tocilizumab question

[Guest guest]

To those of you who have started or are starting tocilizumab..........

I wondered if you had been told how long it takes for the drug to kick

in and work? I'm starting tomorrow but am feeling like i'm flaring up

after stopping my current drug, and i'm worried about how long its

going to be before i get back on track?

Thanks

K x

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> Hi Kate,

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> Wow I am so excited to have found someone. I go in first thing tomorrow for

> my first one and my reumy thinks it will be a fortnightly infusion. I am in

> a village near Huntingdon in Cambridgeshire. I came off Methotrexate

> injections about a month ago as it didnt seem to be working anymore, so am

> really hoping this does as the sore throats, rash and painful joints have

> started getting worse again. Great to hear from you will let you know how it

> goes tomorrow.

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> Ruth x (UK)

> Re: New drug infusion.

>

> Hi Ruth,

> I'm starting Toxilizumab this week too!!! I'm in Leeds.Where are you?

> I have it on compassionate grounds too and i start my first infusion

> on Friday. Really glad to hear from someone else who is starting it.

> I'm really excited about it as i have read many good things about it

> too, and I have failed on all the other drugs.

> Kate

> x

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> On 12/11/2007, ruthwindeler1@...

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> > Hi everyone,

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> > I would love some advise and feedback from anyone that knows about or has

> > experienced Toxilizumab. The drug company have agreed to give it to me on

> > compassionate grounds and I have my first infusion at the hospital

> tomorrow.

> > It is not licensed yet and my Reumy does not know of any adults who have

> had

> > it. I am a little nervous, but have read many articles on it and am happy

> to

> > give it a go.

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> > Ruth x UK

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