Re: OCD, ACE, please help

[Guest guest]

Hi, we had lots of OCD in the past, I cannot say there was one

particular thing that helped, but biomed treatments in general slowly

brought it down to very low levels now. we have not used ACE

What enzymes and probiotics are you using? Usually the ones from health

shops are not as high quality as you would want, and often have

not-so-good stuff added to them.

Houston enzymes lots of people swear by, we love them too! Primal

Defence is a very good all-around probiotic, also has Sac.B (good yeast)

contained in it, which can help if Clostridia is present (and clostridia

itself can be the cause of OCD...) Worth a try!

both can be ordered at Mandimart.com

Natasa

>

> Hi,

> I am very new to this group and have been reading as much as

> possible. I have a 17 yo daughter who has, among other things,

> Asperger's. She also has severe, intractable OCD that is

> debilitating. When reading the supplements file posted here, I

> discovered the following:

>

> " Adrenal Cortex Extract (ACE) is a supplement that can help support

> stressed adrenals, a problem quite common in autistic children.

> Adrenal stress can be debilitating and will likely only worsen over

> time if not addressed. Some signs of poor adrenal function are

> " anxiety with OCD, poor task switching, sensory integration problems "

> (per Andy Cutler), and avoidance of other activities by engaging in

> things such as repetitive movie watching. One trusted brand is

> Nutricology Organic Adrenal Cortex Extract. "

>

> Those symptoms mentioned all sound like my daughter. This is the

> first I have heard about ACE in relation to OCD. Has anyone ever

> tried using this? What were the results? Any thoughts, advice on

> dealing with OCD? I have her on lots of vitamins/supplements, a

> digestive enzyme and probiotic purchased at local health-food store.

> Am wanting to add better probiotics and perhaps better enzymes to the

> mix. Looking at Kirkmans and Houston for the enzymes, not sure what

> to add for the probiotics.

>

> Again, any help/advice is extremely appreciated. If I can ever get

> daughter to be compliant, I would love to try chelation but at this

> point am still learning and not even sure where to start with that.

> I only discovered the whole mercury/vaccine issue about 3 months ago,

> and boy am I upset about it.

>

> Thanks,

> jjwoolie

>

[Guest guest]

Hi jjwoolie,

It was me who wrote what you read in that file. I was trying to be

as emphatic as possible about the ACE as it has made a huge

difference for us.

My son's adrenals were very stressed and he became an utter mess as a

result. After supporting his adrenals with ACE, extra B vitamins,

and extra Vitamin C, he was able to be somewhat happy again. He

stopped wanting to stim all the time. He was able to laugh. Lots of

good things. We still aren't out of the woods though. Adrenals, if

they are fatigued, need to be supported a long time. If they are

impacted by mercury or other toxins, you need to remove those toxins.

My son has been chelated 60 rounds. We have been supporting his

adrenals properly since Jan 1 of this year. Yet, in the evening his

pupils are still huge even in direct light. Inability to control the

pupils is one sign of adrenal fatigue. I have read that it will take

probably more than two years to get his adrenals back to a reasonable

state.

OCD can also be the result of bacterial problems. You may want to

consider using something like grapefruit seed extract or oil of

oregano. Both are antibacterial and antifungal. While using them,

you must supplement with good bacteria. Culturelle are a probiotics

known for dealing with the bad bacteria. You should also use a

different multistrain probiotic. There are many good ones to choose

from to order from the net (I have reservations about HFS

probiotics). We use Kirkman's Superprobio, Primal defense, Custom

Probiotics, and very soon ThreeLac and FiveLac.

It is very complicated at first, but you are in a great place to help

your daughter now.

Anita

>

> Hi,

> I am very new to this group and have been reading as much as

> possible. I have a 17 yo daughter who has, among other things,

> Asperger's. She also has severe, intractable OCD that is

> debilitating. When reading the supplements file posted here, I

> discovered the following:

>

> " Adrenal Cortex Extract (ACE) is a supplement that can help support

> stressed adrenals, a problem quite common in autistic children.

