Re: overwhelmed suggestions

[Guest guest]

Hi Elaina,

You sound very overwhelmed. I am not much help. I wish I could be. Can you go

get a blood panel done and have your thyroid checked and some other stuff?

I know it's your CMT but if you have anemia or a hypo thyroid you can get very

worn down too. I just don't know how you do everything. You are one tough

cookie I will tell you that!

I gave up trying to get people to realize that CMT drains me.

A little story: for a long time I was dragging my butt. Just walking in the

parking lot of Target the back of my legs would burn from fatigue. I could never

get enough sleep. I just figured it was CMT. I actually had hypothyroidism. I

have a similar story when I was anemic.

[Guest guest]

Gretchen,

You're wonderful. That's all I can say. Just wonderful. It helps to know that

there are people who understand exactly how tired I am. It's not a good feeling

when the people in your own inner circle act like they want to say 'you look

fine what is the problem with you' or 'you can't be that tired you're just

lazy'.

I have copies of my neuros records, I've sent for copies of the specialists

records who diagnosed me. I will take those and go to my internist who does seem

to be interested in learning about CMT. Maybe he can help with the work

portion. I'll contact my school this week.

You're right Gretchen I'm stressed and I guess had started to freak out a bit.

Thanks for putting things in perspective.

Elaina.

[Guest guest]

Hi ,

Your suggestions were exactly what the new neurologist was also thinking. He

is testing me for anemia and wants me to have a sleep study done. He thinks

I might have some kind of sleep apnea. My thyroid was tested years ago with

all results normal. I was pleased with this new neuro in the fact that he

listened and diagnosed me with RLS (my other neuro would just nod his head but

would never actually give me that diagnosis). So now the new doc has me on

Requip while I await the blood test for my iron and a sleep study. Does anyone

have any comments on the Requip? Anybody taking it now and what kind of

success?

Thanks,

Elaina/NY