kids and daytime headaches

March 23, 2006

HI everyone:

I have a question about headaches. Do any of the CMT kids out there get daytime

headaches? Gavin started about 5 weeks ago, for one week it was almost daily

(we thought it was part of a flu), but it has kept happening and is sometimes 3

x a week, sometimes less, some more. Is this how problems with the phrenic

nerve first manifest? Is he too young to have this happen?

We've made an appt with his pediatrician to rule out other causes first...but

it's definately making me wonder. He wakes up alot at night, breathes very

loudly when sleeping and claims that he 'sleeps and wakes up, sleeps and wakes

up' all night' He may just be a light sleeper....

Thanks

Sally

March 24, 2006

Sally,

I have 2 kids both with CMT that get headaches. My nephew without CMT also gets

headaches. Maybe they just run in our family?

I was told that Spencer's brain looked great in an MRI. Both kids get headaches

about 3 or 4 times a week. Caffeine and Imitrex help

Spencer. For I think she has more of an eye strain headache.

March 24, 2006

Allergies also give me headaches. They can also cause

coughing/breathing issues when they trigger my asthma. I get it

more at night (with feather pillows or dust or pollens or molds)

because I can be lying right near the trigger. I get to wheezing,

coughing, and having trouble sleeping if it's really bad. Anything

pollinating right now in your area?

Good luck,

Lenka

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