> Adrenal stress can be debilitating and will likely only worsen over

> time if not addressed. Some signs of poor adrenal function are

> " anxiety with OCD, poor task switching, sensory integration

problems "

> (per Andy Cutler), and avoidance of other activities by engaging in

> things such as repetitive movie watching. One trusted brand is

> Nutricology Organic Adrenal Cortex Extract. "

>

> Those symptoms mentioned all sound like my daughter. This is the

> first I have heard about ACE in relation to OCD. Has anyone ever

> tried using this? What were the results? Any thoughts, advice on

> dealing with OCD? I have her on lots of vitamins/supplements, a

> digestive enzyme and probiotic purchased at local health-food

store.

> Am wanting to add better probiotics and perhaps better enzymes to

the

> mix. Looking at Kirkmans and Houston for the enzymes, not sure

what

> to add for the probiotics.

>

> Again, any help/advice is extremely appreciated. If I can ever get

> daughter to be compliant, I would love to try chelation but at this

> point am still learning and not even sure where to start with

that.

> I only discovered the whole mercury/vaccine issue about 3 months

ago,

> and boy am I upset about it.

>

> Thanks,

> jjwoolie

>

[Guest guest]

2007/4/27, natasa778 :

Hi, we had lots of OCD in the past, P Defence is a very good all-around probiotic, also has Sac.B (good yeast) contained in it, which can help if Clostridia is present (and clostridia itself can be the cause of OCD...) Natasa

It should be established that Streptococci do have an impact on OCD,

to me it is new that Clostridia might do the same,

Natasa - do you have any literature on the theme ??

Geir Flatabø

[Guest guest]

No, it is more of a speculation. One of clostridium toxins is thought to

induce a variety of neurological effects, it has not been 'officially'

established whether OCD might be one of them.

we were negative for Streptococci, yet had lots of OCD. now whether it

was to do with Clostridia dif. (positive on testing) or 'general autism'

(?) is anyone's guess...

Natasa

>

> 2007/4/27, natasa778 neno@...:

> >

> > Hi, we had lots of OCD in the past,

> > P Defence is a very good all-around probiotic, also has Sac.B (good

yeast)

> > contained in it, which can help if Clostridia is present (and

clostridia

> > itself can be the cause of OCD...)

> > Natasa

>

>

> It should be established that Streptococci do have an impact on OCD,

> to me it is new that Clostridia might do the same,

> Natasa - do you have any literature on the theme ??

>

> Geir Flatabø

>

[Guest guest]

Thank you all for your replies. In case you want to hear my story,

here it is.

Unfortunately when my daughter was young, I had no idea she even had

asperger's. I just knew something was wrong, didn't get the correct

diagnosis or even hear of this condition until she was 14. Her entire

life she was severely depressed, had unbearable anxiety, terrible OCD,

severe attention problems, would cycle all the time between depression

and rageful crying, and of course, all the social impairments that

come with Asperger's, yet I forced her to go to school and she was

teased unmercifully and treated very cruelly by the other kids. By

the time she was 12 she started breaking down. By 14, she would

never, ever leave the house. I had to start home-schooling her. I

had her on 6 different medications, none of which helped very much.

In May of 2005, when she was 16, I read an article in Discover

Magazine. (You can go to discover.com, click on " archive " , navigate

to May 2005 and look for article entitled " Vitamin Cure. " ) Based on

that article, I started my daughter on the recommeded vitamins.

Within 6 weeks I had completely eliminated her medications and the

depression lifted, the severe anxiety resolved, the raging and crying

subsided and became much more manageable, and the attention issues

slowly improved. Wow, that was great. But, the OCD, which was never

helped by medications, is also not being helped by the vitamins. (I

don't think overall the asperger's is being helped by them either, but

her overall mood is sure a lot better). Daughter is also on a CFGF

diet - that diet helps her mood tremendously.

Right now I give 2 probiotics one is Country Life Powerdophilus, other

is PB8. Together they contain rhamnosus, acidophilus, bifidum,

longum, plantarum, casei, paracasei, and salivarius. The PB8 is new

and haven't yet tried it, was worried it might contain casien, but I

think it is only trace amounts, if that.

The primal defense probiotic looks really good, but it lists oat grass

and barly grass and daughter is allergic to both oats and barly, so I

am not sure how well she would do on that.

