > > > was that my flora was out of wack and I could have had bad pockets in >> >> > > > places with imbalance. Sugar would definitely set me off and >> >> > processed >> >> > > > foods. Going to a potluck was total russian rollet. My PA issues have >> >> > > > just shown up (at least the low K and high BP) in November last year >> >> > > > and I have been having the digestion issues for 15+ years. >> >> > > > > >> >> >> > > > > >> I have actually had a bad day of bloating for the first time in >> >> > > > months. I am so hoping it isn't from the eplerenone. I have only been >> >> > > > on it for a couple of days. That would really suck. >> >> > > > > >> >> >> > > > > >> Assuming you have been tested for celiec? >> >> > > > > >> >> >> > > > > >> I am so sorry that you have been going through the disgestive >> >> > > > problems. I sympathize. And I am double sorry to hear that you are >> >> > > > having to cut out so much good stuff from your diet. I hope that some >> >> > > > day soon you can put all of that stuff back in your diet and days of >> >> > > > bloating are a thing of the past for you. >> >> > > > > >> >> >> > > > > >> Hoping for a clear cut diagnosis and treatment on your PA! >> >> > > > > >> >> >> > > > > >> Cheers, >> >> > > > > >> >> >> > > > > >> >> >> > > > > >> >> >> > > > > >> >> >> > > > > >> >> >> > > > > >> Hi , >> >> > > > > >> >> >> > > > > >> First off - congratulations! >> >> > > > > >> >> >> > > > > >> I just read your story and as usual, noticed some >> >> > similarities to >> >> > > > my own. The main thing I wanted to compare notes on was digestive >> >> > > > issues, if you don't mind. >> >> > > > > >> >> >> > > > > >> I've had digestive problems my whole life, and when I was around >> >> > > > 30 I was diagnosed with fructose intolerance, which means I lack the >> >> > > > enzyme to break down fructose in my liver. Symptoms are vomiting, >> >> > > > diarrhea, and bloating (and eventually, enlarged liver, jaundice, and >> >> > > > out-of-whack blood panels, if it gets really bad). Treatment is to >> >> > > > avoid fructose (found in almost all fruits as well as many fruits >> >> > that >> >> > > > we commonly call " vegetables " ) and fructans (a type of carbohydrate >> >> > > > found in many grains). I've also been lactose intolerant since birth. >> >> > > > > >> >> >> > > > > >> Cutting out grains, fruits/many veg, and all lactose worked >> >> > GREAT >> >> > > > and kept my symptoms away for several years, until I presented with >> >> > > > high BP. Gradually I started getting a milder version of the above >> >> > > > symptoms (mainly, bloating and feeling uncomfortably full). This has >> >> > > > gotten worse as the PA has gotten worse. >> >> > > > > >> >> >> > > > > >> Now that I have a diagnosis, my doctors think once the PA is >> >> > > > treated the digestive issues will go away again. I'm still waiting >> >> > for >> >> > > > a decision on the course of treatment (and hoping adrenalectomy is an >> >> > > > o Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 Ask for the data that it makes people with PA live healthier and longer. But if you need a way to spend some money I can help. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension I thought about that so since I think I have always been lactose intolerant I first cut out dairy then fruit then veggies. It actually got worse. The final week before going to the doc I was down to oatmeal chicken and soup. Is that probiotic pill something I could take long term if needed? Kellie Sent from my Samsung Epicâ„¢ 4G Clarence Grim wrote: >Or is it the DASH? > >Tiped sad Send form mi >iPhone ;-) > >May your pressure be low! > >CE Grim MD >Specializing in Difficult >Hypertension > > > >> >> The doctor gave me 4 boxes (30 day supply) of samples so I am not sure if it is prescription or not. The box says Align Probiotic Suppllement for digestive care. >> >> Kellie Sent from my Samsung Epicâ„¢ 4G >> >> msmith_1928 wrote: >> >> >What's it called? Is is prescription or OTC? >> > >> > >> >> > > > > >> >> >> > > > > >> >> >> > > > > >> msmith1928, >> >> > > > > >> >> >> > > > > >> I am afriad that I don't have much to offer you. The GI doc >> >> > > > couldn't find anything to blame for my bloating issues so he ended up >> >> > > > giving me an antibiotic that flushed out the GI tract. I am taking >> >> > > > asodopholis and so far so good (except for today of course). The idea >> >> > > > was that my flora was out of wack and I could have had bad pockets in >> >> > > > places with imbalance. Sugar would definitely set me off and >> >> > processed >> >> > > > foods. Going to a potluck was total russian rollet. My PA issues have >> >> > > > just shown up (at least the low K and high BP) in November last year >> >> > > > and I have been having the digestion issues for 15+ years. >> >> > > > > >> >> >> > > > > >> I have actually had a bad day of bloating for the first time in >> >> > > > months. I am so hoping it isn't from the eplerenone. I have only been >> >> > > > on it for a couple of days. That would really suck. >> >> > > > > >> >> >> > > > > >> Assuming you have been tested for celiec? >> >> > > > > >> >> >> > > > > >> I am so sorry that you have been going through the disgestive >> >> > > > problems. I sympathize. And I am double sorry to hear that you are >> >> > > > having to cut out so much good stuff from your diet. I hope that some >> >> > > > day soon you can put all of that stuff back in your diet and days of >> >> > > > bloating are a thing of the past for you. >> >> > > > > >> >> >> > > > > >> Hoping for a