Re: Brace pushing ribs out in front, flattening in back

January 23, 2008

is in clinic today, so she told us she may not call us back until

Tomorrow, just so you know.

I really think I'd just leave it off and wait for the casting. I don't

think it will be so bad waiting a month, but you have to trust your own gut.

They'll do amazing things on the AMIL table with the cast - it's taken a

few to get Jack's ribs looking symmetrical again, but they really do in this

cast!!

Love

Sandi

January 23, 2008

Aack! Did they do the mushroom cut out in the front? Is there a window cut out

in the back? The window is essential in flattening the ribhump while allowing

the ribs on the window side to return to a more normal state. If the cutouts in

the front of the brace are not done properly, I would be concerned about rib

cage deformity.

I don't know what to tell you...definitely get Dr. K's opinion. Maybe you can

even email him some pictures.

Be sure to let us know what he says.

Noelle (12-2-01)

Ian (8-15-04)

Brace pushing ribs out in front, flattening in

back

Hello,

This is a question for anyone that has had a child in a brace before

casting. Finn received his brace three weeks ago and has been

wearing it for at least 19 hours a day since he got it. The brace

was molded using a Risser table and they tried to get as much

correction in it as they could. He has the rib hump in the back, but

I have never been told what his rib rotation was. I don't think they

even measured it (Shriners Tampa). Now that he has been in the brace

for about three weeks, it seems his hump in the back is now pushing

out the front. The back is flatter. Is this what is suppose to

happen? It doesn't look right to me. We are going for casting with

Dr Khoury on Feb 28th but a lot could happen in that time. I called

Shriners and (Dr Khoury's nurse)but have not heard a

response. Finn has had a recent growth spurt also so I don't want to

take him out of the brace if he will curve more. He has a 60degree

curve out of brace and a 40degree curve in brace.

Any advice??

January 23, 2008

I just remembered it is clinic day. I am going to do without the brace. It seems

to be doing more harm than good. Finn doesn't hold his head up in the brace

either and reverts back to his severe Torticollis position. Out of brace he is

doing pretty well holding his head normally.

We see a chiropractor and PT a couple of times a week so I think we can hold

on till February without the brace, especially since it seems to be a set back.

" *\\o/* San *\\o/* " wrote:

is in clinic today, so she told us she may not call us back

until

Tomorrow, just so you know.

I really think I'd just leave it off and wait for the casting. I don't

think it will be so bad waiting a month, but you have to trust your own gut.

They'll do amazing things on the AMIL table with the cast - it's taken a

few to get Jack's ribs looking symmetrical again, but they really do in this

cast!!

Love

Sandi

January 23, 2008

,

Have you contacted Shriners Tampa are they the ones who made the

brace?

>

> Hello,

>

> This is a question for anyone that has had a child in a brace

before

> casting. Finn received his brace three weeks ago and has been

> wearing it for at least 19 hours a day since he got it. The brace

> was molded using a Risser table and they tried to get as much

> correction in it as they could. He has the rib hump in the back,

but

> I have never been told what his rib rotation was. I don't think

they

> even measured it (Shriners Tampa). Now that he has been in the

brace

> for about three weeks, it seems his hump in the back is now

pushing

> out the front. The back is flatter. Is this what is suppose to

> happen? It doesn't look right to me. We are going for casting with

> Dr Khoury on Feb 28th but a lot could happen in that time. I

called

> Shriners and (Dr Khoury's nurse)but have not heard a

> response. Finn has had a recent growth spurt also so I don't want

to

> take him out of the brace if he will curve more. He has a 60degree

> curve out of brace and a 40degree curve in brace.

>

> Any advice??

>

January 23, 2008

Hi ,

explained that well, and gave good advice. Definately, pose the

question to Khoury. Sounds like your going with gut on this one, and

thats probably the best thing to do. You can access the situation best,

since you're the mum and can see that the brace might not be doing a good

job. I remeber when my daughter Olivia was around 4/5 and wearing a

brace...The brace did ~not~ have the right windows and I could see that

her ribs were beginning to flare out of the tummy hole! I had to insist

that the orthotist in our area added a leather covering over the tummy

hole, to stop the ribs from flaring out of the hole. I can still see her

flared ribs (5 yrs later) and I know that this is what caused it. Dont

mean to alarm you or anyone on the group. Just sharing our experience.

Let us know what happens and welcome to the group!

HRH

> Aack! Did they do the mushroom cut out in the front? Is there a window

> cut out in the back? The window is essential in flattening the ribhump

> while allowing the ribs on the window side to return to a more normal

> state. If the cutouts in the front of the brace are not done properly, I

> would be concerned about rib cage deformity.

>

> I don't know what to tell you...definitely get Dr. K's opinion. Maybe you

> can even email him some pictures.

>

> Be sure to let us know what he says.

>

> Noelle (12-2-01)

> Ian (8-15-04)

> Brace pushing ribs out in front,

> flattening in back

>

> Hello,

>

> This is a question for anyone that has had a child in a brace before

> casting. Finn received his brace three weeks ago and has been

> wearing it for at least 19 hours a day since he got it. The brace

> was molded using a Risser table and they tried to get as much

> correction in it as they could. He has the rib hump in the back, but

> I have never been told what his rib rotation was. I don't think they

> even measured it (Shriners Tampa). Now that he has been in the brace

> for about three weeks, it seems his hump in the back is now pushing

> out the front. The back is flatter. Is this what is suppose to

> happen? It doesn't look right to me. We are going for casting with

> Dr Khoury on Feb 28th but a lot could happen in that time. I called

> Shriners and (Dr Khoury's nurse)but have not heard a

> response. Finn has had a recent growth spurt also so I don't want to

> take him out of the brace if he will curve more. He has a 60degree

> curve out of brace and a 40degree curve in brace.

>

> Any advice??

>

January 24, 2008

Hi ,

Thanks for the information. I talked with the orthotist today that made his

brace and he said to come back in and he would " blow out " the areas of concern.

I also talked with from Dr Khoury's office and she said to take it back

to the brace shop. She said she would like him to stay in the brace if possible

and that I should not be to worried because the brace would not deform his ribs

between now and February 27th when I see them. I am going to watch it very

closely. I get very frustrated because there are so many conflicting opinions. I

will be very happy when we go to our Clinic appointment and from then on, I can

rely on Dr Khoury, who is very experienced in IS.

Thanks,

teresa

heather@... wrote: