EDU: Companion Diseases - Sjogrens

[Guest guest]

Empress my old friend

how are those babies born 8 of is it 2005( same as my neice)

I have a question

Does your blood work test positive for the sjogrens

I know you can have this stuff and be negative...I just want a buddy who is

like me

Miss ya girl

Liz

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

I have Sjogrens along with a host of other diseases and syndromes, many of which

are rare. Hence, the signing of my name as Empress of CUS or Chronically Unique

Syndrome.

 

It's a term I made up so that I don't need to list all the diseases out, I just

say I am the Empress of Chronically Unique Syndrome. Because all my doctors say

I have more " issues " than any " one " person they know of, I decided that made me

the " Empress " of the Chronically Unique Syndrome. LOL

 

It is secondary to my Stills. I take Evoxac (there are others but I have a very

rare form of pigment glaucoma and can't take the others) and use Systane eye

drops, and Ocean nasal spray. There is also a toothpaste for dry mouth but I am

allergic to flouride and chemicals so I can't use it. Here are some great web

links on the topic and they cover just about anything you want to know about

Sjogrens.

 

http://www.sjogrens.org/ The Sjogrens Syndrome Foundation and support site

 

http://www.medicinenet.com/sjogrens_syndrome/article.htm What is Sjogrens? What

causes Sjogrens? What are symptoms of Sjogrens? How is Sjogrens diagnosed and

treated?

 

http://www.mayoclinic.com/health/sjogrens-syndrome/DS00147 Sjogren's syndrome —

Comprehensive overview covers symptoms, causes, treatment of this autoimmune

disorder, risk factors, tests and diagnosis, when to seek medical advice,

complications, treatments and drugs.

 

http://my.clevelandclinic.org/disorders/sjogrens_syndrome/rheumatology_overview.\

aspx

Sjögren’s syndrome occurs when a person’s normally protective immune system

attacks and destroys moisture-producing glandsSjögren’s syndrome occurs when a

person’s normally protective immune system attacks and destroys

moisture-producing glands.

 

http://www.ninds.nih.gov/disorders/sjogrens/sjogrens.htm Sjögren's syndrome

affects 1-4 million people in the United States. Most people are more than 40

years old at the time of diagnosis. Women are 9 times more likely to have

Sjögren's syndrome than men. INCLUDES LINK TO CLINICAL TRIALS

 

 

 

(Beautiful Southern Oregon, USA)

We may not be able to change the direction of the wind, but we can adjust our

sails.

May you have enough happiness to make you kind, enough trials to make you

strong, enough sorrow to keep you human, enough hope to make you happy.

 

 

[Guest guest]

The babies are now 3 and still so " true identical " that most people,

even family can't tell them apart. Me - Grammy (aka Ginga) can tell

them apart from front and from back but the side view still gets me

but that's okay, it gets Mommy and the other Nanna too. LOL

I don't know if the doctor ever did a test for the sjogrens. He

didn't have to do the tissue test but I don't think he did a blood

test. I will ask and see when I go back in about 3 weeks. I have dry

eyes, nose, mouth and swollen glands. I also don't sweat unless my

blood sugar is low (about 65 or lower. We did a test and I sat in a

sauna several times with the heat at 120 degrees F or higher for 20

minutes and came our dry as an old bone.

Smiles, Caroline 1st, Empress of CUS

>

>

>

> Empress my old friend

>

> how are those babies born 8 of is it 2005( same as my neice)

>

> I have a question

> Does your blood work test positive for the sjogrens

> I know you can have this stuff and be negative...I just want a

buddy who is

> like me

>

> Miss ya girl

> Liz

>

>

> **************New year...new news. Be the first to know what is

making

> headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

>

>

>