Welcome Kim!

[Guest guest]

Welcome Kim! Thanks so much for introducing yourself! Ever since I

was 7, I started getting diagnoses from Docs. At age 10, a doc hit

the nail on the head with CMT - fast forward past many other docs and

many other disorders ALL ruled out. In 1999 I had my last EMG/NCV. I

had the smarts by then to ask for a report to be sent directly to me.

All nerve response was normal - the doctor noted " patient does not

have a more common form of demylenating CMT " , but due to

reinnervation (nerves rewiring themselves) the possibility exists for

a neuronal (axonal form) of CMT. " (what this means is Type 2) I

have not had genetic tests.

I have good leg muscles, no hand problems, I'm very active,

physically and mentally. No one in my family has CMT or at least any

of the symptoms I have - mainly feet problems. CMT affects us all

differently, due to our unique genetic codes.

You (and other new members) might want to review some of the

information in our Files section and also participate in our new Poll.

Again, welcome and I hope you find to be a helpful and very

hopeful place.

~ Gretchen/Founder and Moderator