Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 I'm not sure how close you are to the hospital that casted , but it sounds like there needs to be some trimming in various areas. How did the hospital let you leave without checking to see how sits in the carseat? Which hospital casted and which Doctor, if you don't mind me asking? Aekta > > I only have a minute because can't do anything himself. The > post-op today was VERY HARD for us. The staff was great and we were > able to get some great correction. I will post pictures later. > > I need your help regarding your experiences with these problems: The > cast below his tummmy around his hips IS very very tight (I can hardly > get my finger in there) and low. He cannot sit at all. We couldn't > get him in our car seat because it hurt to bend him, or it would cut > off his circulation. He cannot lower his arm because the cast is so > high under the arm....so he just holds it up all the time. He can't > crawl because he can't get him arm over the cast to the floor (because > the cast is so high under the arm). He can stand briefly but it's too > heavy for him and his knees buckle. So, all is left is for him to lay > down and watch TV or for me to hold him. > > He has one strap over one arm, but that seems to be doing okay. > > Help! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 - I'm on dh's blackberry, but definitely have them trim " elipses " on the hips so he can sit up. Jack couldn't do anything in the first either (no crawling) and couldn't balance at all. Same with the arms. It took some time, but he needs to be able to put his arms down and bend at the hips. Any ortho can trim with a cast saw. Usually a resident does it for us, if something comes up after hours. Love to you and your sweet boy. Sandi > I only have a minute because can't do anything himself. The > post-op today was VERY HARD for us. The staff was great and we were > able to get some great correction. I will post pictures later. > > I need your help regarding your experiences with these problems: The > cast below his tummmy around his hips IS very very tight (I can hardly > get my finger in there) and low. He cannot sit at all. We couldn't > get him in our car seat because it hurt to bend him, or it would cut > off his circulation. He cannot lower his arm because the cast is so > high under the arm....so he just holds it up all the time. He can't > crawl because he can't get him arm over the cast to the floor (because > the cast is so high under the arm). He can stand briefly but it's too > heavy for him and his knees buckle. So, all is left is for him to lay > down and watch TV or for me to hold him. > > He has one strap over one arm, but that seems to be doing okay. > > Help! > > > -- Mom to Madison, Skylar, on, Piper, & - diagnosed with infantile scoliosis at 10 months with a 70° right thoracic curve. Currently undergoing serial casting. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Hi , It was the same for my baby, but he got used to it within a week and now he's back to normal. I will say hang in there, give it sometime. It will get better soon. Hugs, e McDowell wrote: I only have a minute because can't do anything himself. The post-op today was VERY HARD for us. The staff was great and we were able to get some great correction. I will post pictures later. I need your help regarding your experiences with these problems: The cast below his tummmy around his hips IS very very tight (I can hardly get my finger in there) and low. He cannot sit at all. We couldn't get him in our car seat because it hurt to bend him, or it would cut off his circulation. He cannot lower his arm because the cast is so high under the arm....so he just holds it up all the time. He can't crawl because he can't get him arm over the cast to the floor (because the cast is so high under the arm). He can stand briefly but it's too heavy for him and his knees buckle. So, all is left is for him to lay down and watch TV or for me to hold him. He has one strap over one arm, but that seems to be doing okay. Help! --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 First off, you need to get it trimmed like everyone else said TODAY. If you're in the same town as the hospital, I " d call back and go there and if not, you'll have to call an orthapedist in your town. We've had to do that, upon returning home. It definately needs to be cut down under the arm and in the hip area. I'd give the tight tummy a day or two, it usually loosens. Good luck.. Hugs, and Evan McDowell wrote: I only have a minute because can't do anything himself. The post-op today was VERY HARD for us. The staff was great and we were able to get some great correction. I will post pictures later. I need your help regarding your experiences with these problems: The cast below his tummmy around his hips IS very very tight (I can hardly get my finger in there) and low. He cannot sit at all. We couldn't get him in our car seat because it hurt to bend him, or it would cut off his circulation. He cannot lower his arm because the cast is so high under the arm....so he just holds it up all the time. He can't crawl because he can't get him arm over the cast to the floor (because the cast is so high under the arm). He can stand briefly but it's too heavy for him and his knees buckle. So, all is left is for him to lay down and watch TV or for me to hold him. He has one strap over one arm, but that seems to be doing okay. Help! --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Aack! It needs to be trimmed. Hopefully you live close by. The armpit area is usually the area that needs additional trimming once they wake up. When they are laying down in the OR, they can't tell how high it will push up until he gets up and walks around. You need to get that fixed asap or he'll end up with sores under his arm. Also, if it is so tight in the hips that it is cutting off circulation then they may need to flare it out a bit. It needs to be tight down there because that is where they get most of the correction, but you can't have it cutting off his circulation. Hopefully you are still there or live close by. It took Ian about two weeks to be able sit in his first cast. It was so much heavier than the other casts (they refined their technique so that the casts got increasing lighter). He did better sitting in chairs with backs on them. We had one of those Fisher Price rockers and that helped him tremendously with sitting out in our living room. Shopping carts were tough the first few weeks too. I usually put a small pillow or I would use the diaper packages if we were buying diapers that day to stuff behind his back. Good luck. My advice is to go back to whichever hospital did the casting and get them to trim it. Noelle (12-2-01) Ian (8-15-04) Help! First cast I only have a minute because can't do anything himself. The post-op today was VERY HARD for us. The staff was great and we were able to get some great correction. I will post pictures later. I need your help regarding your experiences with these problems: The cast below his tummmy around his hips IS very very tight (I can hardly get my finger in there) and low. He cannot sit at all. We couldn't get him in our car seat because it hurt to bend him, or it would cut off his circulation. He cannot lower his arm because the cast is so high under the arm....so he just holds it up all the time. He can't crawl because he can't get him arm over the cast to the floor (because the cast is so high under the arm). He can stand briefly but it's too heavy for him and his knees buckle. So, all is left is for him to lay down and watch TV or for me to hold him. He has one strap over one arm, but that seems to be doing okay. Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 I agree with the others who said you should see about getting the cast trimmed. Maybe you've already done it, but here's our experience, which sounds a lot like yours! My son, Todd, had a similar situation with his arm in the first cast--he kept it up at about a 90degree angle all the time, even while sleeping the first night. We'd stayed in the hotel that first night just to be able to go back the next morning if needed, and Dr Khoury took one look at the arm and had that area of the cast trimmed immediately. Todd's relief was instantaneous. he also had a problem with the bottom of the cast being too tight, but Dr K didn't think it was too tight at first. It's true you have to give it some time to see if the area will toughen up, but we had to go back the following Monday (cast was applied on Thursday) due to a severe sore that had developed in just that short amount of time. they trimmed the one side kind of a lot then to expose the sore and let it heal. We live within driving distance of that hospital, so it was doable though it took the entire day. I don't know what we would have done had we been too far to drive, though. If that's your case, maybe your casting doctor would consult with someone local to do the trimming, just a thought. Good luck with this! And it does get easier, believe me. Todd was miserable at first, but once we got the cast trimmed so that he was no longer in pain, he settled into it pretty much immediately. Until then, we had no idea how we would survive the whole casting process, but once those problems were fixed, it felt better for all of us. Hang in there! Help! First cast I only have a minute because can't do anything himself. The post-op today was VERY HARD for us. The staff was great and we were able to get some great correction. I will post pictures later. I need your help regarding your experiences with these problems: The cast below his tummmy around his hips IS very very tight (I can hardly get my finger in there) and low. He cannot sit at all. We couldn't get him in our car seat because it hurt to bend him, or it would cut off his circulation. He cannot lower his arm because the cast is so high under the arm....so he just holds it up all the time. He can't crawl because he can't get him arm over the cast to the floor (because the cast is so high under the arm). He can stand briefly but it's too heavy for him and his knees buckle. So, all is left is for him to lay down and watch TV or for me to hold him. He has one strap over one arm, but that seems to be doing okay. Help! ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 I agree with what everyone is saying- you need to get it trimmed ASAP. Arms and legs should NOT turn blue or lose circulation even when sitting in a car seat (which they should be able to do I believe). My daughter's cast always is like that when she comes out of recovery and I have to have them trim it under the arms and at the hips. The first time we had them trim it twice to get more room underarm and so that she could be sat up. We then followed the advise of another Mom on here and took a test drive in the car seat before checking out of the hospital. Good thing because one arm was turning blue repeatedly even when we reposisitioned her. So, back in we went and had them trim it a third time. We've done it enough now that I know how far it should be trimmed (Dr. Mehta drew the lines on her cast with a sharpie to show them where to trim on her third cast, so I know trimming it to that point won't jeopardise correction, which is what they worry about in trimming too much off in the hip area). Another note of caution is the sores that can develop on the hip bones. On some casts they can cut out notches like Sandi said so the hip bones aren't rubbing against the cast. We've had it done both ways (whith notches or curved like an M). But at a least, you should be able to bend the child at the waist and get them into a sitting position. You can see pictures of Sophia in her casts in the photos section. Good luck! Tina --------- Help! First cast I only have a minute because can't do anything himself. The post-op today was VERY HARD for us. The staff was great and we were able to get some great correction. I will post pictures later. I need your help regarding your experiences with these problems: The cast below his tummmy around his hips IS very very tight (I can hardly get my finger in there) and low. He cannot sit at all. We couldn't get him in our car seat because it hurt to bend him, or it would cut off his circulation. He cannot lower his arm because the cast is so high under the arm....so he just holds it up all the time. He can't crawl because he can't get him arm over the cast to the floor (because the cast is so high under the arm). He can stand briefly but it's too heavy for him and his knees buckle. So, all is left is for him to lay down and watch TV or for me to hold him. He has one strap over one arm, but that seems to be doing okay. Help! __________________________________________________________ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Thanks for everyone for the advice - very very helpful! It was rough last night, but not as hard as I expected - we got some sleep. It was, I think the 'normal' difficult versus what might be 'abnormal' difficulty that we're having with sitting. We bought a beanbag chair yesterday so he can lay at a slant and watch TV or eat since I can't fit him in his highchair. I am able to sit him briefly in our exersaucer (standing), so that's where we had breakfast. Anyway, so, yes, thank you...and I have called the doctor's office twice this morning and hope that they can see us! Dr. Kishan is only in the office Monday and Thursday, and driving back in the carseat will be a challenge (maybe it will be easier today). Just to clarify about the carseat - we did get him in it, but not like it probably should fit - and we used pillows under his bottom because he would not bend for us. He's still holding up his arm - we'll see what the doctor says. I've tried sitting several times and he really cries...it just seems low to me, but then I'm new at this. If it does need more trimming, will they sedate for that? Please know that Loma hospital staff and Dr. Kishan were absolutely wonderful - and I think they did a great job with the cast, considering 's situation. His curve is very high (T4) with kyphosis, and it's secondary to neuroblasotoma (not idiopathic) - so Dr. Kishan has taken on quite a challenge with us, and I am most grateful! The BEST news is that 's scoliosis went from 55 to 38 degrees!! AND his kyphosis went from 52 to 25!! This was much better than expected!! We just need to figure out how to get him adjusted to it. Question: During the night, was sweating so much I actually changed his shirt. Does anyone have night/sleep-sweating problems? How do you address it? Thanks > > Aack! It needs to be trimmed. Hopefully you live close by. The armpit area is usually the area that needs additional trimming once they wake up. When they are laying down in the OR, they can't tell how high it will push up until he gets up and walks around. You need to get that fixed asap or he'll end up with sores under his arm. Also, if it is so tight in the hips that it is cutting off circulation then they may need to flare it out a bit. It needs to be tight down there because that is where they get most