Re: Interstitial Lung Disease Question

[Guest guest]

Kirk, in the words of the ever popular Curly, " I soitantly hope so " . I

am trying to stay for the long haul.

From what I have researched in information out there, it can be nasty

resulting in scaring of the alviolar sacs so eventually oxygen does not

cross from the lungs to the blood stream. The goal of finding the

right drugs is similar to the other Stills stuff we deal.....finding

the right balance between keeping inflammation in check and not getting

infections. MTX is the usual starting drug, but that has not worked.

Next path are the Cancer Chemo drugs.

Right now the one I started seems to be working and allowing me to

taper the steroids. Then next week I go back on Remicade for

the " standard " Stills " control " .

Hanging in there. You do the same. At least I do not have to deal with

your headaches. I would hate that and lament your having them.

Thanks for the thoughts.

Tom

>

> Christ Tom that does NOT sound like fun! I'll keep you in my

> prayers.....man there's a ton of us that are all kind of FUBAR'd at

the

> moment....bad time to be a Stills patient it seems.

> Best of luck, Kirk. By the way, is it something they can help with?

>

>