Re: How do you stay positive?

[Guest guest]

Hi ,

This is Steph in VA. I have been living with arthritis for 5.5 years now. I

am usually pretty positive and optimistic. Don't feel bad that you aren't. I

lived in denial for the first 6 months after I was dx'd. Even when I " accepted "

it, I still believed that my life would go back to normal after finding the

right meds.

In May 2000, I found that right combo, one I'm still one 5 years later.

Sadly, my life has not gone back to the way it was before my arthritis. In fact,

I refer to the onset of my symptoms as when I " got sick " b/c I have a clear

image of who I was before.

Before I got arthritis, I got emotional a lot. If things didn't go as

planned, I flipped out. I was very bossy and felt that if I worked hard enough

at something it would turn out the way I wanted to. It upset me to learn even

taking my meds exactly as prescribed did not mean I would get better.

I am a very detailed oriented person. I used to apply it to my school work

and activism projects. Now I apply it to my medical life. I know the names of

every doctor that has treated me (22 at last count), the names & side effects of

every drug, every test I've taken and every arthritis study drug that has shown

promise.

Regarding paying for drugs, have you tried patient assistance programs given

through the manufacturers? I was unemployed for 4 months and received Remicade

free from Centocor, the manufacturer, for the entire time.

I still have periods of self pity and sadness/anger over the life I

planned. I was originally going to be a high school English teacher but now I'm

too susceptible to germs. I am considering running for public office, and/or

teaching college English. It's not the life I dreamed of, but it's okay. I've

met people from all over the world and found a community to live and work in

that makes me happy. I've found friends and am even dating a man who is

accepting and supportive of my limitations.

The one mantra I have for myself when times get tough is " At least I could

dress myself today. " Sometimes it is all I can do to get through the day.

Keep the faith.

Take care,

Steph in VA

There are MANY people here who are happy, optimistic and seem very well adjusted

about what they are dealing with. I am newly diagnosed, and still haven't found

the right med combo yet, so suffer daily with acute pain and limited mobility.

There are still many days that I spend 22/24 hours in bed sleeping or unable to

move.

I could list all the negatives, like how I've lost my job (and only source of

income) of ten years, and how I struggle to pay for my meds monthly. But I know

that there are so many others out there who are in a much worse situation than

myself.

I guess it's because I am still new to all of this. Maybe I am still in the

mourning period where I long for the way my life used to be? I am not normally

a negative person. I am a realist, but overall....normally very positive. I

hate this feeling of helplessness over this damn disease. I know that I will

find the right med combo and it will make all the difference, but until

then....I am playing the waiting game.

Not feeling sorry for myself.....just feeling helpless.

Thanks for reading...

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

" Never underestimate the power of a small, dedicated group of people to change

the world -- indeed, it's the only thing that ever has. " (Margaret Mead)

AmeriCorps Alums -- We're Still Getting Things Done

__________________________________________________

[Guest guest]

Hi ,

This is Steph in VA. I have been living with arthritis for 5.5 years now. I

am usually pretty positive and optimistic. Don't feel bad that you aren't. I

lived in denial for the first 6 months after I was dx'd. Even when I " accepted "

it, I still believed that my life would go back to normal after finding the

right meds.

In May 2000, I found that right combo, one I'm still one 5 years later.

Sadly, my life has not gone back to the way it was before my arthritis. In fact,

I refer to the onset of my symptoms as when I " got sick " b/c I have a clear

image of who I was before.

Before I got arthritis, I got emotional a lot. If things didn't go as

planned, I flipped out. I was very bossy and felt that if I worked hard enough

at something it would turn out the way I wanted to. It upset me to learn even

taking my meds exactly as prescribed did not mean I would get better.

I am a very detailed oriented person. I used to apply it to my school work

and activism projects. Now I apply it to my medical life. I know the names of

every doctor that has treated me (22 at last count), the names & side effects of

every drug, every test I've taken and every arthritis study drug that has shown

promise.

Regarding paying for drugs, have you tried patient assistance programs given

through the manufacturers? I was unemployed for 4 months and received Remicade

free from Centocor, the manufacturer, for the entire time.

