Questions about low tone and pectus carinatum

[Guest guest]

My son, Dylan, was just diagnosed with scoliosis a few months ago. He had an

x-ray in June that showed a 16 degree curve and then another one in August that

showed a 20 degree curve. He also has some low muscle tone and seems to be a

little behind developmentally in the gross motor skills. He is almost a year

old, however, he was born 3 months premature and has some other conditions as

well (torticollis, benign extra axial fluid of infancy, etc.). I asked for a

referral to a geneticist to rule out any sort of genetic disorder like a

connective tissue disorder, etc. He also has one side of his rib cage that

protrudes out and that seems to be getting much worse lately. The local

orthopedic said that the rib cage was caused by the scoliosis. Has anyone

else's child had this? As far as I can tell and his physical therapist agrees,

I don't think his spine has changed considerably since his last x-ray at least

not that I can tell, but his rib cage

seems to be protruding a lot more. I'm wondering if the rib cage is caused by

some other condition, or if this is something that is commonly seen with

scoliosis??? Also, has anyone else's children with scoliosis had low tone or

gross motor delays?

Thanks,

________________________________________________________________________________\

____

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[Guest guest]

Hi !

I am sorry to hear that Dylan is going through this. My Gabby also has a very

severe case of scoliosis, but her muscles are ok. She does have a very

protruding rib cage and shoulder blade, even though she has been treated since

birth. Are you able to take your child to another specialist, just in case he

needs more agressive treatment? In our case, Gabby has been followed up very

closely, but most of the times, we were told to " wait and see " , which can be

very frustrating, but might be the only thing that can be done in some cases.

Everyone's scoli is different and therefore, treated on a case by case basis.

You guys are in my prayers.

Esther

If anyone speaks ill of you, Praise them always. If anyone injures you, Serve

them nicely. If anyone persecutes you, Help them in all possible ways. You will

attain immense strength. You will control anger and pride. You will enjoy peace,

poise, and serenity. (Unknown)

Questions about low tone and pectus carinatum

My son, Dylan, was just diagnosed with scoliosis a few months ago. He had an

x-ray in June that showed a 16 degree curve and then another one in August that

showed a 20 degree curve. He also has some low muscle tone and seems to be a

little behind developmentally in the gross motor skills. He is almost a year

old, however, he was born 3 months premature and has some other conditions as

well (torticollis, benign extra axial fluid of infancy, etc.). I asked for a

referral to a geneticist to rule out any sort of genetic disorder like a

connective tissue disorder, etc. He also has one side of his rib cage that

protrudes out and that seems to be getting much worse lately. The local

orthopedic said that the rib cage was caused by the scoliosis. Has anyone else's

child had this? As far as I can tell and his physical therapist agrees, I don't

think his spine has changed considerably since his last x-ray at least not that

I can tell, but his rib cage

seems to be protruding a lot more. I'm wondering if the rib cage is caused by

some other condition, or if this is something that is commonly seen with

scoliosis??? Also, has anyone else's children with scoliosis had low tone or

gross motor delays?

Thanks,

____________ _________ _________ _________ _________ _________ _

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Yahoo! Answers - Check it out.

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[Guest guest]

It's classic presentation. Jack has a protrusion and a hollowing in

the corresponding side.

He also has one side of his

> rib cage that protrudes out and that seems to be getting much worse lately.

> The local orthopedic said that the rib cage was caused by the scoliosis. Has

> anyone else's child had this?

[Guest guest]

Hello :

You are describing my daughter to a " T " . Hopefully you will be able to

learn from my uneducated journey. My daughter started with a low curve

that progressed gradually, and then in one growth spurt really changed.

She too is behind in her development. Of importance to you is that we

can always tell that her curve is worsening by the protrusion of her

ribs. When we see the ribs we call the doctor and ask to have our 3

month check up moved up, and we have always been right. So I don't know

when your next exam is set for, but I would see if they can see you

sooner rather than later, because in daughter the ribs are connected and

an easily identifiable connection to a worsening curve.

________________________________

From: infantile_scoliosis

[mailto:infantile_scoliosis ] On Behalf Of Dolley

Sent: Monday, September 24, 2007 10:14 AM

To: infantile_scoliosis

Subject: Questions about low tone and pectus

carinatum

My son, Dylan, was just diagnosed with scoliosis a few months ago. He

had an x-ray in June that showed a 16 degree curve and then another one

in August that showed a 20 degree curve. He also has some low muscle

tone and seems to be a little behind developmentally in the gross motor

skills. He is almost a year old, however, he was born 3 months premature

and has some other conditions as well (torticollis, benign extra axial

fluid of infancy, etc.). I asked for a referral to a geneticist to rule

out any sort of genetic disorder like a connective tissue disorder, etc.