clear cut diagnosis and treatment on your PA! >> >> > > > > >> >> >> > > > > >> Cheers, >> >> > > > > >> >> >> > > > > >> >> >> > > > > >> >> >> > > > > >> >> >> > > > > >> >> >> > > > > >> Hi , >> >> > > > > >> >> >> > > > > >> First off - congratulations! >> >> > > > > >> >> >> > > > > >> I just read your story and as usual, noticed some >> >> > similarities to >> >> > > > my own. The main thing I wanted to compare notes on was digestive >> >> > > > issues, if you don't mind. >> >> > > > > >> >> >> > > > > >> I've had digestive problems my whole life, and when I was around >> >> > > > 30 I was diagnosed with fructose intolerance, which means I lack the >> >> > > > enzyme to break down fructose in my liver. Symptoms are vomiting, >> >> > > > diarrhea, and bloating (and eventually, enlarged liver, jaundice, and >> >> > > > out-of-whack blood panels, if it gets really bad). Treatment is to >> >> > > > avoid fructose (found in almost all fruits as well as many fruits >> >> > that >> >> > > > we commonly call "vegetables") and fructans (a type of carbohydrate >> >> > > > found in many grains). I've also been lactose intolerant since birth. >> >> > > > > >> >> >> > > > > >> Cutting out grains, fruits/many veg, and all lactose worked >> >> > GREAT >> >> > > > and kept my symptoms away for several years, until I presented with >> >> > > > high BP. Gradually I started getting a milder version of the above >> >> > > > symptoms (mainly, bloating and feeling uncomfortably full). This has >> >> > > > gotten worse as the PA has gotten worse. >> >> > > > > >> >> >> > > > > >> Now that I have a diagnosis, my doctors think once the PA is >> >> > > > treated the digestive issues will go away again. I'm still waiting >> >> > for >> >> > > > a decision on the course of treatment (and hoping adrenalectomy is an >> >> > > > o Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 Were already in contract together unless you were talking about something else. Kellie Sent from my Samsung Epicâ„¢ 4G Clarence Grim wrote: >Ask for the data that it makes people with PA live healthier and longer. But if you need a way to spend some money I can help. > >Tiped sad Send form mi >iPhone ;-) > >May your pressure be low! > >CE Grim MD >Specializing in Difficult >Hypertension > > > >> I thought about that so since I think I have always been lactose intolerant I first cut out dairy then fruit then veggies. It actually got worse. The final week before going to the doc I was down to oatmeal chicken and soup. Is that probiotic pill something I could take long term if needed? >> >> Kellie Sent from my Samsung Epicâ„¢ 4G >> >> Clarence Grim wrote: >> >> >Or is it the DASH? >> > >> >Tiped sad Send form mi >> >iPhone ;-) >> > >> >May your pressure be low! >> > >> >CE Grim MD >> >Specializing in Difficult >> >Hypertension >> > >> > >> > >> >> >> >> The doctor gave me 4 boxes (30 day supply) of samples so I am not sure if it is prescription or not. The box says Align Probiotic Suppllement for digestive care. >> >> >> >> Kellie Sent from my Samsung Epicâ„¢ 4G >> >> >> >> msmith_1928 wrote: >> >> >> >> >What's it called? Is is prescription or OTC? >> >> > >> >> > >> >> >> > > > > >> >> >> >> > > > > >> >> >> >> > > > > >> msmith1928, >> >> >> > > > > >> >> >> >> > > > > >> I am afriad that I don't have much to offer you. The GI doc >> >> >> > > > couldn't find anything to blame for my bloating issues so he ended up >> >> >> > > > giving me an antibiotic that flushed out the GI tract. I am taking >> >> >> > > > asodopholis and so far so good (except for today of course). The idea >> >> >> > > > was that my flora was out of wack and I could have had bad pockets in >> >> >> > > > places with imbalance. Sugar would definitely set me off and >> >> >> > processed >> >> >> > > > foods. Going to a potluck was total russian rollet. My PA issues have >> >> >> > > > just shown up (at least the low K and high BP) in November last year >> >> >> > > > and I have been having the digestion issues for 15+ years. >> >> >> > > > > >> >> >> >> > > > > >> I have actually had a bad day of bloating for the first time in >> >> >> > > > months. I am so hoping it isn't from the eplerenone. I have only been >> >> >> > > > on it for a couple of days. That would really suck. >> >> >> > > > > >> >> >> >> > > > > >> Assuming you have been tested for celiec? >> >> >> > > > > >> >> >> >> > > > > >> I am so sorry that you have been going through the disgestive >> >> >> > > > problems. I sympathize. And I am double sorry to hear that you are >> >> >> > > > having to cut out so much good stuff from your diet. I hope that some >> >> >> > > > day soon you can put all of that stuff back in your diet and days of >> >> >> > > > bloating are a thing of the past for you. >> >> >> > > > > >> >> >> >> > > > > >> Hoping for a clear cut diagnosis and treatment on your PA! >> >> >> > > > > >> >> >> >> > > > > >> Cheers, >> >> >> > > > > >> >> >> >> > > > > >> >> >> >> > > > > >> >> >> >> > > > > >> >> >> >> > > > > >> >> >> >> > > > > >> Hi , >> >> >> > > > > >> >> >> >> > > > > >> First off - congratulations! >> >> >> > > > > >> >> >> >> > > > > >> I just read your story and as usual, noticed some >> >> >> > similarities to >> >> >> > > > my own. The main thing I wanted to compare notes on was digestive >> >> >> > > > issues, if you don't mind. >> >> >> > > > > >> >> >> >> > > > > >> I've had digestive problems my whole life, and when I was around >> >> >> > > > 30 I was diagnosed with fructose intolerance, which means I lack the >> >> >> > > > enzyme to break down fructose in my liver. Symptoms