Re: feeling kind of guilty - can anyone relate??????

[Guest guest]

Carole,

Hell no! There's nothing wrong with taking some P.T.O. whether it's stills

related or you just feel like being a bum for a bit. From the sounds of it, you

really did need to just rest, so please brush that guilt aside. Hope you feel

like your " battery " is recharged again.

Brett

feeling kind of guilty - can anyone relate??????

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[Guest guest]

Carole,

Hell no! There's nothing wrong with taking some P.T.O. whether it's stills

related or you just feel like being a bum for a bit. From the sounds of it, you

really did need to just rest, so please brush that guilt aside. Hope you feel

like your " battery " is recharged again.

Brett

feeling kind of guilty - can anyone relate??????

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[Guest guest]

Carole,

Hell no! There's nothing wrong with taking some P.T.O. whether it's stills

related or you just feel like being a bum for a bit. From the sounds of it, you

really did need to just rest, so please brush that guilt aside. Hope you feel

like your " battery " is recharged again.

Brett

feeling kind of guilty - can anyone relate??????

Recent Activity

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[Guest guest]

Carole, this isn't an easy question to answer as I've always been top the

point where anything I do is a bonus since getting Stills. Granted, I do a

lot of stuff that I'm not supposed to do and have regardless of how bad I

feel.

If you're looking for someone to tell you you were wrong I'm not the man

to do it, as you know if you were feeling poorly enough to take the time

off. It sounds to me like you feel guilty, sort of like the kid who " almost "

got caught with his hand in the proverbial cookie jar, but the only one who

has any control over that is you. Knowing what Stills does to a lot of us,

I'm impressed that you're working as much as you are.

In you're situation I would try not to think of it as you seem torn by

yourself, and guilt equates to a load of stress...which is not exactly what

the Dr. ordered. It also sounds like you have a caring husband & boss which

is great.

Try not to look at it as taking 8 days off, but view it in the light that

you worked all of the days you did work as I'm sure they far outweigh the

days off. Maybe that will help you feel better.

I can use myself as an example. Since becoming disabled due to Stills I

still go down to my garage every chance I get. I'd be lying if I said I

" never " did any work, but generally I don't. I do run some errands and such

and still have the ability to diagnose many different problems even though I

won't be the one repairing them. Some would consider this " work " , but I need

to do it for my sanity. I don't draw an income from the shop as I'm unable

to be there on a consistent basis. There will be times when I don't come

down for weeks at a time depending on my body.

I also still do as much as I can around the house, with some of the

things being potentially devastating to my body such as lifting, climbing,

contorting my body into some painful positions, etc etc.... If my RD, PCP or

Pain Dr knew I'd be in deep! My only justification is that I despise feeling

worthless, although compared to who I was prior to this I am. I also can't

afford to pay someone else to do many of the things that need to be done, so

I have no choice but to do them myself.

Then there are the days when I can't do anything, but for how many around

me doubt it, I truly can't when I don't. My point is for you to stop beating

yourself up! If you're hurting, sick or whatever I think you have the

justification to take time for yourself.

Hope this finds you feeling less guilty, and better. Adios, Kirk.

2008/6/2 :

>

>

>

--

Everything in life sucks except things that should!

[Guest guest]

Carole,

I bet that if you took a poll, you would find the majority, at one

time or another, has " stretched " it a bit (or more). Like you I am

type A and a bit of a workaholic. Have never done the whole week

gammit before. Of course, I am currently on short term disability

from work, so, does that count? And it is Still's related, but just

aching to get back to work.

More power to you. Did it help? By the way, my current " out "

is, " bear with me, damn it, it's the PREDNISONE " . (currently at 60mg

and holding after tapering fromo 80mg.)

Fuzzy

>

> Hi Guys,

>

> I did something last week that I'm feeling rather guilty about,but

know I

> needed to do it. I have been working really hard lately -

[Guest guest]

Carole, I just finished filling out all of the FMLA paperwork for my

work-free summer--as of tomorrow, I've got 13 weeks off. Even though

I have the sick time to use (over 1400 hours of sick and vacation time

saved up!), I worked myself into a tizzy about taking the time. Like

you, I felt like I COULD work, could push through the pain and

fatigue, could " muddle " along. But you know what? Sometimes you need

to give yourself permission to NOT muddle along. That's the problem

with being a tough cookie.

I say NO GUILT to you. Good for you for taking the time off to rest.

I'm sure you needed it, and I'm sure you'll need to do it again.

Don't forget that you're not just dealing with physical pain and

fatigue but also all of the emotional/psychological issues related to

chronic illness, and that kind of stress can be incredibly draining.

My summer plan includes a lot of guilt-free reading and floating in

the lake!

/Maine

> >

> > Hi Guys,

> >

> > I did something last week that I'm feeling rather guilty about,but

> know I

> > needed to do it. I have been working really hard lately -

>

[Guest guest]

Carole;

 for me this is easy to tell ya . you did not use stills at all it is very

opveus you needed the rest be it before hand or after it is some thing most of

us do not take when we should . now if you used the time to go play take a trip

that would be some thing other but to rest and rebuild strength that some thing

other . and from reading that is what you did . like them black and blues showed

up on there own because you were feeling so good right ? reread your post then

try and ask again LOl I bet you will not have to

hugs

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

[Guest guest]

Carole;

 for me this is easy to tell ya . you did not use stills at all it is very

opveus you needed the rest be it before hand or after it is some thing most of

us do not take when we should . now if you used the time to go play take a trip

that would be some thing other but to rest and rebuild strength that some thing

other . and from reading that is what you did . like them black and blues showed

up on there own because you were feeling so good right ? reread your post then

try and ask again LOl I bet you will not have to

hugs

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

[Guest guest]

Carole;

 for me this is easy to tell ya . you did not use stills at all it is very

opveus you needed the rest be it before hand or after it is some thing most of

us do not take when we should . now if you used the time to go play take a trip

that would be some thing other but to rest and rebuild strength that some thing

other . and from reading that is what you did . like them black and blues showed

up on there own because you were feeling so good right ? reread your post then

try and ask again LOl I bet you will not have to

hugs

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)