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Re: Pain and Itching

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Like Alison, I developed major back pain not long after Stills knocked the

snot out of me, and I eventually wound up with a morphine pump implant for

the pain as it became so severe that I could not move without being " jolted "

with excruciating pain. I couldn't walk, sit or enjoy anything. It was one

of the absolute worst parts of my life to date.

Like you, I also had insatiable itching for about 2 years after getting

Stills. No one knows what caused it, and no one ever found anything to

justify it, but not one Dr. I saw would say that it was from Stills, either.

The itching would happen mainly at night (but not limited to) and could be

so bad that I'd literally rip into my skin in various places, with one of

the " places " being somewhere that baseball players are noted to " scratch "

themselves at times.......too bad it wasn't funny. I once ripped my back up

pretty horribly by rubbing it hard (w/o a shirt) against a rough

tree.....the pain felt better than the itching. The only things that would

even take the edge off of it were Benedryl & Valium, but neither nor both at

once would stop it totally.

I do agree that you should see your Dr. before jumping to any

conclusions, and if that doesn't work maybe a Dermatologist. Best of luck,

and do yourself a big favor, don't do what I did! The suffering afterwards

of scratching to death was just about as bad as the itching! Especially in

" sensitive " areas.

Kirk.

>

> - I have back pain. My doc did xrays and found bone spurs in my

> spine

> Seems that stills caused my body to have bone spurs in many places. My

> back burns so bad some times it's hard to not cry from the pain. I'd say

> that you should ask your doctor to check your back out carefully. Stills

> can affect it. I've also had some itching, but nothing like what you are

> describing. I usually get more of a sensitive skin sensation that is so

> bad

> that no one can touch me - even my clothes rubbing my skin hurt me.

> Surprisingly, it's a muscle relaxer called tizanidine that helps that and

> the itching the most (the skin symptom is more a symptom of Fibromyalgia).

>

>

> Anyway - you need to find a doctor that really knows about Both stills and

> fibro to be able to help you. (if you can't find that you have to find one

> that is willing to be educated by you - which is possible)...

>

> I hope this helps.

>

>

>

>

> -- Pain and Itching

>

> Doctors do not seem to know much about Stills Disease and symptoms, so

> I ask those of you who are MOST knowledgeable. How do I know whether

> new back pain is related to Stills disease or something else? I also

> have new itching---haven't changed medication or anything else---and

> the itching is about to drive me insane (a short trip some days!!!!).

> I keep a flushed type rash on my chest, but this is a deep burning

> and itching that is not relieved by anything.

>

>

> IL

>

>

>

>

>

>

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Hi ,

I also get intense itching when I have a rash it almost puts me over the edge

to. One thing that helped me was Aveno baths. Sometimes I take 2 or 3 a day!

Chris

green_home_oreo wrote:

Doctors do not seem to know much about Stills Disease and symptoms, so

I ask those of you who are MOST knowledgeable. How do I know whether

new back pain is related to Stills disease or something else? I also

have new itching---haven't changed medication or anything else---and

the itching is about to drive me insane (a short trip some days!!!!).

I keep a flushed type rash on my chest, but this is a deep burning

and itching that is not relieved by anything.

IL

---------------------------------

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Hi ,

I also get intense itching when I have a rash it almost puts me over the edge

to. One thing that helped me was Aveno baths. Sometimes I take 2 or 3 a day!

Chris

green_home_oreo wrote:

Doctors do not seem to know much about Stills Disease and symptoms, so

I ask those of you who are MOST knowledgeable. How do I know whether

new back pain is related to Stills disease or something else? I also

have new itching---haven't changed medication or anything else---and

the itching is about to drive me insane (a short trip some days!!!!).

I keep a flushed type rash on my chest, but this is a deep burning

and itching that is not relieved by anything.

IL

---------------------------------

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