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I don't know how.

Vitamin A is a hormone like substance and causes the body to make more

of certain proteins.

Andy

> Andy and all,

>

> So, why is it that cod liver oil helps with the large pupils? Just

curious how Vitamin A would fit in with the mercury.

> Thanks!

> Becky Simpson

>

> -------------------------

> Mydriasis (big pupils) is one of the signs of mercury poisoning. It

> goes along with accomodative insufficiency (not being able to focus

at

> all distances) and convergence insufficiency (not being able to

point

> both eyes at things close up, which requires turning them in a bit).

>

> Andy

>

>

> [Non-text portions of this message have been remo

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If I remember correctly, Megson talks about the MMR interfering with the body's

ability to properly use vitamin A in some of its forms.

S

On Fri, 12 October 2001, AndyCutler@... wrote:

>

> <html><body>

> <tt>

> I don't know how.<BR>

> <BR>

> Vitamin A is a hormone like substance and causes the body to make more <BR>

> of certain proteins. & nbsp; <BR>

> <BR>

> Andy & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; <BR>

> <BR>

> --- In @y..., & quot;Becky L Simpson & quot; & lt;bsimpson@c... & gt;

wrote:<BR>

> & gt; Andy and all,<BR>

> & gt; <BR>

> & gt; So, why is it that cod liver oil helps with the large pupils? & nbsp; Just

<BR>

> curious how Vitamin A would fit in with the mercury.<BR>

> & gt; Thanks!<BR>

> & gt; Becky Simpson<BR>

> & gt; <BR>

> & gt; -------------------------<BR>

> & gt; Mydriasis (big pupils) is one of the signs of mercury poisoning. & nbsp; It

<BR>

> & gt; goes along with accomodative insufficiency (not being able to focus <BR>

> at <BR>

> & gt; all distances) and convergence insufficiency (not being able to <BR>

> point <BR>

> & gt; both eyes at things close up, which requires turning them in a

bit). & nbsp; <BR>

> & gt; <BR>

> & gt; Andy & nbsp; & nbsp; & nbsp; & nbsp; <BR>

> & gt; <BR>

> & gt; <BR>

> & gt; [Non-text portions of this message have been remo<BR>

> <BR>

> </tt>

>

> <br>

>

> <!-- |**|begin egp html banner|**| -->

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> <!-- |**|end egp html banner|**| -->

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> =======================================================<BR>

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  • 1 year later...

In a message dated 10/14/02 11:18:52 PM Central Daylight Time,

sfglover@... writes:

> did any of your kids ever have an ERG (electroretinogram)?

I don't think so. What does it involve?

> I just wondered because my son has some of these same problems and his ERG

> >indicated that his retina was not functioning properly. The Drs. at the

> " big " children's hospital here think he may have some sort of retinal

> dystrophy. They also said that (upon visual inspection) there were places

> on his retina that didn't " look " right. I asked what they meant by that,

> and they said that there were places where it wasn't shiny where it should

> have been.

That's interesting. Two members of my family have what is supposed to be a

rare retina disorder -- sector pigmentary retinopathy or pigmentosa

retinopathy (or something like that, I can never recall the new name they

call it) -- and a specialist

checked out the entire family for it years ago before Curt was born. Might

be worth looking into. Interestingly, three other people in one of our local

Asperger Syndrome support groups have close family members with this disorder

as well even though it's supposed to be really rare.

Did the docs think your son's was an actual disease or something just not

looking right? Do you plan to retest later to see if it changes?

> I asked if this could be from cytomegalovirus and they said no, because

> there was no scarring (I guess that is a hallmark of CMV on the retina).

>

> >I have read that herpes viruses (gee, what a surprise) can damage the

> retina. I also found a study where a scientist is injecting PEPTIDES (basic

> fibroblast growth factor or bFGF) and CYTOKINES (and also neurotrophins)

> into the eyes of mice with retinal dystrophy and seeing a dramatic reduction

> in the rate of photoreceptor damage.

>

Interesting. There have been studies in EFAs slowing or stopping the effect

of various retina diseases. Hopefully that's not the reason it's helping my

son since I'd hate to know he has a retina disease in addition to all the

other stuff he's had to deal with. Guess we should check that out. Can most

opthamologists check this? Do you have to dialate the eyes to check it?

Gaylen

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Curt's visual issues did improve a bit as we lightened his load in various

ways. The inconsistent blind spots were very rare even before we added the

CLO.

One interesting thing he used to have happen when he was much younger and

much sicker was that he'd sometimes " see " some page of a book or other item

on top of something else he was looking at. He'd be very adamant about

pointing to a specific thing and telling us what it was and swear he saw it

there. Since at the time he wasn't very conversational or clear in what he

was telling us, it took awhile for us to figure out that he seemed to be

having optical mixups. Anyone else see this with their child?

I would be interested in knowing what your visual trainer is doing to work on

convergence once you find out, Barb.

Gaylen

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Gaylen and others with kids with vision problems...

Question... did any of your kids ever have an ERG (electroretinogram)? I

just wondered because my son has some of these same problems and his ERG

indicated that his retina was not functioning properly. The Drs. at the

" big " children's hospital here think he may have some sort of retinal

dystrophy. They also said that (upon visual inspection) there were places

on his retina that didn't " look " right. I asked what they meant by that,

and they said that there were places where it wasn't shiny where it should

have been.

I asked if this could be from cytomegalovirus and they said no, because

there was no scarring (I guess that is a hallmark of CMV on the retina).

I have read that herpes viruses (gee, what a surprise) can damage the

retina. I also found a study where a scientist is injecting PEPTIDES (basic

fibroblast growth factor or bFGF) and CYTOKINES (and also neurotrophins)

into the eyes of mice with retinal dystrophy and seeing a dramatic reduction

in the rate of photoreceptor damage.

Anyway, I just wondered if your kids had had ERGs and what the results were.

Caroline

>On 10/14/02 3:06 PM, " googahly@... " <googahly@...> wrote:

> The most drastic, rapid change with one single

> treatment we've seen for my son was with cod liver oil. His vision, tracking

> and convergence along with fluctuating blind spots, corrected within a week

> of taking it.

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  • 2 years later...

I have to share this story about my non nids 7 yr. old. She had always got

A's, and B's in school. The second grading period this year her grades started

to slip. The teacher reported that she was having trouble focusing, and would

often be looking around the room when presented with something new. The next

week she had her annual eye exam. The Dr. says " Has she been having

focus/attention problems? "

The reason was because when you take your fore finger and take it slowly up

to your nose, the eyes are supposed to cross into it. He pointed out that her

right eye jumped back immediately straight. He said the longer she looked at a

problem, the more it would look blurry from going out of focus. The solution

for her was to practice morning and night following a pencil up to her nose to

strengthen her eye muscle. Now, she is back to getting A's, and B;s.

It does make me wonder how many kids with focus/attention problems could also

be helped by doing this simple test.

Joni

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Thanks for sharing this info....we will look into it and see if this

is a related problem to my daughter.

>

> I have to share this story about my non nids 7 yr. old. She had

always got

> A's, and B's in school. The second grading period this year her

grades started

> to slip. The teacher reported that she was having trouble

focusing, and would

> often be looking around the room when presented with something

new. The next

> week she had her annual eye exam. The Dr. says " Has she been

having

> focus/attention problems? "

> The reason was because when you take your fore finger and take it

slowly up

> to your nose, the eyes are supposed to cross into it. He pointed

out that her

> right eye jumped back immediately straight. He said the longer she

looked at a

> problem, the more it would look blurry from going out of focus.

The solution

> for her was to practice morning and night following a pencil up to

her nose to

> strengthen her eye muscle. Now, she is back to getting A's, and

B;s.

>

> It does make me wonder how many kids with focus/attention problems

could also

> be helped by doing this simple test.

>

> Joni

>

>

>

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  • 3 months later...
Guest guest

Per,

The eye-brain connection is extremely complex and endlessly

fascinating, IMO. Since there is virtually no definitive research in

the area, I have been trying to think of ways to get people to

understand it.

There seems to be a serious Catch-22. Many people who have the

symptoms may not be able to understand the symptoms because of the

inherent symptoms such as cognitive impairment and the ill-

defined " denial " . I also think that at least some of the effects will

likely persist for at least some time after the underlying cause is

eliminated.

I have been working on a symptom list and will try to post it

soon. It would be interesting to know whether you can recognize it in

your country's general population.

Roy

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Guest guest

Per,

My vision seems to fluctuate in its degree of blurriness. Never bad

enough for glasses (I can pass standard eye tests) but I can't read

in a dimly lit room or fine print, some days much worse than others.

Lately it seems to be getting rapidly worse. I suppose it could be

age, but my gut tells me it's a result of the infection or possibly

some of the drugs. Some days my vision is much clearer than others,

and I find that suspicious. This all happened pretty rapidly too.

