Re: To -- A Good Day

[Guest guest]

:

How wonderful!!!! I hope you printed out your post -- it would be great to read

on the not-so-good days! Sorry I'm so late in posting but I've really gotten

behind on reading my posts!! (I started out with 258 today and am down to

150!!!). I'm so glad Anne is having a better year at school -- it makes life so

much easier. 's year has started out good. I wrote down expectations I

have for his teacher and gave them to her. He needs to become more independent,

responsible and use to doing homework every night before leaping into middle

school next year. At first he complained about the homework, but I explained to

him the teacher is doing it in order to prepare him for MS so he won't be so

overwhelmed. He even had to get glasses due to a side effect from his

combination of Clomipromine and Risperdal -- his focusing muscle in his eye is

having spasms. Don't be alarmed ( I know Anne takes Risperdal), seems to

be VERY sensitive to meds and rare side effects; but this is the lesser of the 2

evils for (and family!!!).

Sorry for my babbling, but I haven't posted in a long time and I've missed the

last 4 chats -- it's going to be a must this Sunday!! You should join us.

Tamra

Re: A Good Day

Hi everyone,

I hope it's o.k. if I gloat a bit (I've never written that word

before - is that even how you spell it?). I had one of those days that can

convince you that there are lots of good people in the world. It started with

Annie's teacher stopping me to ask if everything was going well, is there

anything she could do differently, any questions I have, etc. Then a few

hours later the school nurse called to check on how things are going with

Annie (she reads the new health forms every fall and calls anyone who might

be having trouble). She spent half an hour on the phone discussing all kinds

of things, and said if I wanted to do a child study on Annie but not

formalize it as a 504 or IEP (which Annie does NOT want) we could do that -

just have all the relevant staff meet and discuss how to make Annie's school

life easier. She said she'd be more than happy to meet with the teacher and

tell her what she knows about OCD/ADD/tics in schools, she'd meet with me if

I wanted, etc. She made sure I had her direct number to call her anytime I

have questions. Wow. Then we went to our psychiatrist's appointment and he,

too, took extra time to talk with us, showed Annie a pamphlet he'd written

all about tics, went over every aspect of her life that we might need to

discuss. He stressed (again) that he wanted to be thought of as one of the

" circle of people " supporting her to adulthood and that he would always be

willing to come to her school and talk with people, etc. Wow again.

At the end of this day I feel like there are so many wonderful

people out there who really care. I only wish they were everywhere! I still

remember how awful it was to live in a place where I couldn't get ANYONE to

spend five minutes to listen to our problems, much less treat them.

So my thoughts for this evening are all about why everyone can't be

treated this way. After all, noone DID anything today except listen to me and

offer support. Really, how hard is that??

Best wishes to all of you,