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Hi Welynda,

Thank you for posting. I know it takes years to ajust to living with a chronic

illness and sometimes I still have days when I cannot wrap my feelings around

it.

To me, it's like grieving. But it's a process we as Still's patients go through

over and over again because our status changes so often. Generally on a daily

basis, so just when you think you have it down and a handle on your emotions, it

changes again. That's pretty tough to learn to cope with.

I think that is one of the reasons this group and sharing are so important

because we go through the gamit of emotions so often. I was just telling Cat

last night that I was referring to myself as a bouncing ball the other day and

it has been so for 30 years. So, we should all be in the game together and

score some high points for playing so well. I'd like to be a green ball myself,

hee hee. My favorite color.

Smiles for your day,

----- Original Message -----

From: Welynda

Most of my problems now seem to be psychological - - - I'm just so tired of

feeling sick and tired. This dragon is so relentless. Sometimes I feel like

Kirk and just want to bang my head on the door just to experience a different

kind of pain. I am so happy that I found this group when I did. It makes all the

differene in my world. Thanks to all of you for being here for me when I have

needed it the most. Much love to you all, Welynda

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