Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 , That's so hard for me to believe...no pain due to your CMT. And yet, that's what most doctors like to tell me... " well, at least CMT doesn't cause any pain " . It really is incredible how differently we are each affected, isn't it? My mobility is actually quite good but my fatigue level, base-line pain, and general nerve dysfunction is quite troublesome. No wonder doctors are confused, huh? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 -My daughter and I have no pain either with our CMT. Yet my late son had terrible pain with his. yes, it is amazing how each of us is affected even within the same family. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Hi, I have had Cholesteatomas in both ears, and other than the bouts of hearing loss and infections, the ear was otherwise normal. The Cholesteatomas themselves didn't lead to any pain in my case. Your case sounds similar to the situation with my right ear. I just thought it was a bad infection when I had blood leaking out. In my case, the Cholesteatoma was behind this. Definitely time to get checked out. Good luck! > > Hello, > > I am new to this group. I have read several posts and my condition > sounds similar to most. Chronic ear infections since childhood, tubes > in ears, and ear leakage. Regretably, I have grown accustomed to the > symptoms and learned to live with it. Recently (about a year ago), I > got a severe cold and my left ear clogged and did not drain for some > time. A couple of days later, blood began to leak from my ear. I went > to my PCP and he referred me to an ENT. ENT did not like the looks of > my ear and ordered a CT scan and he mentioned the possiblity of C- toma. > I am scheduled to see the ENT on Monday to discuss the results of my CT > scan. What is odd to me is that although I exeperience slight hearing > loss, I don't feel pain in my ear. Is this typical? > > Thanks in advance for your comments. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 Hello, My son had a congenital cholesteatoma, which meant it grew from before birth. He had no pain or infections at all and was 5 when we found out he had it. The Doctor could see something behind the ear drum for almost a year, but thought it to be infection, but he never had any pain. On the CT scan the area surrounding the middle ear in a normal ear will be whitish, showing air in the mastoid and ear. If the area around the ear is black it may be filled with c-toma. Also ask the the report from the radiologist - it is full of helpful information. Good luck! Judy la10066 wrote: > > Hello, > > I am new to this group. I have read several posts and my condition > sounds similar to most. Chronic ear infections since childhood, tubes > in ears, and ear leakage. Regretably, I have grown accustomed to the > symptoms and learned to live with it. Recently (about a year ago), I > got a severe cold and my left ear clogged and did not drain for some > time. A couple of days later, blood began to leak from my ear. I went > to my PCP and he referred me to an ENT. ENT did not like the looks of > my ear and ordered a CT scan and he mentioned the possiblity of C-toma. > I am scheduled to see the ENT on Monday to discuss the results of my CT > scan. What is odd to me is that although I exeperience slight hearing > loss, I don't feel pain in my ear. Is this typical? > > Thanks in advance for your comments. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 Hello and welcom to the group. I had a very similar situation to yours. I had chronic ear infections for a number of years. There were times i would have one and not even know it because there was no pain. I dont know if thats normal or not but it did happen to me too. On 1/31/08, avila10066 <avila10066@...> wrote: Hello,I am new to this group. I have read several posts and my condition sounds similar to most. Chronic ear infections since childhood, tubes in ears, and ear leakage. Regretably, I have grown accustomed to the symptoms and learned to live with it. Recently (about a year ago), I got a severe cold and my left ear clogged and did not drain for some time. A couple of days later, blood began to leak from my ear. I went to my PCP and he referred me to an ENT. ENT did not like the looks of my ear and ordered a CT scan and he mentioned the possiblity of C-toma. I am scheduled to see the ENT on Monday to discuss the results of my CT scan. What is odd to me is that although I exeperience slight hearing loss, I don't feel pain in my ear. Is this typical?Thanks in advance for your comments. Quote Link to comment Share on other sites More sharing options...
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