are vomiting, >> >> >> > > > diarrhea, and bloating (and eventually, enlarged liver, jaundice, and >> >> >> > > > out-of-whack blood panels, if it gets really bad). Treatment is to >> >> >> > > > avoid fructose (found in almost all fruits as well as many fruits >> >> >> > that >> >> >> > > > we commonly call " vegetables " ) and fructans (a type of carbohydrate >> >> >> > > > found in many grains). I've also been lactose intolerant since birth. >> >> >> > > > > >> >> >> >> > > > > >> Cutting out grains, fruits/many veg, and all lactose worked >> >> >> > GREAT >> >> >> > > > and kept my symptoms away for several years, until I presented with >> >> >> > > > high BP. Gradually I started getting a milder version of the above >> >> >> > > > symptoms (mainly, bloating and feeling uncomfortably full). This has >> >> >> > > > gotten worse as the PA has gotten worse. >> >> >> > > > > >> >> >> >> > > > > >> Now that I have a diagnosis, my doctors think once the PA is >> >> >> > > > treated the digestive issues will go away again. I'm still waiting >> >> >> > for >> >> >> > > > a decision on the course of treatment (and hoping adrenalectomy is an >> >> >> > > > o >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 Right but if you need to spend more I am availabe ;-)In other words I would not waste your money or your life on this stuff unless it has been well studied in PA.Remember that there is NO regulation of these OTC items and they can put anything they want into them until they get caught. CE Grim MDWere already in contract together unless you were talking about something else.Kellie Sent from my Samsung Epic™ 4G Clarence Grim wrote:>Ask for the data that it makes people with PA live healthier and longer. But if you need a way to spend some money I can help. >>Tiped sad Send form mi>iPhone ;-)>>May your pressure be low!>>CE Grim MD>Specializing in Difficult>Hypertension>>>>> I thought about that so since I think I have always been lactose intolerant I first cut out dairy then fruit then veggies. It actually got worse. The final week before going to the doc I was down to oatmeal chicken and soup. Is that probiotic pill something I could take long term if needed?>> >> Kellie Sent from my Samsung Epic™ 4G >> >> Clarence Grim wrote:>> >> >Or is it the DASH?>> >>> >Tiped sad Send form mi>> >iPhone ;-)>> >>> >May your pressure be low!>> >>> >CE Grim MD>> >Specializing in Difficult>> >Hypertension>> >>> >>> >>> >> >> >> The doctor gave me 4 boxes (30 day supply) of samples so I am not sure if it is prescription or not. The box says Align Probiotic Suppllement for digestive care.>> >> >> >> Kellie Sent from my Samsung Epic™ 4G >> >> >> >> msmith_1928 wrote:>> >> >> >> >What's it called? Is is prescription or OTC?>> >> >>> >> >>> >> >> > > > > >>>> >> >> > > > > >>>> >> >> > > > > >> msmith1928,>> >> >> > > > > >>>> >> >> > > > > >> I am afriad that I don't have much to offer you. The GI doc>> >> >> > > > couldn't find anything to blame for my bloating issues so he ended up>> >> >> > > > giving me an antibiotic that flushed out the GI tract. I am taking>> >> >> > > > asodopholis and so far so good (except for today of course). The idea>> >> >> > > > was that my flora was out of wack and I could have had bad pockets in>> >> >> > > > places with imbalance. Sugar would definitely set me off and >> >> >> > processed>> >> >> > > > foods. Going to a potluck was total russian rollet. My PA issues have>> >> >> > > > just shown up (at least the low K and high BP) in November last year>> >> >> > > > and I have been having the digestion issues for 15+ years.>> >> >> > > > > >>>> >> >> > > > > >> I have actually had a bad day of bloating for the first time in>> >> >> > > > months. I am so hoping it isn't from the eplerenone. I have only been>> >> >> > > > on it for a couple of days. That would really suck.>> >> >> > > > > >>>> >> >> > > > > >> Assuming you have been tested for celiec?>> >> >> > > > > >>>> >> >> > > > > >> I am so sorry that you have been going through the disgestive>> >> >> > > > problems. I sympathize. And I am double sorry to hear that you are>> >> >> > > > having to cut out so much good stuff from your diet. I hope that some>> >> >> > > > day soon you can put all of that stuff back in your diet and days of>> >> >> > > > bloating are a thing of the past for you.>> >> >> > > > > >>>> >> >> > > > > >> Hoping for a clear cut diagnosis and treatment on your PA!>> >> >> > > > > >>>> >> >> > > > > >> Cheers,>> >> >> > > > > >> >> >> >> > > > > >>>> >> >> > > > > >>>> >> >> > > > > >>>> >> >> > > > > >>>> >> >> > > > > >> Hi ,>> >> >> > > > > >>>> >> >> > > > > >> First off - congratulations!>> >> >> > > > > >>>> >> >> > > > > >> I just read your story and as usual, noticed some >> >> >> > similarities to>> >> >> > > > my own. The main thing I wanted to compare notes on was digestive>> >> >> > > > issues, if you don't mind.>> >> >> > > > > >>>> >> >> > > > > >> I've had digestive problems my whole life, and when I was around>> >> >> > > > 30 I was diagnosed with fructose intolerance, which means I lack the>> >> >> > > > enzyme to break down fructose in my liver. Symptoms are vomiting,>> >> >> > > > diarrhea, and bloating (and eventually, enlarged liver, jaundice, and>> >> >> > > > out-of-whack blood panels, if it gets really bad). Treatment is to>> >> >> > > > avoid fructose (found in almost all fruits as well as many fruits >> >> >> > that>> >> >> > > > we commonly call "vegetables") and fructans (a type of carbohydrate>> >> >> > > > found in many grains). I've also been lactose intolerant since birth.