I still have periods of self pity and sadness/anger over the life I

planned. I was originally going to be a high school English teacher but now I'm

too susceptible to germs. I am considering running for public office, and/or

teaching college English. It's not the life I dreamed of, but it's okay. I've

met people from all over the world and found a community to live and work in

that makes me happy. I've found friends and am even dating a man who is

accepting and supportive of my limitations.

The one mantra I have for myself when times get tough is " At least I could

dress myself today. " Sometimes it is all I can do to get through the day.

Keep the faith.

Take care,

Steph in VA

There are MANY people here who are happy, optimistic and seem very well adjusted

about what they are dealing with. I am newly diagnosed, and still haven't found

the right med combo yet, so suffer daily with acute pain and limited mobility.

There are still many days that I spend 22/24 hours in bed sleeping or unable to

move.

I could list all the negatives, like how I've lost my job (and only source of

income) of ten years, and how I struggle to pay for my meds monthly. But I know

that there are so many others out there who are in a much worse situation than

myself.

I guess it's because I am still new to all of this. Maybe I am still in the

mourning period where I long for the way my life used to be? I am not normally

a negative person. I am a realist, but overall....normally very positive. I

hate this feeling of helplessness over this damn disease. I know that I will

find the right med combo and it will make all the difference, but until

then....I am playing the waiting game.

Not feeling sorry for myself.....just feeling helpless.

Thanks for reading...

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

" Never underestimate the power of a small, dedicated group of people to change

the world -- indeed, it's the only thing that ever has. " (Margaret Mead)

AmeriCorps Alums -- We're Still Getting Things Done

__________________________________________________

[Guest guest]

I was in nursing school when I got sick. As it turned out I could not work at

all, barely finished school- and while I was in school cuz we depserately needed

me to have a better income- it turned out I could not manage to work as a nurse

after all. I cannot work period for now. We were totally blown away, my

husband is disabled as are 2 of our 3 kids- I was SO scared.

BUT- now I get soc sec and I am home- instead of working double shifts every day

and weekends and holidays to take care of us financially, I am now HERE home

with my ill husband and kids. I am now more available to them than I ever was.

This has helped them do better with their illnesses. It has also given us time

I never could find before.

My best friend died in March, she was 35, had 2 kids, diagnosed with MS 10 years

ago and melanoma 2 years ago. While I was not much help with her care- I was

able to sit with her hours on end, days on end the last 2 years.

I was forced to slow down and repriotize things- and while some days I will sit

here and be so scared of my future and my kids future etc- or I fear the pain or

I wonder now how am I gonna get those clothes on my body or comb my hair today-

other days I think wow- I have been given a gift of time with my husband and

kids.

- In , DeNicola <stephdenicola@y...> wrote:

> Hi ,

> This is Steph in VA. I have been living with arthritis for 5.5 years now.

I am usually pretty positive and optimistic. Don't feel bad that you aren't. I

lived in denial for the first 6 months after I was dx'd. Even when I " accepted "

it, I still believed that my life would go back to normal after finding the

right meds.

> In May 2000, I found that right combo, one I'm still one 5 years later.

Sadly, my life has not gone back to the way it was before my arthritis. In fact,

I refer to the onset of my symptoms as when I " got sick " b/c I have a clear

image of who I was before.

> Before I got arthritis, I got emotional a lot. If things didn't go as

planned, I flipped out. I was very bossy and felt that if I worked hard enough

at something it would turn out the way I wanted to. It upset me to learn even

taking my meds exactly as prescribed did not mean I would get better.

> I am a very detailed oriented person. I used to apply it to my school work

and activism projects. Now I apply it to my medical life. I know the names of

every doctor that has treated me (22 at last count), the names & side effects of

every drug, every test I've taken and every arthritis study drug that has shown

promise.

> Regarding paying for drugs, have you tried patient assistance programs

given through the manufacturers? I was unemployed for 4 months and received

Remicade free from Centocor, the manufacturer, for the entire time.

> I still have periods of self pity and sadness/anger over the life I

planned. I was originally going to be a high school English teacher but now I'm

too susceptible to germs. I am considering running for public office, and/or

teaching college English. It's not the life I dreamed of, but it's okay. I've

met people from all over the world and found a community to live and work in

that makes me happy. I've found friends and am even dating a man who is

accepting and supportive of my limitations.

