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low tolerance for pain

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,

In an earlier post you said " we CMTers have a high tolerance for

pain " . That generalization does not apply to me, and yes, I have CMT.

Ever since I was a small child, I have experienced the " foot burning "

pain, and can feel it immediately. Fortunately, over the years I have

learned to manage it without medications, but instead with changing

shoes, ice, going barefoot, massage, etc. But I want you to know that

my pain tolerance is very low. Always has been. I am just grateful I

do not have the terrible CMT pain you and others hand.

Even for other CMT related issues - like 'emotional pain'. Even for

non-CMT surgical pain. Even when I sliced my finger (while slicing

vegetables, the pain was major) My pain tolerance is low. It has been

helped by taking Vitamin E for 10 years to the point I feel now I am

more 'normal' in my reaction to physical and even emotional pain.

Again I must say that just because we have CMT, our experiences are

different due to our unique genetic code. I really appreciate your

input into our discussions, but I feel " generalizations " of CMT are

not sharing 'personal experience'.

~ Gretchen

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