Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Hi , I do understand how you feeling as a Mom of 3 CMT kids myself. I hope has a disorder that has a treatment. That would make this year the best. At 19 when I had my definite diagnosis I had already been through a lot of testing as a child more then twice. At 4 they started testing me for every disorder known to man. Nothing was made definite as far as a diagnosis, some things were ruled out. At 7 I had the tendon transfer you are referring to. My arches were lowed and my ankles fused. One thing all the testing did for me when I was little was show me I was not so bad off. Some of the kids I saw at the hospitals were not having it as good as I was. At 10 still more testing and a maybe CMT diagnosis. At 18 I went in for another EMG and at 19 I had surgery again. After that I had time to have my babies Quote Link to comment Share on other sites More sharing options...
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