He also has one side of his rib cage that protrudes out and that seems

to be getting much worse lately. The local orthopedic said that the rib

cage was caused by the scoliosis. Has anyone else's child had this? As

far as I can tell and his physical therapist agrees, I don't think his

spine has changed considerably since his last x-ray at least not that I

can tell, but his rib cage

seems to be protruding a lot more. I'm wondering if the rib cage is

caused by some other condition, or if this is something that is commonly

seen with scoliosis??? Also, has anyone else's children with scoliosis

had low tone or gross motor delays?

Thanks,

__________________________________________________________

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knows. Yahoo! Answers - Check it out.

http://answers.yahoo.com/dir/?link=list & sid=396545433

<http://answers.yahoo.com/dir/?link=list & sid=396545433>

[Guest guest]

Hello :

You are describing my daughter to a " T " . Hopefully you will be able to

learn from my uneducated journey. My daughter started with a low curve

that progressed gradually, and then in one growth spurt really changed.

She too is behind in her development. Of importance to you is that we

can always tell that her curve is worsening by the protrusion of her

ribs. When we see the ribs we call the doctor and ask to have our 3

month check up moved up, and we have always been right. So I don't know

when your next exam is set for, but I would see if they can see you

sooner rather than later, because in daughter the ribs are connected and

an easily identifiable connection to a worsening curve.

________________________________

From: infantile_scoliosis

[mailto:infantile_scoliosis ] On Behalf Of Dolley

Sent: Monday, September 24, 2007 10:14 AM

To: infantile_scoliosis

Subject: Questions about low tone and pectus

carinatum

My son, Dylan, was just diagnosed with scoliosis a few months ago. He

had an x-ray in June that showed a 16 degree curve and then another one

in August that showed a 20 degree curve. He also has some low muscle

tone and seems to be a little behind developmentally in the gross motor

skills. He is almost a year old, however, he was born 3 months premature

and has some other conditions as well (torticollis, benign extra axial

fluid of infancy, etc.). I asked for a referral to a geneticist to rule

out any sort of genetic disorder like a connective tissue disorder, etc.

He also has one side of his rib cage that protrudes out and that seems

to be getting much worse lately. The local orthopedic said that the rib

cage was caused by the scoliosis. Has anyone else's child had this? As

far as I can tell and his physical therapist agrees, I don't think his

spine has changed considerably since his last x-ray at least not that I

can tell, but his rib cage

seems to be protruding a lot more. I'm wondering if the rib cage is

caused by some other condition, or if this is something that is commonly

seen with scoliosis??? Also, has anyone else's children with scoliosis

had low tone or gross motor delays?

Thanks,

__________________________________________________________

Be a better Heartthrob. Get better relationship answers from someone who

knows. Yahoo! Answers - Check it out.

http://answers.yahoo.com/dir/?link=list & sid=396545433

<http://answers.yahoo.com/dir/?link=list & sid=396545433>

[Guest guest]

Hmmm....we have an appt. in 3 weeks to see Dr. Sturm in Chicago. That will be

our first visit with him. Our local ortho ordered a ton Bending Brace a

month ago and we are still waiting for that to come in. I don't know whether I

should bother making another appt. right away with my local ortho, or just wait

3 weeks to see Dr. Sturm. Any suggestions? I'm thinking that more than likely

I should just wait to see Dr. Sturm.

[infantile_scoliosi s] Questions about low tone and pectus

carinatum

My son, Dylan, was just diagnosed with scoliosis a few months ago. He

had an x-ray in June that showed a 16 degree curve and then another one

in August that showed a 20 degree curve. He also has some low muscle

tone and seems to be a little behind developmentally in the gross motor

skills. He is almost a year old, however, he was born 3 months premature

and has some other conditions as well (torticollis, benign extra axial

fluid of infancy, etc.). I asked for a referral to a geneticist to rule

out any sort of genetic disorder like a connective tissue disorder, etc.