> The one mantra I have for myself when times get tough is " At least I could

dress myself today. " Sometimes it is all I can do to get through the day.

> Keep the faith.

>

> Take care,

> Steph in VA

>

> There are MANY people here who are happy, optimistic and seem very well

adjusted about what they are dealing with. I am newly diagnosed, and still

haven't found the right med combo yet, so suffer daily with acute pain and

limited mobility. There are still many days that I spend 22/24 hours in bed

sleeping or unable to move.

>

> I could list all the negatives, like how I've lost my job (and only source of

income) of ten years, and how I struggle to pay for my meds monthly. But I know

that there are so many others out there who are in a much worse situation than

myself.

>

> I guess it's because I am still new to all of this. Maybe I am still in the

mourning period where I long for the way my life used to be? I am not normally

a negative person. I am a realist, but overall....normally very positive. I

hate this feeling of helplessness over this damn disease. I know that I will

find the right med combo and it will make all the difference, but until

then....I am playing the waiting game.

>

> Not feeling sorry for myself.....just feeling helpless.

>

> Thanks for reading...

>

>

>

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> " Never underestimate the power of a small, dedicated group of people to change

the world -- indeed, it's the only thing that ever has. " (Margaret Mead)

>

> AmeriCorps Alums -- We're Still Getting Things Done

>

>

>

>

> __________________________________________________

>

[Guest guest]

I was in nursing school when I got sick. As it turned out I could not work at

all, barely finished school- and while I was in school cuz we depserately needed

me to have a better income- it turned out I could not manage to work as a nurse

after all. I cannot work period for now. We were totally blown away, my

husband is disabled as are 2 of our 3 kids- I was SO scared.

BUT- now I get soc sec and I am home- instead of working double shifts every day

and weekends and holidays to take care of us financially, I am now HERE home

with my ill husband and kids. I am now more available to them than I ever was.

This has helped them do better with their illnesses. It has also given us time

I never could find before.

My best friend died in March, she was 35, had 2 kids, diagnosed with MS 10 years

ago and melanoma 2 years ago. While I was not much help with her care- I was

able to sit with her hours on end, days on end the last 2 years.

I was forced to slow down and repriotize things- and while some days I will sit

here and be so scared of my future and my kids future etc- or I fear the pain or

I wonder now how am I gonna get those clothes on my body or comb my hair today-

other days I think wow- I have been given a gift of time with my husband and

kids.

- In , DeNicola <stephdenicola@y...> wrote:

> Hi ,

> This is Steph in VA. I have been living with arthritis for 5.5 years now.

I am usually pretty positive and optimistic. Don't feel bad that you aren't. I

lived in denial for the first 6 months after I was dx'd. Even when I " accepted "

it, I still believed that my life would go back to normal after finding the

right meds.

> In May 2000, I found that right combo, one I'm still one 5 years later.

Sadly, my life has not gone back to the way it was before my arthritis. In fact,

I refer to the onset of my symptoms as when I " got sick " b/c I have a clear

image of who I was before.

> Before I got arthritis, I got emotional a lot. If things didn't go as

planned, I flipped out. I was very bossy and felt that if I worked hard enough

at something it would turn out the way I wanted to. It upset me to learn even

taking my meds exactly as prescribed did not mean I would get better.

> I am a very detailed oriented person. I used to apply it to my school work

and activism projects. Now I apply it to my medical life. I know the names of

every doctor that has treated me (22 at last count), the names & side effects of

every drug, every test I've taken and every arthritis study drug that has shown

promise.

> Regarding paying for drugs, have you tried patient assistance programs

given through the manufacturers? I was unemployed for 4 months and received

Remicade free from Centocor, the manufacturer, for the entire time.

> I still have periods of self pity and sadness/anger over the life I

planned. I was originally going to be a high school English teacher but now I'm

too susceptible to germs. I am considering running for public office, and/or

teaching college English. It's not the life I dreamed of, but it's okay. I've

met people from all over the world and found a community to live and work in

that makes me happy. I've found friends and am even dating a man who is

accepting and supportive of my limitations.

