Participating more

[Guest guest]

I really thought about trying to find a way to participate more. On my

bad days, where is hard to type or sit I will, write a hello, after I

read. I know it is really hard for others too. It has been awful since

The Dragon. I know it sounds selfish, but I really need you guys. I

fight w/ a lot and I am so defensive. I feel like I am being

judged constantly, not by him. I know I am not a hypochondriac, but I

keep getting snowballed w/ serious dx's. I am still kinda emotionally

raw and scared. It has been 5 years, I just want to be myself again. I

have never been mean, but I get so bitter and angry and petrified that

it feels like I will explode! Thank you for listening, I love you guys

xxoo Sharon

[Guest guest]

Dear Sharon

Stills 'll do that to you.The Docrors 'd do that to you worst. I've been

dealing wt. that for 5 yrs. also. & I'm not diagnosed yet.

I't's hard for your family too. They just can't feel wht you do & can only

try & be sypmpatetic so many times

& this crap keeps on & on. just hang in there PLS> the flares do get better

after they do pass.

VIVI

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[Guest guest]

some very wise words Kirk and to repeat them I did not shorten your post as it

was said so well as it is the invisible un heard of illness and many do not want

to admit there is such a thing. as in relationships I read one place were if a

child or on of the partners become critically ill  about 80% end in divorce .

that just shows how many can not understand it or live with it in there lives

let alone there one body as we do .

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

Re: Participating more

It seems you're going through hell also, albeit a different kind of hell

than me...it is hell regardless. Don't go beating yourself up though...for

how " tough " I know I was I finally met my more than my match with Stills,

and the ass kicking I've been taking has yet to even slow down...let alone

end.

It stresses relationships to the max and some people tend to not believe

we're as bad off as we might be, but I've learned to totally ignore

that...no sense fighting a war one can't win and it's not like we can let

them live in our bodies for a week, month or whatever.

I haven't become mean, if anything it has made me a much more involved

Dad as now my kids are by far my number 1 priority. It has totally destroyed

my standard of living, but that I am able to adjust to, even if I do tend to

bitch it a lot.

In so far as not staying in touch when you;re down & out, we all seem to

go through that, and sometimes we need to " be alone " to learn to deal with

our lives... but just as often I like coming here so that I don't feel

alone. It cycles a bit, but I try to be here as much as possible.

Have a good one, Kirk.

2008/6/6 Sharon <sharonbaytandtakl (DOT) com>:

>

>

>

--

Everything in life sucks except things that should!

[Guest guest]

some very wise words Kirk and to repeat them I did not shorten your post as it

was said so well as it is the invisible un heard of illness and many do not want

to admit there is such a thing. as in relationships I read one place were if a

child or on of the partners become critically ill  about 80% end in divorce .

that just shows how many can not understand it or live with it in there lives

let alone there one body as we do .

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

Re: Participating more

It seems you're going through hell also, albeit a different kind of hell

than me...it is hell regardless. Don't go beating yourself up though...for

how " tough " I know I was I finally met my more than my match with Stills,

and the ass kicking I've been taking has yet to even slow down...let alone

end.

It stresses relationships to the max and some people tend to not believe

we're as bad off as we might be, but I've learned to totally ignore

that...no sense fighting a war one can't win and it's not like we can let

them live in our bodies for a week, month or whatever.

I haven't become mean, if anything it has made me a much more involved

Dad as now my kids are by far my number 1 priority. It has totally destroyed

my standard of living, but that I am able to adjust to, even if I do tend to

bitch it a lot.

In so far as not staying in touch when you;re down & out, we all seem to

go through that, and sometimes we need to " be alone " to learn to deal with

our lives... but just as often I like coming here so that I don't feel

alone. It cycles a bit, but I try to be here as much as possible.

Have a good one, Kirk.

2008/6/6 Sharon <sharonbaytandtakl (DOT) com>:

>

>

>

--

Everything in life sucks except things that should!