Rehabilitation

[Guest guest]

I am working with a world class body builder who is helping me

use " mind over matter " to re-train my connection to my legs and feet,

essentially bypassing the nerve connections that don't work. My

anterior tibia are rebuilt and my shin bone doesn't protrude anymore!

And my big toes are lifting up with the rest of my toes! I am walking

with a normal gait and speed, I can squat, walk backwards and sideways,

twirl, dance, you name it! I've even begun running again and I used to

be a marathon runner before CMT slowed me down. To think that the

doctors put me in AFOs a year and a half ago - this is almost a

miracle! And I'm a believer! If anyone wants to contact me directly

about this, my email is Fuller5@.... Just put CMT Rehab in the

subject line so I'll know.

[Guest guest]

,

I was pleased to hear this. The mind-body connection has always been

important to me, and from an early age, my father first tried to

teach me relaxation techniques. I had much physical therapy at the

time too, plus doctors encouraged me to bike, swim and walk in sand,

all of which I still do.

In my experience with CMT, somehow my nerves have 'reinnervated'

themselves spontaneously. But perhaps the physicall activity did help

in that; I KNOW my last 4 years of aquatics has changed my muscles

for the better, it has also changed my outlook on life, as exercise

will do.

I have always pretty much had a normal gait and speed, except maybe

fatiguing out at the end of a long distance. But I consider that

minor. I have always been able to squat, walk backwards, sideways,

dance, etc. If my dog digs her way out of the yard, I can run and get

her, although I am under stress at the time, and THAT kind of stress

does make me MOVE! lol

When I was in my early 20's, docs at the MDA wanted me to wear AFOs,

which I refused. So glad I did and stayed active and connected to

quality neurologists. Even when I was in my drinking days, I still

managed to dance every night and bike to school or work the next day.

CMT affects us all so differently. I'm really happy for you. Keep us

informed of your progress.

~ Gretchen

[Guest guest]

Hi ,

Once again (I wrote to your private adress already), Is your miraculous recovery

a top secret or is it a joke? Or do you simply feast on your new life and your

bliss makes you forget the past?

Whatever it is, say something - it's always nice to know! Hope it was

not just a dream.

Roman

[Guest guest]

Hi Gretchen,

Most interesting and promising approach. Would you recommend any

literature or is it a matter of intuition and/or faith? Or do you just tell

yourself: do it - and a " miracle " happens?

Another thing: I am an anxious person with a high level of " free-floating "

anxiety that wakes me up at night and then a minor problem becomes a huge

mountain.

I tried meditation and various techniques but they don't help -

especially when I'm alone at home or when night comes. Any idea how to fight

with the ghosts?

Roman