The health food store enzyme I use is called Essential Enzymes by

Source Naturals. I think I could do better than that, but it does

contain a lot of enzymes: pancreatin, protease, lipase, amylase,

amyloglucosidase, cellulase, hemicellulase, and lactase.

Daughter's OCD is ruining her life and everyone else's. Now that she

is older it has totally taken control of her. She spends hours and

hours every day doing rituals. She hardly ever leaves the house, not

because of anxiety this time, but because it is too difficult to do

rituals in public. . .I just don't know what to do. I am hoping that

an improved probiotic and/or enzymes might help. I am wondering if

nothing is helping either because mercury and other toxins are

creating this level of illness, or perhaps, she just isn't absorbing

well enough the things that I am giving her.

Again, all your help and thoughts are very much appreciated.

Thanks,

jjwoolie

[Guest guest]

There are som cases about

Oxytocin spray ameliorates OCD - anxiety in Autism...

Geir Flatabø

2007/4/30, jjwoolie :

Thank you all for your replies. In case you want to hear my story,here it is.Unfortunately when my daughter was young, I had no idea she even had

asperger's. I just knew something was wrong, didn't get the correctdiagnosis or even hear of this condition until she was 14. Her entirelife she was severely depressed, had unbearable anxiety, terrible OCD,

severe attention problems, would cycle all the time between depressionand rageful crying, and of course, all the social impairments thatcome with Asperger's, yet I forced her to go to school and she was

teased unmercifully and treated very cruelly by the other kids. Bythe time she was 12 she started breaking down. By 14, she wouldnever, ever leave the house. I had to start home-schooling her. Ihad her on 6 different medications, none of which helped very much.

In May of 2005, when she was 16, I read an article in DiscoverMagazine. (You can go to discover.com, click on " archive " , navigateto May 2005 and look for article entitled " Vitamin Cure. " ) Based on

that article, I started my daughter on the recommeded vitamins.Within 6 weeks I had completely eliminated her medications and thedepression lifted, the severe anxiety resolved, the raging and cryingsubsided and became much more manageable, and the attention issues

slowly improved. Wow, that was great. But, the OCD, which was neverhelped by medications, is also not being helped by the vitamins. (Idon't think overall the asperger's is being helped by them either, but

her overall mood is sure a lot better). Daughter is also on a CFGFdiet - that diet helps her mood tremendously.Right now I give 2 probiotics one is Country Life Powerdophilus, otheris PB8. Together they contain rhamnosus, acidophilus, bifidum,

longum, plantarum, casei, paracasei, and salivarius. The PB8 is newand haven't yet tried it, was worried it might contain casien, but Ithink it is only trace amounts, if that.The primal defense probiotic looks really good, but it lists oat grass

and barly grass and daughter is allergic to both oats and barly, so Iam not sure how well she would do on that.The health food store enzyme I use is called Essential Enzymes bySource Naturals. I think I could do better than that, but it does

contain a lot of enzymes: pancreatin, protease, lipase, amylase,amyloglucosidase, cellulase, hemicellulase, and lactase.Daughter's OCD is ruining her life and everyone else's. Now that sheis older it has totally taken control of her. She spends hours and

hours every day doing rituals. She hardly ever leaves the house, notbecause of anxiety this time, but because it is too difficult to dorituals in public. . .I just don't know what to do. I am hoping that

an improved probiotic and/or enzymes might help. I am wondering ifnothing is helping either because mercury and other toxins arecreating this level of illness, or perhaps, she just isn't absorbingwell enough the things that I am giving her.

Again, all your help and thoughts are very much appreciated.Thanks,jjwoolieDISCLAIMERNo information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.

[Guest guest]

>

>

> >>Oh something I forgot from DAN - Metamatrix are offering a new

CDSA and a

> unique Clostridia test - one that does not rely on culture which

is hopeless

> for Clostridia and will check for all the various types of

Clostridia.

>

> I don't understand it all but Caroline (Dr TRAA!) does - I am sure

she will

> post when is better

>

> Mandi x

>

Mandi,

I just last week asked my ped to order this test for me. It looks

rather good but I hadn't heard anyone talking about it. I hope if

Caroline does post it is with positive comments as the $ is already

into it!

