Re: frame in SC

[Guest guest]

Yes, Dr. Stasikelis has an appropriate frame.

, please send Coles update when you can, and I'll get it up on

site asap.

Thanks !

HRH

> Jeff,

> Welcome to the group. Your daughter is the same age as our son Cole. He

> started casting almost 2 years ago, probably right around the time you

> found out Sydney had IS. I am so sorry Dr. Pete told you that about

> casting a year ago. Seems to be a common conversation amongst many others

> with their ped. ortho. surg. Our original ortho. ped. surg. said the same

> thing at the time and he was the pres. of the American Scioliosis Research

> Group and we went against his recommendations and thinking. Many are

> finally changing their thoughts and realizing this certain type of casting

> can correct the curve.

> Wow, I am shocked to hear about your son having it too. Just goes to show

> scoiliosis is very hereditary.

> Here are my answers to your questions:

> 1. A few have started casting later than age 2. Yes, it is a little past

> the opportune time, but it is at least worth a try. It may take a lot

> longer or at least correct/hold her long enough to hold off future

> surgeries. Maybe it will still work if she has a few great growth spurts

> and is still flexible. Every child is different, so there is no definitive

> answer. Maybe someone else will chime in who has started this late to

> respond about their results.

>

> 2. Most docs will not castuntil the curve is greater than 20 degrees. You

> should find out what the RVAD number is. A number greater than 20 usually

> indicates progressive IS, while under 20 may be a good indication of it

> resolving. Either way, I would keep a VERY close eye on it. Even though

> most docs say the curves are slow to worsen, I have seen curves go from 20

> degrees to 50 in 3 months.

>

> 3. ISOP has the BEST site for IS. It has the most info. for IS, Mehta's

> casting technique, and success stories (Cole is on that site, but we need

> to update the outcome of his story), including links to other articles

> and important information. IS is still very rare and not a lot of info.

> out their on it, especially in regards to successful treatment. The only

> other place you will find really GOOD info. is from the parents and

> caregivers on this board. You will get the most experience, knowledge, and

> insight from this board, so ask as many questions as you have.

>

> Is Dr. Pete using an AMIL table when he casts Sydney? When is her next

> cast change, and how long has she been in the current cast? From the

> original curve numbers, does she have two curves? Best of luck and keep us

> posted.

> , Cole's mom

> boxflyer1 wrote: Hi,

>

> I'm new to this forum and still trying to figure it out. Our daughter

> Sydney was diagnosed

> with Infantile Scoliosis at 6 months old. We started seeing Dr. Pete a

> couple of months

> later at Shriner's in Greenville. He put her in a TLSO with a curve of

> 65-67 degrees. This

> was 19 months ago. We mentioned casting last year but were told that it

> probably

> wouldn't correct any better than the TLSO. That thinking has now

> changed. Dr. Pete said

> that the American medical field was hesitant to change their line of

> thinking on this but

> have since changed their mind. He is now trained by Dr. Mehta with

> casting and Sydney

> just received her first cast this past Mon. He seemed pretty pleased with

> her correction in

> the first cast (25 degrees). He said we were number 11, I think, for

> him. I just hope we

> haven't waited too late. She is still very flexible and we got no

> improvement in the brace.

> It did prevent it from getting worse though.

> Now our son Brayden, 5 months, has been diagnosed with IS. He will

> see Dr. Pete next

> week for the first time. His curve was at 20 degrees a couple of weeks

> ago.

>

> So I have a couple of questions.

>

> 1. Has anyone else waited this long, now 2 1/2 years, to get started

> casting? Results?

>

> 2. What is the min. curve for casting? Our initial Ortho. did not

> mention casting, but said

> he didn't usually brace til 25-30 degrees?

> 3. I have been to ISOP website. Are there any others anyone recommends?

>

> Thanks

>

> jeff

>

>

>

>

>

> __________________________________________________

>