fatigue question

[Guest guest]

It was once explained to me like this:

CMT muscles have to work TWICE as hard to do HALF the work.

Just read that one line over and over, it is a good simple explanation

and that's going to make fatigue greater.

That's why it is a good idea to break up activities, chores, shopping,

house cleaning, and everything up into manageable pieces, just do a

little at a time, rest/have breaks in between, and for me, the single

best thing I can do to stop fatigue from happening in the first place

is to make da** sure I get a solid 8-9 hours of sleep at night.

~ Gretchen

[Guest guest]

And from a non-medical understanding of the actual bodily processes causing the

fatigue...

My understanding is that, since the nerve signal to the muscle is impaired, the

muscle is not moved in the most efficient manner and it is also getting a

delayed response (probably depends on the type of CMT though).

Also, as we lose muscle mass due to atrophy caused by inefficient use of the

muscle, our body compensates by using other muscle groups, poor gait, and other

means, to be able to function.

No wonder we are so fatigued

[Guest guest]

>It was once explained to me like this:

CMT muscles have to work TWICE as hard to do HALF the work.

Just read that one line over and over, it is a good simple explanation and

that's going to make fatigue greater.That's why it is a good idea to break up

activities, chores, shopping, house cleaning, and everything up into manageable

pieces, just do a ittle at a time, rest/have breaks in between, and for me, the

single best thing I can do to stop fatigue from happening in the first place is

to make da** sure I get a solid 8-9 hours of sleep at night.<

Gretchen,

Thank you for the explanation. That is a good simple way to explain

it to others. I probably do need to get more sleep at night. I am

currently getting 6-7 hours and I do so much better on 8-9. I don't

have too much choice about pacing myself at this point in my life.

I'm a stay at home, homeschooling mom of 5. I love it and would have

it no other way but it does stay busy arould here. I am trying to

prioritize more so I can pace myself somewhat.

[Guest guest]

Thank You I will look into that!

 

Lynn