Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Hi there. Gretchen, Just re to your saying you always try to answer peoples questions: someone posted something about how we are like half a battery, not a full one. Can anyone remember what that was and send it to me please? I plan to print it out and carry it in my purse for the people who are sure there is nothing wrong with me. Thanks again, Megs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Hi Gretchen, Megs and group- Yes, it was me who said our bodies are running on half a battery so therefore we run out of energy way faster, easier and quicker than the average person.I honestly don't remember my exact wording in my pervious post. I have always used that example when trying to explain how CMT affects me. We are not the energizer bunny. When I was younger and not wearing AFOs and looked just like all my girlfriends that explanation helped them understand me and my body. Even today at 53 years old people say I look great. Which is a major nice thing to hear. CMT affects me on the inside not on the outside so to speak. And that's why I don't like the word disease. I say 'condition'. When people hear disease they think sick or sickly and that just isn't CMT in my book. OK, there's my 5 cents worth. Hope this explanation helps and makes sense. Gretchen, if you want to use this or part for our files.......absolutely! Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 Barb, Awesome! Thank you for that. Megs Quote Link to comment Share on other sites More sharing options...
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