of the correction, but you can't have it cutting off his circulation. Hopefully you are still there or live close by. > > It took Ian about two weeks to be able sit in his first cast. It was so much heavier than the other casts (they refined their technique so that the casts got increasing lighter). He did better sitting in chairs with backs on them. We had one of those Fisher Price rockers and that helped him tremendously with sitting out in our living room. > > Shopping carts were tough the first few weeks too. I usually put a small pillow or I would use the diaper packages if we were buying diapers that day to stuff behind his back. > > Good luck. My advice is to go back to whichever hospital did the casting and get them to trim it. > > > Noelle (12-2-01) > Ian (8-15-04) > Help! First cast > > > I only have a minute because can't do anything himself. The > post-op today was VERY HARD for us. The staff was great and we were > able to get some great correction. I will post pictures later. > > I need your help regarding your experiences with these problems: The > cast below his tummmy around his hips IS very very tight (I can hardly > get my finger in there) and low. He cannot sit at all. We couldn't > get him in our car seat because it hurt to bend him, or it would cut > off his circulation. He cannot lower his arm because the cast is so > high under the arm....so he just holds it up all the time. He can't > crawl because he can't get him arm over the cast to the floor (because > the cast is so high under the arm). He can stand briefly but it's too > heavy for him and his knees buckle. So, all is left is for him to lay > down and watch TV or for me to hold him. > > He has one strap over one arm, but that seems to be doing okay. > > Help! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 If he is sweating a lot, keep your home cooler and don't over dress him. Max usually gets a t-shirt and that's it even with the winters in Wisconsin. With a new baby it's been hard to not to overheat Max and freeze the baby. Atleast wiht the baby I can add covers, with Max, I can't take off layers. If you notice redness in any areas and the skin is still intact, I would recommend putting Aquaphor (vaseline-like made by Eucerin found in the lotion aisle of your drug store) on the area to help heal the skin. We always end up using it. I hope you have answers by now from your doctor. Wishing you all the best.It does get easier with each cast. The first one is the hardest. Aekta > > > > Aack! It needs to be trimmed. Hopefully you live close by. The > armpit area is usually the area that needs additional trimming once > they wake up. When they are laying down in the OR, they can't tell > how high it will push up until he gets up and walks around. You need > to get that fixed asap or he'll end up with sores under his arm. > Also, if it is so tight in the hips that it is cutting off circulation > then they may need to flare it out a bit. It needs to be tight down > there because that is where they get most of the correction, but you > can't have it cutting off his circulation. Hopefully you are still > there or live close by. > > > > It took Ian about two weeks to be able sit in his first cast. It > was so much heavier than the other casts (they refined their technique > so that the casts got increasing lighter). He did better sitting in > chairs with backs on them. We had one of those Fisher Price rockers > and that helped him tremendously with sitting out in our living room. > > > > Shopping carts were tough the first few weeks too. I usually put a > small pillow or I would use the diaper packages if we were buying > diapers that day to stuff behind his back. > > > > Good luck. My advice is to go back to whichever hospital did the > casting and get them to trim it. > > > > > > Noelle (12-2-01) > > Ian (8-15-04) > > Help! First cast > > > > > > I only have a minute because can't do anything himself. The > > post-op today was VERY HARD for us. The staff was great and we were > > able to get some great correction. I will post pictures later. > > > > I need your help regarding your experiences with these problems: The > > cast below his tummmy around his hips IS very very tight (I can hardly > > get my finger in there) and low. He cannot sit at all. We couldn't > > get him in our car seat because it hurt to bend him, or it would cut > > off his circulation. He cannot lower his arm because the cast is so > > high under the arm....so he just holds it up all the time. He can't > > crawl because he can't get him arm over the cast to the floor (because > > the cast is so high under the arm). He can stand briefly but it's too > > heavy for him and his knees buckle. So, all is left is for him to lay > > down and watch TV or for me to hold him. > > > > He has one strap over one arm, but that seems to be doing okay. > > > > Help! > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 HE CAN CRAWL!! He can put his arm down. He can sit, and play!! Oh my gosh, I'm not sure how to thank everyone who responded. I used all the information to get to this point of relief! I was able to drive to the doctor's office today and they trimmed the cast. Of course, the trimming was awful with the saw noise and vibration, but the results were so worth it. They trimmed under the arm a little so he can put his arm down and crawl...they trimmed 'elipses' at the bottom so that he can move his legs up and sit better. I cried in relief when he crawled...I couldn't believe it. Thank you, everybody! I really think we should capture all of this information of various experiences and put them in a manual. Has anyone started something like that? I'm sure it's already been talked about. I may have a contact through a family member of a group who helps to publish manuals & so I'm going to get more info about it. > > I agree with the others who said you should see about getting the cast trimmed. Maybe you've already done it, but here's our experience, which sounds a lot like yours! > > My son, Todd, had a similar situation with his arm in the first cast--he kept it up at about a 90degree angle all the time, even while sleeping the first night. We'd stayed in the hotel that first night just to be able to go back the next morning if needed, and Dr Khoury took one look at the arm and had that area of the cast trimmed immediately. Todd's relief was instantaneous. he also had a problem with the bottom of the cast being too tight, but Dr K didn't think it was too tight at first. It's true you have to give it some time to see if the area will toughen up, but we had to go back the following Monday (cast was applied on Thursday) due to a severe sore that had developed in just that short amount of time. they trimmed the one side kind of a lot then to expose the sore and let it heal. We live within driving distance of that hospital, so it was doable though it took the entire day. I don't know what we would have done had we been too far to > drive, though. If that's your case, maybe your casting doctor would consult with someone local to do the trimming, just a thought. > > Good luck with this! And it does get easier, believe me. Todd was miserable at first, but once we got the cast trimmed so that he was no longer in pain, he settled into it pretty much immediately. Until then, we had no idea how we would survive the whole casting process, but once those problems were fixed, it felt better for all of us. Hang in there! > > > Help! First cast > > I only have a minute because can't do anything himself. The > post-op today was VERY HARD for us. The