> The one mantra I have for myself when times get tough is " At least I could

dress myself today. " Sometimes it is all I can do to get through the day.

> Keep the faith.

>

> Take care,

> Steph in VA

>

> There are MANY people here who are happy, optimistic and seem very well

adjusted about what they are dealing with. I am newly diagnosed, and still

haven't found the right med combo yet, so suffer daily with acute pain and

limited mobility. There are still many days that I spend 22/24 hours in bed

sleeping or unable to move.

>

> I could list all the negatives, like how I've lost my job (and only source of

income) of ten years, and how I struggle to pay for my meds monthly. But I know

that there are so many others out there who are in a much worse situation than

myself.

>

> I guess it's because I am still new to all of this. Maybe I am still in the

mourning period where I long for the way my life used to be? I am not normally

a negative person. I am a realist, but overall....normally very positive. I

hate this feeling of helplessness over this damn disease. I know that I will

find the right med combo and it will make all the difference, but until

then....I am playing the waiting game.

>

> Not feeling sorry for myself.....just feeling helpless.

>

> Thanks for reading...

>

>

>

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> " Never underestimate the power of a small, dedicated group of people to change

the world -- indeed, it's the only thing that ever has. " (Margaret Mead)

>

> AmeriCorps Alums -- We're Still Getting Things Done

>

>

>

>

> __________________________________________________

>

[Guest guest]

Hi Peggy,

How I stay postive, is that I had a postive role models. I remember my grandma

(who died before she knew what was really wrong with her, for she only thought

that she had Polio) walking around in sheer determination. My father after he

was diagnosed (which was a month after me as I was the first in the family)

continued to live his life as he always did.

At the age of 15 I was forced (bless them for doing it) by my parents to get a

job. I was shown that no matter what happens it is what you do with you life

that counts. I was diagnosed at the of 11 give or take a year, and I have seen

that if I maintain a stick to it-ness then I do okay. My trick though that I

have learned out of what-ever you want to call it, is through humor.

My humor about my CMT is a special gift that was given to me by (at least in my

belief) God. I know it sounds strange to say that I laugh at the CMT but I do.

Oh don't get me wrong for I get frustrated and even angry at it. I get angry

because I am loosing my father to CMT as it has affected the diaphram in my

father, but then again I try to treasure every moment I can.

I get frustrated when I can't do the little things anymore that I use or because

I do something that means so much to me anymore. I do find humor in the falls

that I take. Strange I know but hey someone has to test how hard or soft the

ground it for the children. If I fall in the yard then I was on the hunt for

the gopher holes so that they can be covered up.

When I worked at a local fast food place as a teenager (I am 34 now) if I fell

the managers got to the point when they knew that there was too much grease on

the floor. I am also stubborn to the point to where my ortho wants to strangle

me at times.

I know that I am blessed that I am still in the mild area of CMT for I refuse to

wear AFOs, and I refuse to have my ankles fused, both of which I get constant

lectures taht I should do one or the other for the sake of my feet. I have had

only two operations and don't know if I will agree to have more down the road.

Life is hard with CMT there is no denying that and I never would say that it is

easy. I can't do the things that I use to enjoy a great deal in the way I did

them but I learned that trial and error how to still do some of them in a

different way.

Maybe you can try laughter the next time you fall. When asked if you are

alright, simply say, " Yes, but this patch of the floor is too hard so maybe you

should try softening it. " People look at you strange for a minute but then they

usually laugh.

I hope this helps some and if you ever want you can email me

JaRae

[Guest guest]

Gretchen,

I too walked own that road and it's refreshing to be able to hear from somebody

who has CMT and had to walk it. I have been on the same " spiritual road " for

about 2 years now. I was mad at what I now call my spiritual connection " (I know

corny, but some people get very turned off by the word God. Also, my concept of

God may be completely different from the " norm " .

Anywho, I was very angry, and I ran & hid. Drugs & alcohol make very good

hedges, for a while. The only people that I thought would like me were people

who did the same things. I didn't try other routes. I didn't WANT too.

Now, I'm trying alot of the things you listed myself (minus the motivational

speakers).

The important one is to make sure to take care of yourself as a whole. Otherwise

I have a tendancy to focus on the problem instead of looking for solutions.

