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  • 5 years later...
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Well now that my intro is out of the way..I love this website, and have learned

so much. Hopefully some of you will learn from my story.

My Mom says when I was very small I had flat feet that turned in The doc had me

wear arch support shoes and walk on my toes, which I did. I developed beautiful

arches but unfortunately it gave me a very high instep, jammed my ankle bones

together, and shortened my achilles tendon.

I always ran funny, and was awkward. I figured this was normal and attributed my

foot problems to my doctor. When I dropped out of college( what was I thinking,

I almost landed in Vietnam),I became fascinated with Yoga.

I studied for years, lived in some ashrams in Calif.,even became a certified

instuctor, BUT more important, I started doing Yoga 1-3 hours a day. Soon I was

very stretched out, could touch my toes and beyond, and lost much of my

un-cordination. With a veg diet too I felt great. When I started studying Kung

Fu a few years later, my ankles hampered my progress, but I hung in there.

At age 30 when I got married and had kids I worked alot more, and didn't

excercise as much. I couple of decades later, I dropped a cigarette one day and

realized my hands were losing sensitivity. I asked my doc about it and he said

quit smoking.

About ten years later my ankles started to feel like they had broken glass in

them. With the urging of my wife, dear girl, I finally went ot the doc. I guess

I always felt like if I got to be old my ankles would become a problem. We ruled

out arthritis and diabetes, and after looking at my ankles he sent me to an

orthopedic doc.

As soon as he saw my feet he said CMT. I told him he hadn't listened to my story

about my ankles so he sent me to a neuro. He looked and said CMT. I didn't

believe it but the velocity tests confirmed it, and when bloodwork said type 1A

I became a believer.

I am the oldest of 7, and no one else has any symptoms. So now I try mto fit

more excercise in my life, walking and Yoga, which is very old but unique.

Even when poses are held, it is great for circulation, stimulating the endocrine

system and much more! I manage pain with IBU, which I don't take all the time,

and practice disassociating myself from the pain " it's all in the mind you

know "

It works well at the dentist, but is harder with chronic pain. Isn't it funny

how its going DOWN stairs that is so hard, I can still run up them. My wife is

very supportive and wonderful, just impatient with me when I don't do enough to

help myself. I'm trying the vit C therapy, having originaly read that too much

aggravated CMT! So far so good. Enough for today, Thanks to all for input and

GOD BLESS.

G. Olwell III fom Mass.

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