staff was great and we were > able to get some great correction. I will post pictures later. > > I need your help regarding your experiences with these problems: The > cast below his tummmy around his hips IS very very tight (I can hardly > get my finger in there) and low. He cannot sit at all. We couldn't > get him in our car seat because it hurt to bend him, or it would cut > off his circulation. He cannot lower his arm because the cast is so > high under the arm....so he just holds it up all the time. He can't > crawl because he can't get him arm over the cast to the floor (because > the cast is so high under the arm). He can stand briefly but it's too > heavy for him and his knees buckle. So, all is left is for him to lay > down and watch TV or for me to hold him. > > He has one strap over one arm, but that seems to be doing okay. > > Help! > > > > > > > ________________________________________________________________________________\ ____ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 , that is TERRIFIC news! I am glad all he needed was a trim. It will get easier as the days go by. will adapt and so will you. Hopefully we can get the kids together soon so they can play. Olivia > > > > I agree with the others who said you should see about getting the > cast trimmed. Maybe you've already done it, but here's our > experience, which sounds a lot like yours! > > > > My son, Todd, had a similar situation with his arm in the first > cast--he kept it up at about a 90degree angle all the time, even while > sleeping the first night. We'd stayed in the hotel that first night > just to be able to go back the next morning if needed, and Dr Khoury > took one look at the arm and had that area of the cast trimmed > immediately. Todd's relief was instantaneous. he also had a problem > with the bottom of the cast being too tight, but Dr K didn't think it > was too tight at first. It's true you have to give it some time to > see if the area will toughen up, but we had to go back the following > Monday (cast was applied on Thursday) due to a severe sore that had > developed in just that short amount of time. they trimmed the one > side kind of a lot then to expose the sore and let it heal. We live > within driving distance of that hospital, so it was doable though it > took the entire day. I don't know what we would have done had we been > too far to > > drive, though. If that's your case, maybe your casting doctor > would consult with someone local to do the trimming, just a thought. > > > > Good luck with this! And it does get easier, believe me. Todd was > miserable at first, but once we got the cast trimmed so that he was no > longer in pain, he settled into it pretty much immediately. Until > then, we had no idea how we would survive the whole casting process, > but once those problems were fixed, it felt better for all of us. > Hang in there! > > > > > > Help! First cast > > > > I only have a minute because can't do anything himself. The > > post-op today was VERY HARD for us. The staff was great and we were > > able to get some great correction. I will post pictures later. > > > > I need your help regarding your experiences with these problems: The > > cast below his tummmy around his hips IS very very tight (I can hardly > > get my finger in there) and low. He cannot sit at all. We couldn't > > get him in our car seat because it hurt to bend him, or it would cut > > off his circulation. He cannot lower his arm because the cast is so > > high under the arm....so he just holds it up all the time. He can't > > crawl because he can't get him arm over the cast to the floor (because > > the cast is so high under the arm). He can stand briefly but it's too > > heavy for him and his knees buckle. So, all is left is for him to lay > > down and watch TV or for me to hold him. > > > > He has one strap over one arm, but that seems to be doing okay. > > > > Help! > > > > > > > > > > > > > > > _____________________________________________________________________ _______________ > > Never miss a thing. Make Yahoo your home page. > > http://www.yahoo.com/r/hs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 , This is great news. I am so happy! Aekta > > > > I agree with the others who said you should see about getting the > cast trimmed. Maybe you've already done it, but here's our > experience, which sounds a lot like yours! > > > > My son, Todd, had a similar situation with his arm in the first > cast--he kept it up at about a 90degree angle all the time, even while > sleeping the first night. We'd stayed in the hotel that first night > just to be able to go back the next morning if needed, and Dr Khoury > took one look at the arm and had that area of the cast trimmed > immediately. Todd's relief was instantaneous. he also had a problem > with the bottom of the cast being too tight, but Dr K didn't think it > was too tight at first. It's true you have to give it some time to > see if the area will toughen up, but we had to go back the following > Monday (cast was applied on Thursday) due to a severe sore that had > developed in just that short amount of time. they trimmed the one > side kind of a lot then to expose the sore and let it heal. We live > within driving distance of that hospital, so it was doable though it > took the entire day. I don't know what we would have done had we been > too far to > > drive, though. If that's your case, maybe your casting doctor > would consult with someone local to do the trimming, just a thought. > > > > Good luck with this! And it does get easier, believe me. Todd was > miserable at first, but once we got the cast trimmed so that he was no > longer in pain, he settled into it pretty much immediately. Until > then, we had no idea how we would survive the whole casting process, > but once those problems were fixed, it felt better for all of us. > Hang in there! > > > > > > Help! First cast > > > > I only have a minute because can't do anything himself. The > > post-op today was VERY HARD for us. The staff was great and we were > > able to get some great correction. I will post pictures later. > > > > I need your help regarding your experiences with these problems: The > > cast below his tummmy around his hips IS very very tight (I can hardly > > get my finger in there) and low. He cannot sit at all. We couldn't > > get him in our car seat because it hurt to bend him, or it would cut > > off his circulation. He cannot lower his arm because the cast is so > > high under the arm....so he just holds it up all the time. He can't > > crawl because he can't get him arm over the cast to the floor (because > > the cast is so high under the arm). He can stand briefly but it's too > > heavy for him and his knees buckle. So, all is left is for him to lay > > down and watch TV or for me to hold him. > > > > He has one strap over one arm, but that seems to be doing okay. > > > > Help! > > > > > > > > > > > > > > > _____________________________________________________________________ _______________ > > Never miss a thing. Make Yahoo your home page. > > http://www.yahoo.com/r/hs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Thank you ! I appreciate you taking the time to talk to me on one of my worst days ever. I think I got excited too fast. Although the trimming really helped, I'm finding that still cannot sit very well. When he sits with his legs in front of him, or a 'left-side' sit, his legs turn red/purple splotchy...as if he's not getting blood circulation in his legs - so I think sitting independently is out of the question. He crawled a little