Anita

[Guest guest]

Hello again,

It sounds like you've done a remarkable job with your daughter's

health in the last little while. We all love Discover magazine too,

now. I remember clearly the article you're referring too. An

excellent piece. Did you see the recent article " It's not just in

your head " ?

From my very basic understanding of how these things work, I would

think that the years of stress your daughter has been under, combined

with the initial physical insults her body suffered, have undoubtedly

left her adrenals in terrible shape. From our experience, supporting

the adrenals really helped a lot of those behaviours that my son

engaged in that didn't seem to make him happy, but he couldn't stop

anyhow.

I would consider running a hair test through Direct Labs.

http://directlabs.com/ If you look right in the middle of the page,

you'll see that the hair elements is on special but the special ends

today. You can get a lot of information for a very reasonable

price. We can help you interpret the results here, or you can but a

book by Andy Cutler called Hair Test Interpretation. You may want to

consider chelation if you feel that part of your daughter's problems

stem from toxic metal insults.

My son's gut wasn't absorbing anything. He was being supplemented

heavily, eating a pretty good diet, yet an ION panel showed he was

deficient in virtually everything. I cannot say for sure yet, as

I've not tested, but it would appear that by dealing with lectins, we

are helping my son's gut to heal. There are many reasons why a gut

can't heal and work properly.

I would also think that some part of the OCD may be bacterial. I

would really encourage you to explore that.

Best,

Anita

>

> Thank you all for your replies. In case you want to hear my story,

> here it is.

>

> Unfortunately when my daughter was young, I had no idea she even had

> asperger's. I just knew something was wrong, didn't get the correct

> diagnosis or even hear of this condition until she was 14. Her

entire

> life she was severely depressed, had unbearable anxiety, terrible

OCD,

> severe attention problems, would cycle all the time between

depression

> and rageful crying, and of course, all the social impairments that

> come with Asperger's, yet I forced her to go to school and she was

> teased unmercifully and treated very cruelly by the other kids. By

> the time she was 12 she started breaking down. By 14, she would

> never, ever leave the house. I had to start home-schooling her. I

> had her on 6 different medications, none of which helped very

much.

>

> In May of 2005, when she was 16, I read an article in Discover

> Magazine. (You can go to discover.com, click on " archive " , navigate

> to May 2005 and look for article entitled " Vitamin Cure. " ) Based on

> that article, I started my daughter on the recommeded vitamins.

> Within 6 weeks I had completely eliminated her medications and the

> depression lifted, the severe anxiety resolved, the raging and

crying

> subsided and became much more manageable, and the attention issues

> slowly improved. Wow, that was great. But, the OCD, which was

never

> helped by medications, is also not being helped by the vitamins. (I

> don't think overall the asperger's is being helped by them either,

but

> her overall mood is sure a lot better). Daughter is also on a CFGF

> diet - that diet helps her mood tremendously.

>

> Right now I give 2 probiotics one is Country Life Powerdophilus,

other

> is PB8. Together they contain rhamnosus, acidophilus, bifidum,

> longum, plantarum, casei, paracasei, and salivarius. The PB8 is new

> and haven't yet tried it, was worried it might contain casien, but I

> think it is only trace amounts, if that.

>

> The primal defense probiotic looks really good, but it lists oat

grass

> and barly grass and daughter is allergic to both oats and barly, so

I

> am not sure how well she would do on that.

>

> The health food store enzyme I use is called Essential Enzymes by

> Source Naturals. I think I could do better than that, but it does

> contain a lot of enzymes: pancreatin, protease, lipase, amylase,

> amyloglucosidase, cellulase, hemicellulase, and lactase.

>

> Daughter's OCD is ruining her life and everyone else's. Now that

she

> is older it has totally taken control of her. She spends hours and

> hours every day doing rituals. She hardly ever leaves the house,

not

> because of anxiety this time, but because it is too difficult to do

> rituals in public. . .I just don't know what to do. I am hoping

that

> an improved probiotic and/or enzymes might help. I am wondering if

> nothing is helping either because mercury and other toxins are

> creating this level of illness, or perhaps, she just isn't absorbing

> well enough the things that I am giving her.

>

> Again, all your help and thoughts are very much appreciated.

>

> Thanks,

> jjwoolie

>