Anyway, I'd just like to reiterate how I appreciate what you wrote. I too go to

a 12 step program, but it's hard to talk to others who don't seem to understand.

Dave

[Guest guest]

Hi Peggy,

I understand how you feel.I'm 48 and I have had my up's and

downs.Think everybody does,I look at it this way. It is like when

you have a child, they don't come with rules books and CMT sure

didn't come with a rule book. So what I do is make up the rules as I

go along.(lol) The nice thing about that is your never wrong and you

can change them whenever you want.Nothing is in stone.(lol)

I don't look at the way CMT is 'getting me'.I try to find ways to

get 'it'. Some work some don't.If it doesn't work well then back to the drawing

board.(lol) It is fun concoring somethings.

I wear AFOs on both feet also.It was hard at first because I

was 30 when I got them.I was as mad as he**.I was not going to

beable to wear my dress anymore and boy that got to me.Then I

thought it was ok because there was alot of nice dress pants out

there.I can do this.

I feel alot of times it is just a blow to you at first but once you get a chance

to think about it you can see another side to things.

My hands are now starting to do their own thing.But that is ok

because they don't know what kind of fight there in for.(lol)

I was dealt this crappy hand at birth.But I'm going to made

sure I deal myself a better hand every morning.To me I feel I have

to be the stronger person here.

So I take the bull by the horns and run like he** with him.Well I hope this

helped you see how I deal with CMT and stay positive.

But it is really up to the individual person.So all you can do

is do your best and be the best you want to be.I put my standards

high and live up to them every day.

Sherry

[Guest guest]

Right on Gretchen...as you know I too belong to a 12 step recovery program.

Spirituality is the main stay of the program. All I/we need to know is that

there is some form of higher power, who I prefer to call God, and who is in

charge of my life.

Soon it will be April 12, 2006 and I will be celebrating my 20th year in my

12 step group. I start each and every day the same way now, and I know I can

start my day over if need be. It can be found on page 63 of the " Big Book " .

As Gretchen said it does have something to do with God, so if you don't want

to read the rest simply delete this now.

My day starts with this simple prayer...God, I offer myself to Thee - - to

build with me and to do with me as Thou wilt. Relieve me of the bondage of

self, that I may better do Thy will. Take away my difficulties, that victory

over them may bear witness to those I would help of Thy Power, Thy Love, and

Thy Way of life. May I do Thy will always! "

Gretchen.....I think by doing all the things you have listed and my going

down a " spiritual road " we can maintain a positive outlook on life.

Thanks Gretchen for being there for us! You always amaze me!

[Guest guest]

Peggy:

I just laugh at the weird things my body does all by itself. I know I

don't make all those bonehead moves. The wall jumps out at me, the

corner of the bed was never where is when I stub my toe (again, and

there are at least sixty mild earth tremors underfoot that no one else

feels.

I feel we colonials are more twisted because we don't have as much

Vegemite or Marmite as you Brits do.

Larry

[Guest guest]

Oh I like that a lot. I might just have to start using some of those excuses

myself for I can't keep testing to see how hard or soft the ground is LOL

JaRae

[Guest guest]

Thanks to all who have sent their 'positive thoughts' most of the time. I do

laugh when I fall etc - like " who put that there " when nothing was there, and

" I'm bouncing better lately " when I fall, so I apologize if I came across as a

down spirited person as normally I am not.

Folks at work could not believe how positive I was, but we all now we have our

down days and the other day was one of mine.

I do believe there is something out there, call it or who whatever, but

certainly whatever is out there we should and I'm sure we all do thank

'whatever' each day that we have our lives and family and able to express

ourselves as we can and certainly to Gretchen for all the hard work and time

she puts in to this.

And ps Larry not many of us like Marmite ha ha

Love to all and thank you for being there.

Jill (peggy)

[Guest guest]

I can only speak for myself here. I try to take it one day at a time. This process can be high stress because you don't see results quickly with these problems. Sometimes things can suddenly amaze you and you realize you are making some progress, but it is incredibly slow most of the time and very discouraging.

The Serenity Prayer helps: God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.

