Welcome and

[Guest guest]

Welcome and ,

is a global community of persons with Charcot Marie Tooth

Syndrome and their family members. We are here to share what works

for us in living positive and upbeat lives with CMT. You can read a

basic description of CMT on our main page, http://hope.info

also go to http://hnf-cure.org and click on " what is CMT " . See some

of my links under that same topic I posted yesterday (March 15) Read

back in some of our archives for a good understanding of what is

talked about here.

As for symptoms, some are balance issues, difficulty walking long

distances, frequent falls (sometimes over nothing) fatigue, and

tremors. Not everyone experiences all symptoms, and symptoms are

often very different even in the same family.

You will also find posts on CMT research and disability issues here

from time to time.

As for the child you mentioned, perhaps a pediatric neurologist can

help sort things out. Many ordinary pediatricians and other family

medicine doctors are completely unaware of CMT. You may also want to

inform the child's parents that Shriner's will help children with CMT

and so will the MDA, even though CMT is not a Muscular Distropy.

Thanks for jumping in with your introduction and your question.

is a very hopeful and helpful place. I hope you will share this post

with the child's parents and encourage them to join too.

~ Gretchen (Founder/Moderator of )