He also has one side of his rib cage that protrudes out and that seems

to be getting much worse lately. The local orthopedic said that the rib

cage was caused by the scoliosis. Has anyone else's child had this? As

far as I can tell and his physical therapist agrees, I don't think his

spine has changed considerably since his last x-ray at least not that I

can tell, but his rib cage

seems to be protruding a lot more. I'm wondering if the rib cage is

caused by some other condition, or if this is something that is commonly

seen with scoliosis??? Also, has anyone else's children with scoliosis

had low tone or gross motor delays?

Thanks,

____________ _________ _________ _________ _________ _________ _

Be a better Heartthrob. Get better relationship answers from someone who

knows. Yahoo! Answers - Check it out.

http://answers. yahoo.com/ dir/?link= list & sid= 396545433

<http://answers. yahoo.com/ dir/?link= list & sid= 396545433>

[Guest guest]

Thanks...that makes me feel a little better that it is " classic presentation " .

Re: Questions about low tone and pectus carinatum

It's classic presentation. Jack has a protrusion and a hollowing in

the corresponding side.

He also has one side of his

> rib cage that protrudes out and that seems to be getting much worse lately.

> The local orthopedic said that the rib cage was caused by the scoliosis. Has

> anyone else's child had this?

________________________________________________________________________________\

____

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[Guest guest]

Thanks...that makes me feel a little better that it is " classic presentation " .

Re: Questions about low tone and pectus carinatum

It's classic presentation. Jack has a protrusion and a hollowing in

the corresponding side.

He also has one side of his

> rib cage that protrudes out and that seems to be getting much worse lately.

> The local orthopedic said that the rib cage was caused by the scoliosis. Has

> anyone else's child had this?

________________________________________________________________________________\

____

Check out the hottest 2008 models today at Yahoo! Autos.

http://autos.yahoo.com/new_cars.html

[Guest guest]

Thanks...that makes me feel a little better that it is " classic presentation " .

Re: Questions about low tone and pectus carinatum

It's classic presentation. Jack has a protrusion and a hollowing in

the corresponding side.

He also has one side of his

> rib cage that protrudes out and that seems to be getting much worse lately.

> The local orthopedic said that the rib cage was caused by the scoliosis. Has

> anyone else's child had this?

________________________________________________________________________________\

____

Check out the hottest 2008 models today at Yahoo! Autos.

http://autos.yahoo.com/new_cars.html

[Guest guest]

I agree, 3 weeks is not so long, and Dr. Sturm is great. I would wait.

________________________________

From: infantile_scoliosis

[mailto:infantile_scoliosis ] On Behalf Of Dolley

Sent: Monday, September 24, 2007 12:45 PM

To: infantile_scoliosis

Subject: Re: Questions about low tone and pectus

carinatum

Hmmm....we have an appt. in 3 weeks to see Dr. Sturm in Chicago. That

will be our first visit with him. Our local ortho ordered a ton

Bending Brace a month ago and we are still waiting for that to come in.

I don't know whether I should bother making another appt. right away

with my local ortho, or just wait 3 weeks to see Dr. Sturm. Any

suggestions? I'm thinking that more than likely I should just wait to

see Dr. Sturm.

[infantile_scoliosi s] Questions about low tone and pectus

carinatum

My son, Dylan, was just diagnosed with scoliosis a few months ago. He

had an x-ray in June that showed a 16 degree curve and then another one

in August that showed a 20 degree curve. He also has some low muscle

tone and seems to be a little behind developmentally in the gross motor

skills. He is almost a year old, however, he was born 3 months premature

and has some other conditions as well (torticollis, benign extra axial

fluid of infancy, etc.). I asked for a referral to a geneticist to rule

out any sort of genetic disorder like a connective tissue disorder, etc.

He also has one side of his rib cage that protrudes out and that seems

to be getting much worse lately. The local orthopedic said that the rib

cage was caused by the scoliosis. Has anyone else's child had this? As

far as I can tell and his physical therapist agrees, I don't think his

spine has changed considerably since his last x-ray at least not that I

can tell, but his rib cage

seems to be protruding a lot more. I'm wondering if the rib cage is

caused by some other condition, or if this is something that is commonly

seen with scoliosis??? Also, has anyone else's children with scoliosis

had low tone or gross motor delays?