I need to take my own advice here too... my sister crossed over in January and my younger brother is preparing to do so.

God bless all of you.

How do you stay positive?

Right now I am to the point of getting so depressed. Each time I think I am getting better and have a couple days of real improvement, suddenly the bugs are back worse than before. This is so maddening and it makes me want to give up. So many of you on this board are SO helpful and stay positive. JUST HOW DO YOU DO THIS? What keeps you going? I have taken note of all the environmental and physical things...and thank you all for your advice...but how do you hande the emotional/mental struggles????Thanks,Taz

[Guest guest]

Dear Taz!This tears you down totally and I agree, it´s hard to stay positive and I haven´t been able to for a long time. Just like everyone says, in better periods it´´s easier but to get the problem fully going on a week later really messes you up. (at least me..)I guess it´s only my children that makes me stand up at all. I have to...If it weren´t for them I guess I would be living at different places every week trying to get rid of this. Prepared to do anything. And the doctors ignorance and awful attitude can get anyone depressed, when you hear them advicing for psychiatry, when it´s a physical problem, just because they don´t know what to do. Sorry, but my worst enemy except the bugs are those unhelping persons calling

themselves doctors...Well getting positive engergy from this site is a good thing.All the best!CeciliaFrom: Doris Kennedy <kean2465@...>bird mites Sent: Fri, February 18, 2011 1:58:15 PMSubject: Re: How do you stay positive?

Yes - that is the dilema, as soon as I think I have gained on them and feeling a little cocky - BOOM - back again!!

It's is just an ongoing battle, clear them at home and bring them back from work or the car.

From: Mabel Muriel <tazmaniacaboy@...>bird mites Sent: Thu, February 17, 2011 9:21:01 PMSubject: How do you stay positive?

Right now I am to the point of getting so depressed. Each time I think I am getting better and have a couple days of real improvement, suddenly the bugs are back worse than before. This is so maddening and it makes me want to give up. So many of you on this board are SO helpful and stay positive. JUST HOW DO YOU DO THIS? What keeps you going? I have taken note of all the environmental and physical things...and thank you all for your advice...but how do you hande the emotional/mental struggles????Thanks,Taz

[Guest guest]

,

I am sorry to hear about your brother. How many siblings do you have?

Love and light,

From: Goldstein@... <Goldstein@...>Subject: Re: How do you stay positive?bird mites Date: Friday, February 18, 2011, 5:51 AM

I can only speak for myself here. I try to take it one day at a time. This process can be high stress because you don't see results quickly with these problems. Sometimes things can suddenly amaze you and you realize you are making some progress, but it is incredibly slow most of the time and very discouraging.

The Serenity Prayer helps: God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.

I need to take my own advice here too... my sister crossed over in January and my younger brother is preparing to do so.

God bless all of you.

How do you stay positive?

Right now I am to the point of getting so depressed. Each time I think I am getting better and have a couple days of real improvement, suddenly the bugs are back worse than before. This is so maddening and it makes me want to give up. So many of you on this board are SO helpful and stay positive. JUST HOW DO YOU DO THIS? What keeps you going? I have taken note of all the environmental and physical things...and thank you all for your advice...but how do you hande the emotional/mental struggles????Thanks,Taz

[Guest guest]

Thanks all for your responses. Yesterday was really bad, today is much better,

tomorrow....who knows? Yes, day at a time, sometimes it needs to be ONE HOUR AT

A TIME.

Blessings to all of you.

- Taz

>

> Dear Taz!

> This tears you down totally and I agree, it´s hard to stay positive and I

> haven´t been able to for a long time. Just like everyone says, in better

periods

> it´´s easier but to get the problem fully going on a week later really

messes

> you up. (at least me..)

> I guess it´s only my children that makes me stand up at all. I have to...

> If it weren´t for them I guess I would be living at different places every

week

> trying to get rid of this. Prepared to do anything.

> And the doctors ignorance and awful attitude can get anyone depressed, when

you

> hear them advicing for psychiatry, when it´s a physical problem, just

because

> they don´t know what to do. Sorry, but my worst enemy except the bugs are

those

> unhelping persons calling themselves doctors...

> Well getting positive engergy from this site is a good thing.

> All the best!