>> >> >> > > > > >>>> >> >> > > > > >> Cutting out grains, fruits/many veg, and all lactose worked >> >> >> > GREAT>> >> >> > > > and kept my symptoms away for several years, until I presented with>> >> >> > > > high BP. Gradually I started getting a milder version of the above>> >> >> > > > symptoms (mainly, bloating and feeling uncomfortably full). This has>> >> >> > > > gotten worse as the PA has gotten worse.>> >> >> > > > > >>>> >> >> > > > > >> Now that I have a diagnosis, my doctors think once the PA is>> >> >> > > > treated the digestive issues will go away again. I'm still waiting >> >> >> > for>> >> >> > > > a decision on the course of treatment (and hoping adrenalectomy is an>> >> >> > > > o>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 Gotcha. Well it has helped my stomach and kept me out of the restroom. I would prefer not to take a pill if not needed but if I continue to have stomach problems would this be a alternative. Could be meds or healthy eating for once... Kellie Sent from my Samsung Epicâ„¢ 4G Clarence Grim wrote: >Right but if you need to spend more I am availabe ;-) > >In other words I would not waste your money or your life on this stuff >unless it has been well studied in PA. > >Remember that there is NO regulation of these OTC items and they can >put anything they want into them until they get caught. > > >CE Grim MD > > >> Were already in contract together unless you were talking about >> something else. >> >> Kellie Sent from my Samsung Epicâ„¢ 4G >> >> Clarence Grim wrote: >> >> >Ask for the data that it makes people with PA live healthier and >> longer. But if you need a way to spend some money I can help. >> > >> >Tiped sad Send form mi >> >iPhone ;-) >> > >> >May your pressure be low! >> > >> >CE Grim MD >> >Specializing in Difficult >> >Hypertension >> > >> >On May 28, 2011, at 6:12 AM, Kellie >> wrote: >> > >> >> I thought about that so since I think I have always been lactose >> intolerant I first cut out dairy then fruit then veggies. It >> actually got worse. The final week before going to the doc I was >> down to oatmeal chicken and soup. Is that probiotic pill something I >> could take long term if needed? >> >> >> >> Kellie Sent from my Samsung Epicâ„¢ 4G >> >> >> >> Clarence Grim wrote: >> >> >> >> >Or is it the DASH? >> >> > >> >> >Tiped sad Send form mi >> >> >iPhone ;-) >> >> > >> >> >May your pressure be low! >> >> > >> >> >CE Grim MD >> >> >Specializing in Difficult >> >> >Hypertension >> >> > >> >> >On May 27, 2011, at 7:23 PM, Kellie >> wrote: >> >> > >> >> >> >> >> >> The doctor gave me 4 boxes (30 day supply) of samples so I am >> not sure if it is prescription or not. The box says Align Probiotic >> Suppllement for digestive care. >> >> >> >> >> >> Kellie Sent from my Samsung Epicâ„¢ 4G >> >> >> >> >> >> msmith_1928 wrote: >> >> >> >> >> >> >What's it called? Is is prescription or OTC? >> >> >> > >> >> >> > >> >> >> >> > > > > >> >> >> >> >> > > > > >> >> >> >> >> > > > > >> msmith1928, >> >> >> >> > > > > >> >> >> >> >> > > > > >> I am afriad that I don't have much to offer you. >> The GI doc >> >> >> >> > > > couldn't find anything to blame for my bloating >> issues so he ended up >> >> >> >> > > > giving me an antibiotic that flushed out the GI >> tract. I am taking >> >> >> >> > > > asodopholis and so far so good (except for today of >> course). The idea >> >> >> >> > > > was that my flora was out of wack and I could have >> had bad pockets in >> >> >> >> > > > places with imbalance. Sugar would definitely set me >> off and >> >> >> >> > processed >> >> >> >> > > > foods. Going to a potluck was total russian rollet. >> My PA issues have >> >> >> >> > > > just shown up (at least the low K and high BP) in >> November last year >> >> >> >> > > > and I have been having the digestion issues for 15+ >> years. >> >> >> >> > > > > >> >> >> >> >> > > > > >> I have actually had a bad day of bloating for >> the first time in >> >> >> >> > > > months. I am so hoping it isn't from the eplerenone. >> I have only been >> >> >> >> > > > on it for a couple of days. That would really suck. >> >> >> >> > > > > >> >> >> >> >> > > > > >> Assuming you have been tested for celiec? >> >> >> >> > > > > >> >> >> >> >> > > > > >> I am so sorry that you have been going through >> the disgestive >> >> >> >> > > > problems. I sympathize. And I am double sorry to hear >> that you are >> >> >> >> > > > having to cut out so much good stuff from your diet. >> I hope that some >> >> >> >> > > > day soon you can put all of that stuff back in your >> diet and days of >> >> >> >> > > > bloating are a thing of the past for you. >> >> >> >> > > > > >> >> >> >> >> > > > > >> Hoping for a clear cut diagnosis and treatment >> on your PA! >> >> >> >> > > > > >> >> >> >> >> > > > > >> Cheers, >> >> >> >> > > > > >> >> >> >> >> > > > > >> >> >> >> >> > > > > >> >> >> >> >> > > > > >> >> >> >> >> > > > > >> >> >> >> >> > > > > >> Hi , >> >> >> >> > > > > >> >> >> >> >> > > > > >> First off - congratulations! >> >> >> >> > > > > >> >> >> >> >> > > > > >> I just read your story and as usual, noticed some >> >> >> >> > similarities to >> >> >> >> > > > my own. The main thing I wanted to compare notes on >> was digestive >> >> >> >> > > > issues, if you don't mind. >> >> >> >> > > > > >> >> >> >> >> > > > > >> I've had digestive problems my whole life, and >> when I was around >> >> >> >> > > > 30 I was diagnosed with fructose intolerance, which >> means I lack the >> >> >> >> > > > enzyme to break down fructose in my liver. Symptoms >> are vomiting, >> >> >> >> > > > diarrhea, and bloating (and