One day things were suddenly blurry. I use cheap reading glasses,

the weakest ones, and move the text closer or further away according

to that day's state of blur. :-)

I don't have the light sensitivity, or accompanying brain fog that

you do, but my daughter definitely does. She gets headaches when

exposed to sunlight.

penny

> Penny and other with vision symptoms/signs

> How does your vision behave, characterize it please ?

> Or how can it be characterised ?

>

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Guest guest

Nelly:

and other with vision symptoms/signs

How does your vision behave, characterize it please ?

Or how can it be characterised ?

Penny

I passes standard eyes tests and some days i cant read the big road signs in

time.

This is going back and forth it shifts in periods of 1-3 month.

Including red eyes and red skin in face.

There is also part that relates to how much i do. If i do 'to much' my vision

suffers.

The 'to much' is a moving target, usually a low or high oral temp is a sign of a

day

to rest more.

After a massive dose of abx(tetracycline) i'm like a differnt person.

There is a neuro connection here.

Somehow left eye, rigth upper arm, backpain, rigth foot svollen, pain under feet

is related.

Not to mention vision/color:green changing, sound and speech.

How much does a skewed eqvilibrium in brain effect the body controll system ?

Before I tried the NoIR i did not belive i was ligth sensitive and it took me

some weeks before

i come to terms with using NoIR.

Penny are you sure that you are not ligthsensitive ? NOT even when you have a

'flare' or migraine ?

When I have a flare I get a relieve with using NoIR(2%) when it's dark!

/Per

penny wrote:

> Per,

>

> My vision seems to fluctuate in its degree of blurriness. Never bad

> enough for glasses (I can pass standard eye tests) but I can't read

> in a dimly lit room or fine print, some days much worse than others.

> Lately it seems to be getting rapidly worse. I suppose it could be

> age, but my gut tells me it's a result of the infection or possibly

> some of the drugs. Some days my vision is much clearer than others,

> and I find that suspicious. This all happened pretty rapidly too.

> One day things were suddenly blurry. I use cheap reading glasses,

> the weakest ones, and move the text closer or further away according

> to that day's state of blur. :-)

>

> I don't have the light sensitivity, or accompanying brain fog that

> you do, but my daughter definitely does. She gets headaches when

> exposed to sunlight.

>

> penny

>

>

>>Penny and other with vision symptoms/signs

>>How does your vision behave, characterize it please ?

>>Or how can it be characterised ?

>>

--

Per Sjöholm

Stockholm, Sweden

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Guest guest

To be honest, Per, it was a big relief to drop the dark glasses and

hats when I stopped the mp.

I really am a light person, always have been, and keeping myself in

the dark was affecting me negatively. And the more in the dark I

stayed, the more light " paranoid " I got (which I think is probably

more fitting than light " sensitive " in my case), but since stopping

that whole business, I've actually felt better than when I was holed

up in the dark. I've always intuitively known that I need light to

feel good. However, I do think the light sensitivity is a big issue

for some people.

My daughter is absolutely photosensitive. And my friend, who took

Benicar, minocycline, and avoided the sun and D, found she had no

real response to Benicar at all, but that avoiding the sun has

helped her a LOT, as has the minocycline. She's still doing the

latter two. We're like Jack Spratt and his wife. I can't handle sun

avoidance or minocycline, she can't handle Benicar. :-)

My daughter didn't react well to Benicar either, but finds the

minocycline and sunlight avoidance very helpful.

I HAVE become much more heat intolerant of late. I used to be cold

when everyone else was hot. No more. My air conditioner's broken in

my car, and I'm miserable when driving inland, which I do every day

(with the kids). This is new. I used to love the heat.

penny

> >>Penny and other with vision symptoms/signs

> >>How does your vision behave, characterize it please ?

> >>Or how can it be characterised ?

> >>

>

> --

> Per Sjöholm

> Stockholm, Sweden

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  • 9 months later...

Hi. I came in the middle of this conversation, so don't know

whether this is relevant or has been mentioned.

My son was told that his far vision was terrific (20/15) but that he

has trouble converging his eyes and reading. This has been

attributed to the CMT since it is a manifestation of weakness of

some of the ocular muscles. Kinda makes sense.

The good news is that we have an optometrist who is well versed in

this type of problem, and with prism lens this has been alleviated.

Actually, kind of funny... my son (who is 20) was concerned that

they were helping too much! I am hoping that they help reduce the

number and severity of his headaches.

So, rather than just being tested for acuity, sometimes you need to

be more throughly evaluated. At Mayo, the specialist was a neuro-

opthalmologist... Now there was a new specialty!

Hope this can help someone else.

Barbara

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