carrying dead weight

[Guest guest]

Larry,

You can certainly use any analogy as to why there is CMT fatigue;

however, your analogy does not fit ME, and it may not fit others.

Personally, and meaning no dis-respect, I found it offensive.

I have learned to successfully manage " fatigue " , just as I do with my

other CMT symptoms. I rarely have that overwhelming CMT anymore, and

when I do it is simply from a disruption in my sleep patterns (like

staying out too late, not getting enough sleep) No doubt this comes

from my 40 + years personal experience with diagnosed CMT.

~ Gretchen

[Guest guest]

>

> Larry,

>

> You can certainly use any analogy as to why there is CMT fatigue;

> however, your analogy does not fit ME, and it may not fit others.

> Personally, and meaning no dis-respect, I found it offensive.

>

> I have learned to successfully manage " fatigue " , just as I do with my

> other CMT symptoms. I rarely have that overwhelming CMT anymore, and

> when I do it is simply from a disruption in my sleep patterns (like

> staying out too late, not getting enough sleep) No doubt this comes

> from my 40 + years personal experience with diagnosed CMT.

>

> ~ Gretchen

>

Well -- at the end of a long day of working with children in schools,

I have to move a bale of hay to a pasture that is completely uphill on

a 1 to 4 grade. My steps get shorter and shorter and shorter and my

eyes look down to the next step I have to take. By the time I cover

the 40+ feet to the pasture I am huffing up a storm. I am moving

something that really doesn't offer much help anymore.

Call it what you will, my legs just work better downhill with gravity

replacing the enervation I am missing.

I guess we just have to disagree on symantics! :-)

-- Larry