supportive doctors - caudwell funding - Breakspear

[Guest guest]

Could others who receive Caudwell funding please share wo they ask to do the

independent supportive letters.

Earlier this year we received funding for biomed and advance.

For advance Caudwell require a 6 monthly update and to reapply for both they

will require a letter from someone independent to confirm progress/improvement.

Our problem is that Charlie has been under nutritionist since 11 weeks. We

started so young I believe we have already unpicked lots of what was going on.

Today we have seen his hospital consultant who is totally against all the biomed

we are doing because he doesn't know anything about it - neither will he read

any supporting evidence I take.

We were involved with same consultant when Charlie started on enzymes and

changed literally overnight from a toddler who screamed most of the time, rarely

slept, had very limited diet (only 8 foods at the time)to a much happier little

boy who started to sleep, eat a much wider variety of foods and became equipt to

start engaging and learning.

Today he said he felt uncomfortable with all the supplements and recommended I

stop breastfeeding and put him on a 'normal diet' INCLUDING packet products with

additives and preservatives!!!

My face must have told him a lot. I can't stand this doctor. This time last

year he referred us to social services. As my daughter already has a sw from

childrens disability team they just said an assessment of Charlie was not

necessary but as you can imagine this has made me very wary of him.

The therapists who work with him have always been totally supportive and even

contacted our nutritionist to ask for a report of her work with us.

Where can I find a doctor who is on board with me.

Do the doctors at Breakspear support bio med. I need someone who at least knows

what I'm talking about.

To be honest I don't feel like we even need doctors involvement at the moment

but I know without it I'm going to hit obsticles once he starts school.

I actually feel like we are been penalised for helping Charlie so young.

Because of the very early improvements he will not get a diagnosis. Luckily we

were already involved with a nutritionist for my daughter otherwise I would not

have had any of the knowledge until he was much older (if at all).

Any advice appreciated

Alison R