eventually, enlarged >> liver, jaundice, and >> >> >> >> > > > out-of-whack blood panels, if it gets really bad). >> Treatment is to >> >> >> >> > > > avoid fructose (found in almost all fruits as well as >> many fruits >> >> >> >> > that >> >> >> >> > > > we commonly call " vegetables " ) and fructans (a type >> of carbohydrate >> >> >> >> > > > found in many grains). I've also been lactose >> intolerant since birth. >> >> >> >> > > > > >> >> >> >> >> > > > > >> Cutting out grains, fruits/many veg, and all >> lactose worked >> >> >> >> > GREAT >> >> >> >> > > > and kept my symptoms away for several years, until I >> presented with >> >> >> >> > > > high BP. Gradually I started getting a milder version >> of the above >> >> >> >> > > > symptoms (mainly, bloating and feeling uncomfortably >> full). This has >> >> >> >> > > > gotten worse as the PA has gotten worse. >> >> >> >> > > > > >> >> >> >> >> > > > > >> Now that I have a diagnosis, my doctors think >> once the PA is >> >> >> >> > > > treated the digestive issues will go away again. I'm >> still waiting >> >> >> >> > for >> >> >> >> > > > a decision on the course of treatment (and hoping >> adrenalectomy is an >> >> >> >> > > > o >> >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 Have you ever experimented with digestive enzyme suppliments? Maybe your gut needs some help?... ============================================================================45-Male-Caucasian, 5'9"- 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.Meds: 50mg Spiro, 1200mg Calcium, 500mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower PoleDASH: Started DASHing 5/3/2011To: hyperaldosteronism Sent: Friday, May 27, 2011 7:08 PMSubject: Re: probiotic What's it called? Is is prescription or OTC? > > > > > >> > > > > > >> > > > > > >> msmith1928, > > > > > >> > > > > > >> I am afriad that I don't have much to offer you. The GI doc > > > > couldn't find anything to blame for my bloating issues so he ended up > > > > giving me an antibiotic that flushed out the GI tract. I am taking > > > > asodopholis and so far so good (except for today of course). The idea > > > > was that my flora was out of wack and I could have had bad pockets in > > > > places with imbalance. Sugar would definitely set me off and > > processed > > > > foods. Going to a potluck was total russian rollet. My PA issues have > > > > just shown up (at least the low K and high BP) in November last year > > > > and I have been having the digestion issues for 15+ years. > > > > > >> > > > > > >> I have actually had a bad day of bloating for the first time in > > > > months. I am so hoping it isn't from the eplerenone. I have only been > > > > on it for a couple of days. That would really suck. > > > > > >> > > > > > >> Assuming you have been tested for celiec? > > > > > >> > > > > > >> I am so sorry that you have been going through the disgestive > > > > problems. I sympathize. And I am double sorry to hear that you are > > > > having to cut out so much good stuff from your diet. I hope that some > > > > day soon you can put all of that stuff back in your diet and days of > > > > bloating are a thing of the past for you. > > > > > >> > > > > > >> Hoping for a clear cut diagnosis and treatment on your PA! > > > > > >> > > > > > >> Cheers, > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> Hi , > > > > > >> > > > > > >> First off - congratulations! > > > > > >> > > > > > >> I just read your story and as usual, noticed some > > similarities to > > > > my own. The main thing I wanted to compare notes on was digestive > > > > issues, if you don't mind. > > > > > >> > > > > > >> I've had digestive problems my whole life, and when I was around > > > > 30 I was diagnosed with fructose intolerance, which means I lack the > > > > enzyme to break down fructose in my liver. Symptoms are vomiting, > > > > diarrhea, and bloating (and eventually, enlarged liver, jaundice, and > > > > out-of-whack blood panels, if it gets really bad). Treatment is to > > > > avoid fructose (found in almost all fruits as well as many fruits > > that > > > > we commonly call "vegetables") and fructans (a type of carbohydrate > > > > found in many grains). I've also been lactose intolerant since birth. > > > > > >> > > > > > >> Cutting out grains, fruits/many veg, and all lactose worked > > GREAT > > > > and kept my symptoms away for several years, until I presented with > > > > high BP. Gradually I started getting a milder version of the above > > > > symptoms (mainly, bloating and feeling uncomfortably full). This has > > > > gotten worse as the PA has gotten worse. > > > > > >> > > > > > >> Now that I have a diagnosis, my doctors think once the PA is > > > > treated the digestive issues will go away again. I'm still waiting > > for > > > > a decision on the course of treatment (and hoping adrenalectomy is an > > > > option). > > > > > >> > > > > > >> I'm curious to know if your symptoms are at all similar, and if > > > > so, if they go away while you're on eplerenone. For me I know the > > > > lactose/fructose problems are something that won't go away, but I > > sure > > > > hope the milder problems do! > > > > > >> > > > > > >> Two of my doctors have differing theories about why the problems > > > > are happening in conjunction with PA. One thinks it's when my K > > drops, > > > > it impacts my muscles (including smooth muscle of the > > gastrointestinal > > > > tract). The other thinks it's a response to salt. I'd sure love to > > > > resolve it, whatever the cause > > > > > >> > > > > > >> Thanks in advance for any input you