> Cecilia

>

>

>

> ________________________________

> From: Doris Kennedy <kean2465@...>

> bird mites

> Sent: Fri, February 18, 2011 1:58:15 PM

> Subject: Re: How do you stay positive?

>

>

> Yes - that is the dilema, as soon as I think I have gained on them and feeling

a

> little cocky - BOOM - back again!!

> It's is just an ongoing battle, clear them at home and bring them back from

work

> or the car.

>

>

>

>

> ________________________________

> From: Mabel Muriel <tazmaniacaboy@...>

> bird mites

> Sent: Thu, February 17, 2011 9:21:01 PM

> Subject: How do you stay positive?

>

>

> Right now I am to the point of getting so depressed. Each time I think I am

> getting better and have a couple days of real improvement, suddenly the bugs

are

> back worse than before.

>

>

> This is so maddening and it makes me want to give up. So many of you on this

> board are SO helpful and stay positive. JUST HOW DO YOU DO THIS? What keeps

you

> going?

>

>

> I have taken note of all the environmental and physical things...and thank you

> all for your advice...but how do you hande the emotional/mental struggles????

>

> Thanks,

> Taz

>

[Guest guest]

We had 6, but 2 have now crossed over. One brother will be soon. Very hard right now.

Thanks !

How do you stay positive?

Right now I am to the point of getting so depressed. Each time I think I am getting better and have a couple days of real improvement, suddenly the bugs are back worse than before. This is so maddening and it makes me want to give up. So many of you on this board are SO helpful and stay positive. JUST HOW DO YOU DO THIS? What keeps you going? I have taken note of all the environmental and physical things...and thank you all for your advice...but how do you hande the emotional/mental struggles????Thanks,Taz

[Guest guest]

> Thanks all for your responses. Yesterday was really bad, today is much

better, tomorrow....who knows? Yes, day at a time, sometimes it needs to be ONE

HOUR AT A TIME.

>

> Blessings to all of you.

>

> - Taz

Hey Taz,

I'm a bit late, but...

I use Jeff Dunhams DVD's, laughing at myself, looking for galaxy's in the night

sky, meditation, inspiring books (I love Livingston Seagul), Wayne

Dyers books, Music…

BUT, the most important thing I am using is EFT, by Craig. You can get the

free mini-manual at this address:

http://www.eftuniverse.com/index.php?option=com_subscribe & Itemid=17

or look for " get started for free " at http://www.eftuniverse.com/

I was introduced to EFT in 2007 and only began to use it in March 2010 for about

a month. Then in Oct 2010 I found a psychologist that has been using EFT for 11

years. Well the EFT sequence that he taught me has been fabulous and extremely

effective. My path for the last 7 months has been pretty harsh but the EFT

keeps helping me re-ground myself emotionally. Over christmas and new years my

depression\fog was pretty strong and doing 1 round of EFT, on my own, ended that

depresssion. I was like " hey I havent felt this good for about 2 weeks " , it

cleared the depression right out.

I like to think of EFT as my personal emotional life preserver. I can use it on

anything that is emotionally difficult\painful… and I become free of that anger,

fear, depression or whatever irritating thing that is in my mind. Doing a

single round of EFT, takes less than 3 minutes. Sometimes I get immediate

relief and sometimes it takes 20 mins - several hours for the emotional thing to

clear. EFT is a technique that is created for the end user (me, you, anyone) to

respond to the emotional ouches that arrive each day of our lives.

Other thing about EFT. Over the years doing my research I have found a couple

people that have cured their Morgellons and one of the things they both were

using, was EFT.

My own journey, 3.5 yrs Al-anon, 7 years AA, 5 years in a meditation group, 3

therapist's and now the EFT with the 3rd therapist. And I gotta say that EFT is

one of the 2, best tools that I have in my pocket. The other thing is a

meditation technique that I use to create peace & happiness, that one works most

all the time.

So Taz, be bold and make an investment in your emotional future. Don't wait 3

years like I did. If you do down load the free info, Email me for a different

sequence than is in the book. The one my therapist taught me is more effective

than the one in the book or the free E-book.

Have fun and be well

Green

P.S. I'm sorry to read of your loss. May your sister be at peace.