bit, but he's not going very far. He stops and then cries. I think it's because the cast is still high under the arm so that it blocks him putting his hand down, and it needs to be this way because his curve is so high (T4), or it might be that the bottom part is still so low that it hits his legs and he can't pull his legs in very far to crawl. I'm hoping that it might be just too heavy and he'll get used to it. I don't know. How long does it take for them to be able to lift the weight of the cast to crawl? For now, he's standing or lying on the floor creeping along (crying). It's hard to see your child this way when he used to push his little car along the floor going 'brrrrrrr' and smiling at me for approval when he would beat me crawling to a toy. BUT, I'm more thankful for his curve correction so that we can delay surgery, hopefully for a few years. He's a trooper as he's talking and laughing today, which is a relief. I'm working with my PT to figure out what we could buy so that he can play independently in a sit-type position, or anything that could help him crawl around to get the toy he wants, etc. If you all have any ideas, I would appreciate it! Good night > > > > I agree with the others who said you should see about getting the > cast trimmed. Maybe you've already done it, but here's our > experience, which sounds a lot like yours! > > > > My son, Todd, had a similar situation with his arm in the first > cast--he kept it up at about a 90degree angle all the time, even while > sleeping the first night. We'd stayed in the hotel that first night > just to be able to go back the next morning if needed, and Dr Khoury > took one look at the arm and had that area of the cast trimmed > immediately. Todd's relief was instantaneous. he also had a problem > with the bottom of the cast being too tight, but Dr K didn't think it > was too tight at first. It's true you have to give it some time to > see if the area will toughen up, but we had to go back the following > Monday (cast was applied on Thursday) due to a severe sore that had > developed in just that short amount of time. they trimmed the one > side kind of a lot then to expose the sore and let it heal. We live > within driving distance of that hospital, so it was doable though it > took the entire day. I don't know what we would have done had we been > too far to > > drive, though. If that's your case, maybe your casting doctor > would consult with someone local to do the trimming, just a thought. > > > > Good luck with this! And it does get easier, believe me. Todd was > miserable at first, but once we got the cast trimmed so that he was no > longer in pain, he settled into it pretty much immediately. Until > then, we had no idea how we would survive the whole casting process, > but once those problems were fixed, it felt better for all of us. > Hang in there! > > > > > > [infantile_scoliosi s] Help! First cast > > > > I only have a minute because can't do anything himself. The > > post-op today was VERY HARD for us. The staff was great and we were > > able to get some great correction. I will post pictures later. > > > > I need your help regarding your experiences with these problems: The > > cast below his tummmy around his hips IS very very tight (I can hardly > > get my finger in there) and low. He cannot sit at all. We couldn't > > get him in our car seat because it hurt to bend him, or it would cut > > off his circulation. He cannot lower his arm because the cast is so > > high under the arm....so he just holds it up all the time. He can't > > crawl because he can't get him arm over the cast to the floor (because > > the cast is so high under the arm). He can stand briefly but it's too > > heavy for him and his knees buckle. So, all is left is for him to lay > > down and watch TV or for me to hold him. > > > > He has one strap over one arm, but that seems to be doing okay. > > > > Help! > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Never miss a thing. Make Yahoo your home page. > > http://www.yahoo. com/r/hs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Thank you for sharing your experience, that sounds similar to what I'm going through right now. I'll hold on to that word " everything " and pass it on to my husband. That's very encouraging! > > > > > > I agree with the others who said you should see about getting the > > cast trimmed. Maybe you've already done it, but here's our > > experience, which sounds a lot like yours! > > > > > > My son, Todd, had a similar situation with his arm in the first > > cast--he kept it up at about a 90degree angle all the time, even while > > sleeping the first night. We'd stayed in the hotel that first night > > just to be able to go back the next morning if needed, and Dr Khoury > > took one look at the arm and had that area of the cast trimmed > > immediately. Todd's relief was instantaneous. he also had a problem > > with the bottom of the cast being too tight, but Dr K didn't think it > > was too tight at first. It's true you have to give it some time to > > see if the area will toughen up, but we had to go back the following > > Monday (cast was applied on Thursday) due to a severe sore that had > > developed in just that short amount of time. they trimmed the one > > side kind of a lot then to expose the sore and let it heal. We live > > within driving distance of that hospital, so it was doable though it > > took the entire day. I don't know what we would have done had we been > > too far to > > > drive, though. If that's your case, maybe your casting doctor > > would consult with someone local to do the trimming, just a thought. > > > > > > Good luck with this! And it does get easier, believe me. Todd was > > miserable at first, but once we got the cast trimmed so that he was no > > longer in pain, he settled into it pretty much immediately. Until > > then, we had no idea how we would survive the whole casting process, > > but once those problems were fixed, it felt better for all of us. > > Hang in there! > > > > > > > > > [infantile_scoliosi s] Help! First cast > > > > > > I only have a minute because can't do anything himself. The > > > post-op today was VERY HARD for us. The staff was great and we were > > > able to get some great correction. I will post pictures later. > > > > > > I need your help regarding your experiences with these problems: The > > > cast below his tummmy around his hips IS very very tight (I can hardly > > > get my finger in there) and low. He cannot sit at all. We couldn't > > > get him in our car seat because it hurt to bend him, or it would cut > > > off his circulation. He cannot lower his arm because the cast is so > > > high under the arm....so he just holds it up all the time. He can't > > > crawl because he can't get him arm over the cast to the floor (because > > > the cast is so high under the arm). He can stand briefly but it's too > > > heavy for him and his knees buckle. So, all is left is for him to lay > > > down and watch TV or for me to hold him. > > > > > > He has one strap over one arm, but that seems to be doing okay. > > > > > > Help! > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > > Never miss a thing. Make Yahoo your home page. > > > http://www.yahoo. com/r/hs > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 has developed a rash (little red bumps, blotchy) on his left check, upper arm and upper back. I put desiden on it (I also have Aquaphor). I guess this is typical? My guess is that it's heat rash since he sweats all night and sleeps on that side (b/c there's no strap over that arm). I