are willing to offer! > > > > > >> > > > > > >> -msmith1928 > > > > > >> 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, supine > > > > aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking > > > > supplements); 25mg spiro caused gynecomastia; no HTN meds; current > > > > meds are 20MEQ K 3x/day, singulair 10mg, norethindrone .35mg, > > > > cyclobenzaprine 5-10mg when needed, fexofenadine 180mg when needed; > > > > low sodium, fructose- and grain-free diet; known drug allergies > > > > include PCN, sulfa, tetracycline > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 Some folks have gut problems with spiro. How much are you taking. Taking several times a day may help.CE Grim MDGotcha. Well it has helped my stomach and kept me out of the restroom. I would prefer not to take a pill if not needed but if I continue to have stomach problems would this be a alternative. Could be meds or healthy eating for once...Kellie Sent from my Samsung Epic™ 4G Clarence Grim wrote:>Right but if you need to spend more I am availabe ;-)>>In other words I would not waste your money or your life on this stuff >unless it has been well studied in PA.>>Remember that there is NO regulation of these OTC items and they can >put anything they want into them until they get caught.>>>CE Grim MD>>>> Were already in contract together unless you were talking about >> something else.>>>> Kellie Sent from my Samsung Epic™ 4G>>>> Clarence Grim wrote:>>>> >Ask for the data that it makes people with PA live healthier and >> longer. But if you need a way to spend some money I can help.>> >>> >Tiped sad Send form mi>> >iPhone ;-)>> >>> >May your pressure be low!>> >>> >CE Grim MD>> >Specializing in Difficult>> >Hypertension>> >>> >On May 28, 2011, at 6:12 AM, Kellie >> wrote:>> >>> >> I thought about that so since I think I have always been lactose >> intolerant I first cut out dairy then fruit then veggies. It >> actually got worse. The final week before going to the doc I was >> down to oatmeal chicken and soup. Is that probiotic pill something I >> could take long term if needed?>> >>>> >> Kellie Sent from my Samsung Epic™ 4G>> >>>> >> Clarence Grim wrote:>> >>>> >> >Or is it the DASH?>> >> >>> >> >Tiped sad Send form mi>> >> >iPhone ;-)>> >> >>> >> >May your pressure be low!>> >> >>> >> >CE Grim MD>> >> >Specializing in Difficult>> >> >Hypertension>> >> >>> >> >>> >> >>> >> >>>> >> >> The doctor gave me 4 boxes (30 day supply) of samples so I am >> not sure if it is prescription or not. The box says Align Probiotic >> Suppllement for digestive care.>> >> >>>> >> >> Kellie Sent from my Samsung Epic™ 4G>> >> >>>> >> >> msmith_1928 wrote:>> >> >>>> >> >> >What's it called? Is is prescription or OTC?>> >> >> >>> >> >> >>> >> >> >> > > > > >>>> >> >> >> > > > > >>>> >> >> >> > > > > >> msmith1928,>> >> >> >> > > > > >>>> >> >> >> > > > > >> I am afriad that I don't have much to offer you. >> The GI doc>> >> >> >> > > > couldn't find anything to blame for my bloating >> issues so he ended up>> >> >> >> > > > giving me an antibiotic that flushed out the GI >> tract. I am taking>> >> >> >> > > > asodopholis and so far so good (except for today of >> course). The idea>> >> >> >> > > > was that my flora was out of wack and I could have >> had bad pockets in>> >> >> >> > > > places with imbalance. Sugar would definitely set me >> off and>> >> >> >> > processed>> >> >> >> > > > foods. Going to a potluck was total russian rollet. >> My PA issues have>> >> >> >> > > > just shown up (at least the low K and high BP) in >> November last year>> >> >> >> > > > and I have been having the digestion issues for 15+ >> years.>> >> >> >> > > > > >>>> >> >> >> > > > > >> I have actually had a bad day of bloating for >> the first time in>> >> >> >> > > > months. I am so hoping it isn't from the eplerenone. >> I have only been>> >> >> >> > > > on it for a couple of days. That would really suck.>> >> >> >> > > > > >>>> >> >> >> > > > > >> Assuming you have been tested for celiec?>> >> >> >> > > > > >>>> >> >> >> > > > > >> I am so sorry that you have been going through >> the disgestive>> >> >> >> > > > problems. I sympathize. And I am double sorry to hear >> that you are>> >> >> >> > > > having to cut out so much good stuff from your diet. >> I hope that some>> >> >> >> > > > day soon you can put all of that stuff back in your >> diet and days of>> >> >> >> > > > bloating are a thing of the past for you.>> >> >> >> > > > > >>>> >> >> >> > > > > >> Hoping for a clear cut diagnosis and treatment >> on your PA!>> >> >> >> > > > > >>>> >> >> >> > > > > >> Cheers,>> >> >> >> > > > > >> >> >> >> >> > > > > >>>> >> >> >> > > > > >>>> >> >> >> > > > > >>>> >> >> >> > > > > >>>> >> >> >> > > > > >> Hi ,>> >> >> >> > > > > >>>> >> >> >> > > > > >> First off - congratulations!>> >> >> >> > > > > >>>> >> >> >> > > > > >> I just read your story and as usual, noticed some>> >> >> >> > similarities to>> >> >> >> > > > my own. The main thing I wanted to compare notes on >> was digestive>> >> >> >> > > > issues, if you don't mind.>> >> >> >> > > > > >>>> >> >> >> > > > > >> I've had digestive problems my whole life, and >> when I was around>> >> >> >> > > > 30 I was diagnosed with fructose intolerance, which >> means I lack the>> >> >> >> > > > enzyme to break down fructose in my liver. Symptoms >> are vomiting,>> >> >> >> > > > diarrhea, and bloating (and eventually, enlarged >> liver, jaundice, and>> >> >> >> > > > out-of-whack blood panels, if it gets really bad). >> Treatment is to>> >> >> >> > > > avoid fructose (found in almost all fruits as well as >> many fruits>> >> >> >> > that>> >> >> >> > > > we commonly call "vegetables") and fructans (a type >> of carbohydrate>> >> >> >> > > > found in many grains). I've also been lactose >> intolerant since birth.