My Introduction

[Guest guest]

Hello CMT Group:

I'm Donna , 54, Type 2 (no DNA test, clinical evaluation), native Dallas

Texan and temporarily living in Anaheim, CA, with husband of 22 yrs. who is a

consultant who has been accepting contract jobs anywhere. (Yes, I've been to

Universal Studios and Disneyland, let's hear it for scooter power!) He left

Alcatel where he worked for two years and went to Cisco Networks and after two

years they had the major downsizing when the IT business bombed and took a lot

of jobs overseas. It has led to our selling our home, storing all of our

belongings and going wherever the jobs lead. This lifestyle has been very

stressful for me. Being dependent Luckily, we didn't have children, only Yogi

our dog and since I married at 33 and he was 40 I didn't have to struggle or

debate the children issue, children were not part of our future. The hotel room

is ADA accessible, but we all know we have to do our own modifications. I drove

my van behind him to Tinton Falls, NJ, then to Clearwater,

FL, and now we're in Anaheim. I don't want to do that again! I'm praying

that he'll get a full time position soon so we can settle but who knows what

will happen. I'm enjoying the adventure but wondering if I'll ever get my

things out of storage! Well, you all can understand my frustrations. I miss

home and all my family.

Yes, I've been in and out of groups and newsletter lists. I know

Crabtree and Gretchen through those media venues over the many years (Hi,

Gretchen and !), I've just not posted. You proably know more about me than

you wanted, but I'm an open book so they say, and I usually let my emotions

flow. Right now in my life and my current lifestyle arrangements, I feel like I

need support in the most urgent way - I need friends. I'll try to be on a

positive slant, I have a lifetime of dealing with CMT, sometimes it's hard. I

did attend a CMT support group Christmas Party in Tustin and hope to see all

again next month. It was a great time and we both had a great time and they

were all so nice to us. I had to leave abruptly and didn't exchange any numbers

or emails and hope to be able to hear from some through this site. The MDA

Coordinator here invited me to the Orange County Christmas Party at the Crystal

Cathedral Art Gallery, but we missed it as we thought it was at

night and it was during the day - - that really upset me as I don't have a

full calendar !

I've gotten medical doctors at UCI at Orange and will see again the MDA doctor

in March. I've seen their PT and Occupational Therapist who both evaluated me

for a new scooter and both said I was a " miracle " in that they don't know how

I've stayed mobile and that they cannot help me. This evaluation and process is

what I want to discuss here. So, without going into anymore details in my

introductory I hope to address issues as topics.

I have posted a few pictures here in my photo album named Donna's Photos.

Please stop in and see me and . I look forward to reading and posting to

this group.