hate to put him to bed without any clothes but they are soaked by the middle of the night. Last night I just took all his clothes off and put a light sheet on top. But he soaks the bottom sheets too. How do I keep him from getting cold when he sweats all the time (if that makes any sense)? Is there any type of fabric to sleep on or wear that wisks moisture away from the skin? Sorry to keep posting. I'm sure you all must be tired of me by now. No issues with diapering (yet). > > > > > > I agree with the others who said you should see about getting the > > cast trimmed. Maybe you've already done it, but here's our > > experience, which sounds a lot like yours! > > > > > > My son, Todd, had a similar situation with his arm in the first > > cast--he kept it up at about a 90degree angle all the time, even while > > sleeping the first night. We'd stayed in the hotel that first night > > just to be able to go back the next morning if needed, and Dr Khoury > > took one look at the arm and had that area of the cast trimmed > > immediately. Todd's relief was instantaneous. he also had a problem > > with the bottom of the cast being too tight, but Dr K didn't think it > > was too tight at first. It's true you have to give it some time to > > see if the area will toughen up, but we had to go back the following > > Monday (cast was applied on Thursday) due to a severe sore that had > > developed in just that short amount of time. they trimmed the one > > side kind of a lot then to expose the sore and let it heal. We live > > within driving distance of that hospital, so it was doable though it > > took the entire day. I don't know what we would have done had we been > > too far to > > > drive, though. If that's your case, maybe your casting doctor > > would consult with someone local to do the trimming, just a thought. > > > > > > Good luck with this! And it does get easier, believe me. Todd was > > miserable at first, but once we got the cast trimmed so that he was no > > longer in pain, he settled into it pretty much immediately. Until > > then, we had no idea how we would survive the whole casting process, > > but once those problems were fixed, it felt better for all of us. > > Hang in there! > > > > > > > > > [infantile_scoliosi s] Help! First cast > > > > > > I only have a minute because can't do anything himself. The > > > post-op today was VERY HARD for us. The staff was great and we were > > > able to get some great correction. I will post pictures later. > > > > > > I need your help regarding your experiences with these problems: The > > > cast below his tummmy around his hips IS very very tight (I can hardly > > > get my finger in there) and low. He cannot sit at all. We couldn't > > > get him in our car seat because it hurt to bend him, or it would cut > > > off his circulation. He cannot lower his arm because the cast is so > > > high under the arm....so he just holds it up all the time. He can't > > > crawl because he can't get him arm over the cast to the floor (because > > > the cast is so high under the arm). He can stand briefly but it's too > > > heavy for him and his knees buckle. So, all is left is for him to lay > > > down and watch TV or for me to hold him. > > > > > > He has one strap over one arm, but that seems to be doing okay. > > > > > > Help! > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > > Never miss a thing. Make Yahoo your home page. > > > http://www.yahoo. com/r/hs > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 See if you can find something called Calendula Cream or Calengia Cream. You may have to go to a Heatlth Foods or Natural Foods store. This works best for us. We've also had luck with the Aquaphor. We didn't have Noah use any blankets at first (just pjs) and turned down the thermastat a bit. Sorry - I don't have any other suggestions regarding sweating. It just seemed to lessen with time. It takes them awhile to adjust. > > > > > > > > I agree with the others who said you should see about getting the > > > cast trimmed. Maybe you've already done it, but here's our > > > experience, which sounds a lot like yours! > > > > > > > > My son, Todd, had a similar situation with his arm in the first > > > cast--he kept it up at about a 90degree angle all the time, even > while > > > sleeping the first night. We'd stayed in the hotel that first night > > > just to be able to go back the next morning if needed, and Dr Khoury > > > took one look at the arm and had that area of the cast trimmed > > > immediately. Todd's relief was instantaneous. he also had a problem > > > with the bottom of the cast being too tight, but Dr K didn't think it > > > was too tight at first. It's true you have to give it some time to > > > see if the area will toughen up, but we had to go back the following > > > Monday (cast was applied on Thursday) due to a severe sore that had > > > developed in just that short amount of time. they trimmed the one > > > side kind of a lot then to expose the sore and let it heal. We live > > > within driving distance of that hospital, so it was doable though it > > > took the entire day. I don't know what we would have done had we been > > > too far to > > > > drive, though. If that's your case, maybe your casting doctor > > > would consult with someone local to do the trimming, just a thought. > > > > > > > > Good luck with this! And it does get easier, believe me. Todd was > > > miserable at first, but once we got the cast trimmed so that he > was no > > > longer in pain, he settled into it pretty much immediately. Until > > > then, we had no idea how we would survive the whole casting process, > > > but once those problems were fixed, it felt better for all of us. > > > Hang in there! > > > > > > > > > > > > [infantile_scoliosi s] Help! First cast > > > > > > > > I only have a minute because can't do anything himself. The > > > > post-op today was VERY HARD for us. The staff was great and we were > > > > able to get some great correction. I will post pictures later. > > > > > > > > I need your help regarding your experiences with these > problems: The > > > > cast below his tummmy around his hips IS very very tight (I can > hardly > > > > get my finger in there) and low. He cannot sit at all. We couldn't > > > > get him in our car seat because it hurt to bend him, or it > would cut > > > > off his circulation. He cannot lower his arm because the cast is so > > > > high under the arm....so he just holds it up all the time. He can't > > > > crawl because he can't get him arm over the cast to the floor > (because > > > > the cast is so high under the arm). He can stand briefly but > it's too > > > > heavy for him and his knees buckle. So, all is left is for him > to lay > > > > down and watch TV or for me to hold him. > > > > > > > > He has one strap over one arm, but that seems to be doing okay. > > > > > > > > Help! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > > > Never miss a thing. Make Yahoo your home page. > > > > http://www.yahoo. com/r/hs > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Thanks - I will look for that. He sweats so much that I'm afraid it will get the cast too wet. But, if you say that it might go away with time, that's encouraging. So, dress him, and then make it cold (turn heat down or AC up). I'll try that tonight. > > > > > > > > > > I agree with the others who said you should see about > getting the > > > > cast trimmed. Maybe you've already done it, but here's our > > > > experience, which sounds a lot like yours! > > > > > > > > > > My son, Todd, had a similar situation with his arm in the > first > > > > cast--he kept it up at about a 90degree angle all the time, > even > > while > > > > sleeping the first night. We'd stayed in the hotel that first > night > > > > just to be able to go back the next morning if needed, and Dr > Khoury > > > > took one look at the arm and had that area of the cast trimmed > > > > immediately. Todd's relief was instantaneous. he also had a > problem > > > > with the bottom of the cast being too tight, but Dr K didn't > think it > > > > was too tight at first. It's true you have to give it some > time to > > > > see if the area will toughen up, but we had to go back the > following > > > > Monday (cast was applied on Thursday) due to a severe sore > that had > > > > developed in just that short amount of time. they trimmed the > one > > > > side kind of a lot then to expose the sore and let it heal. > We live > > > > within driving distance of that hospital, so it was doable > though it > > > > took the entire day. I don't know what we would have done had > we been > > > > too far to > > > > > drive, though. If that's your case, maybe your casting > doctor > > > > would consult with someone local to do the trimming, just a > thought. > > > > > > > > > > Good luck with this! And it does get easier, believe me. > Todd was > > > > miserable at first, but once we got the cast trimmed so that > he > > was no > > > > longer in pain, he settled into it pretty much immediately. > Until > > > > then, we had no idea how we would survive the whole casting > process, > > > > but once those problems were fixed, it felt better for all of > us. > > > > Hang in there! > > > > > > > > > > > > > > > [infantile_scoliosi s] Help! First cast > > > > > > > > > > I only have a minute because can't do anything > himself. The > > > > > post-op today was VERY HARD for us. The staff was great and > we were > > > > > able to get some great correction. I will post pictures > later. > > > > > > > > > > I need your help regarding your experiences with these > > problems: The > > > > > cast below his tummmy around his hips IS very very tight (I > can > > hardly > > > > > get my finger in there) and low. He cannot sit at all. We > couldn't > > > > > get him in our car seat because it hurt to bend him, or it > > would cut > > > > > off his circulation. He cannot lower his arm because the > cast is so > > > > > high under the arm....so he just holds it up all the time. > He can't > > > > > crawl because he can't get him arm over the cast to the > floor > > (because > > > > > the cast is so high under the arm). He can stand briefly but > > it's too > > > > > heavy for him and his knees buckle. So, all is left is for > him > > to lay > > > > > down and watch TV or for me to hold him. > > > > > > > > > > He has one strap over one arm, but that seems to be doing > okay. > > > > > > > > > > Help! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ > _________ _ > > > > > Never miss a thing. Make Yahoo your home page. > > > > > http://www.yahoo. com/r/hs > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 , I assume his mattress is plastic coated. See if you can find a " regular " mattress pad to put between the mattress and sheet, something that is going to be absorbent. If nothing else check at a fabric store, tell them what you need and they will probably have some suggestions for you. It needs to be something that will absorb the sweating but dry quickly so he does not get chilled(I have horrible hot flashes and I know what that's like -- very uncomfortable). Shara , Grammy to Devyn age 2, scoliosis and Chiari > > > > > > > > > > > > I agree with the others who said you should see about > > getting the > > > > > cast trimmed. Maybe you've already done it, but here's our > > > > > experience, which sounds a lot like yours! > > > > > > > > > > > > My son, Todd, had a similar situation with his arm in the > > first > > > > > cast--he kept it up at about a 90degree angle all the time, > > even > > > while > > > > > sleeping the first night. We'd stayed in the hotel that first > > night > > > > > just to be able to go back the next morning if needed, and Dr > > Khoury > > > > > took one look at the arm and had that area of the cast trimmed > > > > > immediately. Todd's relief was instantaneous. he also had a > > problem > > > > > with the bottom of the cast being too tight, but Dr K didn't > > think it > > > > > was too tight at first. It's true you have to give it some > > time to > > > > > see if the area will toughen up, but we had to go back the > > following > > > > > Monday (cast was applied on Thursday) due to a severe sore > > that had > > > > > developed in just that short amount of time. they trimmed the > > one > > > > > side kind of a lot then to expose the sore and let it heal. > > We live > > > > > within driving distance of that hospital, so it was doable > > though it > > > > > took the entire day. I don't know what we would have done had > > we been > > > > > too far to > > > > > > drive, though. If that's your case, maybe your casting > > doctor > > > > > would consult with someone local to do the trimming, just a > > thought. > > > > > > > > > > > > Good luck with this! And it does get easier, believe me. > > Todd was > > > > > miserable at first, but once we got the cast trimmed so that > > he > > > was no > > > > > longer in pain, he settled into it pretty much immediately. > > Until > > > > > then, we had no idea how we would survive the whole casting > > process, > > > > > but once those problems were fixed, it felt better for all of > > us. > > > > > Hang in there! > > > > > > > > > > > > > > > > > > [infantile_scoliosi s] Help! First cast > > > > > > > > > > > > I only have a minute because can't do anything > > himself. The > > > > > > post-op today was VERY HARD for us. The staff was great and > > we were > > > > > > able to get some great correction. I will post pictures > > later. > > > > > > > > > > > > I need your help regarding your experiences with these > > > problems: The > > > > > > cast below his tummmy around his hips IS very very tight (I > > can > > > hardly > > > > > > get my finger in there) and low. He cannot sit at all. We > > couldn't > > > > > > get him in our car seat because it hurt to bend him, or it > > > would cut > > > > > > off his circulation. He cannot lower his arm because the > > cast is so > > > > > > high under the arm....so he just holds it up all the time. > > He can't > > > > > > crawl because he can't get him arm over the cast to the > > floor > > > (because > > > > > > the cast is so high under the arm). He can stand briefly but > > > it's too > > > > > > heavy for him and his knees buckle. So, all is left is for > > him > > > to lay > > > > > > down and watch TV or for me to hold him. > > > > > > > > > > > > He has one strap over one arm, but that seems to be doing > > okay. > > > > > > > > > > > > Help! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ > > _________ _ > > > > > > Never miss a thing. Make Yahoo your home page. > > > > > > http://www.yahoo. com/r/hs > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Got the tape! Thanks you!! I should have tried to order this before the cast. is having what looks like skin breakdown at the waist, where the cast is tightest. It's not on the skin surface, but UNDER THE SKIN, little red dots, under his belly button. Has anyone has problems with this? I think it's a pressure point when he bends over. We previous put medical adhedsive tape on that piece of the cast to prevent him from getting wet from diapers...we wrapped the whole thing. Can I take off that tape and replace it with the Hy tape or maybe moleskin at the top where it touches his belly (if that makes sense)? Will that help? I don't think any creams would help it, but maybe hydrocortisone...which I would need to ask the doctor. Is it okay to replace tape pieces over the next few months? We went to PT yesterday and it was great! They let me borrow a bench so that can play! Since he can't reach the ground with his hands when he sits, the 'ground' (bench) has come to him. We also got a little paddle thing with wheels that so he can roll on his tummy (like the thing mechanics use to roll under cars). And, she suggested putting like a life-jacket with padding around him (or a blow-up round thing kids use at the pool...so he can move around and not fall so hard. He just can't touch the ground with one arm, so we need things for him to grab that are higher than the flooor. Thank goodness for PT! Yes, did sweat a lot before the cast (when he sleeps, his head just heats up). It was even cooler last night, and he sleep on our bed..in between us on a king size bed so lots of room...I didn't put anything on him except a light blanket and he did better, but still sweaty on one side. (I swear, I think with no blankets and no PJs with it 60 degrees, he would still sweat...but then probably get a cold). He won't sleep in his crib all the time. I know everyone is using PJ's, so I'll go try to find some today (and a cotton mattress pad). It sounds like everyone is using 100% cotton, so I'll focus on that. I'm sure there's got to be some other sweat-free type fabric somewhere, like what skier's wear. I'm going to search for that. I put a light white very thin t-shirt on yesterday and he still sweat in his carseat. Maybe it's the hx of cancer/chemo...as with most things with this child, it's hard to tell what the problem is...we just try to resolve the problem. I haven't called them about 's leg, as it did that in the office and they seemed fine with it. Maybe they didn't see what I was talking about. Regardless, we just don't have him sit upright...either back slightly, and it's not an issue in his carseat. I'll probably call them Monday with various things and just see what they say, including the sweating. Oh, I had put some Desiden on that rash on his face/shoulder, and it went away (and of course, I'm trying to keep him cooler). Yay! - > > > > > > I agree with the others who said you should see about getting the > > cast trimmed. Maybe you've already done it, but here's our > > experience, which sounds a lot like yours! > > > > > > My son, Todd, had a similar situation with his arm in the first > > cast--he kept it up at about a 90degree angle all the time, even while > > sleeping the first night. We'd stayed in the hotel that first night > > just to be able to go back the next morning if needed, and Dr Khoury > > took one look at the arm and had that area of the cast trimmed > > immediately. Todd's relief was instantaneous. he also had a problem > > with the bottom of the cast being too tight, but Dr K didn't think it > > was too tight at first. It's true you have to give it some time to > > see if the area will toughen up, but we had to go back the following > > Monday (cast was applied on Thursday) due to a severe sore that had > > developed in just that short amount of time. they trimmed the one > > side kind of a lot then to expose the sore and let it heal. We live > > within driving distance of that hospital, so it was doable though it > > took the entire day. I don't know what we would have done had we been > > too far to > > > drive, though. If that's your case, maybe your casting doctor > > would consult with someone local to do the trimming, just a thought. > > > > > > Good luck with this! And it does get easier, believe me. Todd was > > miserable at first, but once we got the cast trimmed so that he was no > > longer in pain, he settled into it pretty much immediately. Until > > then, we had no idea how we would survive the whole casting process, > > but once those problems were fixed, it felt better for all of us. > > Hang in there! > > > > > > > > > [infantile_scoliosi s] Help! First cast > > > > > > I only have a minute because can't do anything himself. The > > > post-op today was VERY HARD for us. The staff was great and we were > > > able to get some great correction. I will post pictures later. > > > > > > I need your help regarding your experiences with these problems: The > > > cast below his tummmy around his hips IS very very tight (I can hardly > > > get my finger in there) and low. He cannot sit at all. We couldn't > > > get him in our car seat because it hurt to bend him, or it would cut > > > off his circulation. He cannot lower his arm because the cast is so > > > high under the arm....so he just holds it up all the time. He can't > > > crawl because he can't get him arm over the cast to the floor (because > > > the cast is so high under the arm). He can stand briefly but it's too > > > heavy for him and his knees buckle. So, all is left is for him to lay > > > down and watch TV or for me to hold him. > > > > > > He has one strap over one arm, but that seems to be doing okay. > > > > > > Help! > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > > Never miss a thing. Make Yahoo your home page. > > > http://www.yahoo. com/r/hs > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Ok, so it doesn't sound like one of those open sores that happens with rubbing. We observed him more closely, and I think it might be that when he reaches over his little bench, he's smashing his skin between the bench and the cast. We fixed it with putting a belt around his waist. That bench is a life-saver! He just smiles and plays with his toys. My husband is going to make a really long bench and put something cushiony on the sides, so that he can move back and forth on the floor and have something to hold on to. I thank God for 's smile and laughter...this is what helps us through and I'll do anything to keep him happy. - > > the times that we've had bad spots - like breakdown - it was more of > really bad sloughing skin (like peeling off) and then bright red > underneath or a rubbed open sore (like in the case of his hip bones > last cast) > > the dots sound like heat rash (aka prickly heat) > > i'd use moleskin for the spots that hit his skin - we avoid the edge > of tape against the skin entirely and for his shoulders we wrap in > moleskin because it goes against his shoulders, kwim? > > hope that helps! > > S > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Hey On those problem spots we use a Closedcell medium density neoprene comes in roll adhiesive on oneside. Its waterproof sticks to the cast you can get this in various thickness and widths. Try 3M website or i think Faucher Int. find were they sell it. It worked for us on all the casts. I trimed the cast 1/2 " the thickness of neoprene stuck it on tape the eges no more rubbing. It works great for pinching absorbes it. Darrell > > > > the times that we've had bad spots - like breakdown - it was more of > > really bad sloughing skin (like peeling off) and then bright red > > underneath or a rubbed open sore (like in the case of his hip bones > > last cast) > > > > the dots sound like heat rash (aka prickly heat) > > > > i'd use moleskin for the spots that hit his skin - we avoid the edge > > of tape against the skin entirely and for his shoulders we wrap in > > moleskin because it goes against his shoulders, kwim? > > > > hope that helps! > > > > S > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.