>> >> >> >> > > > > >>>> >> >> >> > > > > >> Cutting out grains, fruits/many veg, and all >> lactose worked>> >> >> >> > GREAT>> >> >> >> > > > and kept my symptoms away for several years, until I >> presented with>> >> >> >> > > > high BP. Gradually I started getting a milder version >> of the above>> >> >> >> > > > symptoms (mainly, bloating and feeling uncomfortably >> full). This has>> >> >> >> > > > gotten worse as the PA has gotten worse.>> >> >> >> > > > > >>>> >> >> >> > > > > >> Now that I have a diagnosis, my doctors think >> once the PA is>> >> >> >> > > > treated the digestive issues will go away again. I'm >> still waiting>> >> >> >> > for>> >> >> >> > > > a decision on the course of treatment (and hoping >> adrenalectomy is an>> >> >> >> > > > o>> >>>>>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 I would be tested first before wasting the $.CE Grim MDHave you ever experimented with digestive enzyme suppliments? Maybe your gut needs some help?... ============================================================================45-Male-Caucasian, 5'9"- 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.Meds: 50mg Spiro, 1200mg Calcium, 500mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower PoleDASH: Started DASHing 5/3/2011To: hyperaldosteronism Sent: Friday, May 27, 2011 7:08 PMSubject: Re: probiotic What's it called? Is is prescription or OTC?> > > > > >>> > > > > >>> > > > > >> msmith1928,> > > > > >>> > > > > >> I am afriad that I don't have much to offer you. The GI doc> > > > couldn't find anything to blame for my bloating issues so he ended up> > > > giving me an antibiotic that flushed out the GI tract. I am taking> > > > asodopholis and so far so good (except for today of course). The idea> > > > was that my flora was out of wack and I could have had bad pockets in> > > > places with imbalance. Sugar would definitely set me off and > > processed> > > > foods. Going to a potluck was total russian rollet. My PA issues have> > > > just shown up (at least the low K and high BP) in November last year> > > > and I have been having the digestion issues for 15+ years.> > > > > >>> > > > > >> I have actually had a bad day of bloating for the first time in> > > > months. I am so hoping it isn't from the eplerenone. I have only been> > > > on it for a couple of days. That would really suck.> > > > > >>> > > > > >> Assuming you have been tested for celiec?> > > > > >>> > > > > >> I am so sorry that you have been going through the disgestive> > > > problems. I sympathize. And I am double sorry to hear that you are> > > > having to cut out so much good stuff from your diet. I hope that some> > > > day soon you can put all of that stuff back in your diet and days of> > > > bloating are a thing of the past for you.> > > > > >>> > > > > >> Hoping for a clear cut diagnosis and treatment on your PA!> > > > > >>> > > > > >> Cheers,> > > > > >> > > > > > >>> > > > > >>> > > > > >>> > > > > >>> > > > > >> Hi ,> > > > > >>> > > > > >> First off - congratulations!> > > > > >>> > > > > >> I just read your story and as usual, noticed some > > similarities to> > > > my own. The main thing I wanted to compare notes on was digestive> > > > issues, if you don't mind.> > > > > >>> > > > > >> I've had digestive problems my whole life, and when I was around> > > > 30 I was diagnosed with fructose intolerance, which means I lack the> > > > enzyme to break down fructose in my liver. Symptoms are vomiting,> > > > diarrhea, and bloating (and eventually, enlarged liver, jaundice, and> > > > out-of-whack blood panels, if it gets really bad). Treatment is to> > > > avoid fructose (found in almost all fruits as well as many fruits > > that> > > > we commonly call "vegetables") and fructans (a type of carbohydrate> > > > found in many grains). I've also been lactose intolerant since birth.> > > > > >>> > > > > >> Cutting out grains, fruits/many veg, and all lactose worked > > GREAT> > > > and kept my symptoms away for several years, until I presented with> > > > high BP. Gradually I started getting a milder version of the above> > > > symptoms (mainly, bloating and feeling uncomfortably full). This has> > > > gotten worse as the PA has gotten worse.> > > > > >>> > > > > >> Now that I have a diagnosis, my doctors think once the PA is> > > > treated the digestive issues will go away again. I'm still waiting > > for> > > > a decision on the course of treatment (and hoping adrenalectomy is an> > > > option).> > > > > >>> > > > > >> I'm curious to know if your symptoms are at all similar, and if> > > > so, if they go away while you're on eplerenone. For me I know the> > > > lactose/fructose problems are something that won't go away, but I > > sure> > > > hope the milder problems do!> > > > > >>> > > > > >> Two of my doctors have differing theories about why the problems> > > > are happening in conjunction with PA. One thinks it's when my K > > drops,> > > > it impacts my muscles (including smooth muscle of the > > gastrointestinal> > > > tract). The other thinks it's a response to salt. I'd sure love to> > > > resolve it, whatever the cause > > > > > >>> > > > > >> Thanks in advance for any input you are willing to offer!