Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 Hi Gretchen, I knew about Dr.Mark Tarnopolosky he is mine and my son's doctor in Hamilton,Ontario.Dr Tarnopolosky is who finally told me and my son the type of CMT we have.I'm going to see him in May and I'm going to ask him what type of CMT it is we have.All I can remember him saying is that the blood they sent oversea's to be test for CMT types was all coming back negative.So he took more blood from us and sent it to the USA to be tested. It was a new type they have not ever seen.So they had said my son and I were the only two as of that time about 3 or 4 years ago that they had seen this type of mutation in CMT. So they asked if it was ok for them to use our ages and gender not our names for their medical books.It was a bit overwelming at the time and I think I just blocked everything else out.That is why I think I can not remember the type of CMT. Now that I'm finished whining LOL.I thank you again for everything.When I see him I'm going to ask if there is any stuff that could be posted to help people with CMT or any research that is being done here. AGAIN THANK YOU very much everybody. Sherry Quote Link to comment Share on other sites More sharing options...
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