> > > > > >>> > > > > >> -msmith1928> > > > > >> 45, female, 5'3", 120 lbs, 1cm left adrenal nodule, supine> > > > aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking> > > > supplements); 25mg spiro caused gynecomastia; no HTN meds; current> > > > meds are 20MEQ K 3x/day, singulair 10mg, norethindrone .35mg,> > > > cyclobenzaprine 5-10mg when needed, fexofenadine 180mg when needed;> > > > low sodium, fructose- and grain-free diet; known drug allergies> > > > include PCN, sulfa, tetracycline> > > > > >>> > > > > >> > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 Probiotics are commonly consumed as part of fermented foods with specially added active live cultures; such as in yogurt, soy yogurt, or as dietary supplements. As part of DASHING is to eat yogurt this would help with getting digestive enzyme. > > > > > > > >> > > > > > > > >> > > > > > > > >> msmith1928, > > > > > > > >> > > > > > > > >> I am afriad that I don't have much to offer you. The GI > > doc > > > > > > couldn't find anything to blame for my bloating issues so he > > ended up > > > > > > giving me an antibiotic that flushed out the GI tract. I am > > taking > > > > > > asodopholis and so far so good (except for today of course). > > The idea > > > > > > was that my flora was out of wack and I could have had bad > > pockets in > > > > > > places with imbalance. Sugar would definitely set me off and > > > > processed > > > > > > foods. Going to a potluck was total russian rollet. My PA > > issues have > > > > > > just shown up (at least the low K and high BP) in November > > last year > > > > > > and I have been having the digestion issues for 15+ years. > > > > > > > >> > > > > > > > >> I have actually had a bad day of bloating for the first > > time in > > > > > > months. I am so hoping it isn't from the eplerenone. I have > > only been > > > > > > on it for a couple of days. That would really suck. > > > > > > > >> > > > > > > > >> Assuming you have been tested for celiec? > > > > > > > >> > > > > > > > >> I am so sorry that you have been going through the > > disgestive > > > > > > problems. I sympathize. And I am double sorry to hear that > > you are > > > > > > having to cut out so much good stuff from your diet. I hope > > that some > > > > > > day soon you can put all of that stuff back in your diet and > > days of > > > > > > bloating are a thing of the past for you. > > > > > > > >> > > > > > > > >> Hoping for a clear cut diagnosis and treatment on your > > PA! > > > > > > > >> > > > > > > > >> Cheers, > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> Hi , > > > > > > > >> > > > > > > > >> First off - congratulations! > > > > > > > >> > > > > > > > >> I just read your story and as usual, noticed some > > > > similarities to > > > > > > my own. The main thing I wanted to compare notes on was > > digestive > > > > > > issues, if you don't mind. > > > > > > > >> > > > > > > > >> I've had digestive problems my whole life, and when I > > was around > > > > > > 30 I was diagnosed with fructose intolerance, which means I > > lack the > > > > > > enzyme to break down fructose in my liver. Symptoms are > > vomiting, > > > > > > diarrhea, and bloating (and eventually, enlarged liver, > > jaundice, and > > > > > > out-of-whack blood panels, if it gets really bad). Treatment > > is to > > > > > > avoid fructose (found in almost all fruits as well as many > > fruits > > > > that > > > > > > we commonly call " vegetables " ) and fructans (a type of > > carbohydrate > > > > > > found in many grains). I've also been lactose intolerant > > since birth. > > > > > > > >> > > > > > > > >> Cutting out grains, fruits/many veg, and all lactose > > worked > > > > GREAT > > > > > > and kept my symptoms away for several years, until I > > presented with > > > > > > high BP. Gradually I started getting a milder version of the > > above > > > > > > symptoms (mainly, bloating and feeling uncomfortably full). > > This has > > > > > > gotten worse as the PA has gotten worse. > > > > > > > >> > > > > > > > >> Now that I have a diagnosis, my doctors think once the > > PA is > > > > > > treated the digestive issues will go away again. I'm still > > waiting > > > > for > > > > > > a decision on the course of treatment (and hoping > > adrenalectomy is an > > > > > > option). > > > > > > > >> > > > > > > > >> I'm curious to know if your symptoms are at all > > similar, and if > > > > > > so, if they go away while you're on eplerenone. For me I > > know the > > > > > > lactose/fructose problems are something that won't go away, > > but I > > > > sure > > > > > > hope the milder problems do! > > > > > > > >> > > > > > > > >> Two of my doctors have differing theories about why the > > problems > > > > > > are happening in conjunction with PA. One thinks it's when > > my K > > > > drops, > > > > > > it impacts my muscles (including smooth muscle of the > > > > gastrointestinal > > > > > > tract). The other thinks it's a response to salt. I'd sure > > love to > > > > > > resolve it, whatever the cause > > > > > > > >> > > > > > > > >> Thanks in advance for any input you are willing to offer! > > > > > > > >> > > > > > > > >> -msmith1928 > > > > > > > >> 45, female, 5'3 " , 120 lbs, 1cm left adrenal nodule, > > supine > > > > > > aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking > > > > > > supplements); 25mg spiro caused gynecomastia; no HTN meds; > > current > > > > > > meds are 20MEQ K 3x/day, singulair 10mg, norethindrone .35mg, > > > > > > cyclobenzaprine 5-10mg when needed, fexofenadine 180mg when > > needed; > > > > > > low sodium, fructose- and grain-free diet; known drug > > allergies > > > > > > include PCN, sulfa, tetracycline > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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