Thanks,

____________ _________ _________ _________ _________ _________ _

Be a better Heartthrob. Get better relationship answers from someone who

knows. Yahoo! Answers - Check it out.

http://answers. yahoo.com/ dir/?link= list & sid= 396545433

<http://answers. yahoo.com/ dir/?link= list & sid= 396545433>

[Guest guest]

Just my opinion, but I'd sit tight. 3 weeks isn't that far. Time

feels like it's passing so slowly, but it will be here before you know

it

Sandi

[Guest guest]

-- I just wanted to let you know I talked with Rochelle again and told

about the responses you had gotten thus far. She wanted me to pass along to you

how well her son, Devyn, is doing. He was diagnosed just after he turned 1. He

had another birth defect, a Chiari malformation in the back of his head (which

was found when they did the MRI for his spine) and had to have surgery before

they would cast him. He got his first cast in April and now is in his 3rd cast.

The last x-rays they took before casting (about 2 months before) was about 39

degrees so we know it was worse than that when he got the first cast. He is in

third cast now and is down to less than 10 percent. They believe this very well

could be his last cast and he will be able to go into a brace when this one

comes off in November. We are all thrilled about his progress. He too had

rotation and had his ribs sticking out on 1 side but not anymore. Rochelle did

post pictures of him. You can see what his spine looked like before casting

started.

Shara

Re: Questions about low tone and pectus

carinatum

Hi ,

I know you have heard from several others about the " classic " chest wall

deformity and just wanted to tell you about my son Cole. His chest wall stuck

out so far, that we didn't even suspect scoliosis at first. I thought he just

had a barrel chest or some sort of chest wall deformity. He has since gone

through the entire casting and bracing procedure, and his chest wall is

beautiful and symmetrical. You would never be able to tell. So, yes, to answer

your question, chest wall deformity is very typical with scoliosis. As the spine

rotates (twists) it causes the chest or one side of the ribs to push outward.

Hang in there. I think you mention you had an appt. with Dr. Sturm in 3 weeks?

Hopefully he can answer more questions for you and get Dylan " straightened " out.

Let us know how it goes.

/Cole

Dolley wrote: My son, Dylan, was just diagnosed

with scoliosis a few months ago. He had an x-ray in June that showed a 16 degree

curve and then another one in August that showed a 20 degree curve. He also has

some low muscle tone and seems to be a little behind developmentally in the

gross motor skills. He is almost a year old, however, he was born 3 months

premature and has some other conditions as well (torticollis, benign extra axial

fluid of infancy, etc.). I asked for a referral to a geneticist to rule out any

sort of genetic disorder like a connective tissue disorder, etc. He also has one

side of his rib cage that protrudes out and that seems to be getting much worse

lately. The local orthopedic said that the rib cage was caused by the scoliosis.

Has anyone else's child had this? As far as I can tell and his physical

therapist agrees, I don't think his spine has changed considerably since his

last x-ray

at least not that I can tell, but his rib cage

seems to be protruding a lot more. I'm wondering if the rib cage is caused by

some other condition, or if this is something that is commonly seen with

scoliosis??? Also, has anyone else's children with scoliosis had low tone or

gross motor delays?

Thanks,

__________________________________________________________

Be a better Heartthrob. Get better relationship answers from someone who

knows. Yahoo! Answers - Check it out.

http://answers.yahoo.com/dir/?link=list & sid=396545433

[Guest guest]

Thanks for the information. I hope our path will go as well. Glad to hear your

grandson is doing so well. A good friend of mine has two daughters who both had

Chiari malformations, so I'm pretty familar with that.

Re: [infantile_scoliosi s] Questions about low tone and pectus

carinatum

Hi ,

I know you have heard from several others about the " classic " chest wall

deformity and just wanted to tell you about my son Cole. His chest wall stuck

out so far, that we didn't even suspect scoliosis at first. I thought he just

had a barrel chest or some sort of chest wall deformity. He has since gone

through the entire casting and bracing procedure, and his chest wall is

beautiful and symmetrical. You would never be able to tell. So, yes, to answer

your question, chest wall deformity is very typical with scoliosis. As the spine

rotates (twists) it causes the chest or one side of the ribs to push outward.

Hang in there. I think you mention you had an appt. with Dr. Sturm in 3 weeks?

Hopefully he can answer more questions for you and get Dylan " straightened " out.

Let us know how it goes.

/Cole

Dolley <b_dolleyyahoo (DOT) com> wrote: My son, Dylan, was just diagnosed

with scoliosis a few months ago. He had an x-ray in June that showed a 16 degree

curve and then another one in August that showed a 20 degree curve. He also has

some low muscle tone and seems to be a little behind developmentally in the

gross motor skills. He is almost a year old, however, he was born 3 months

premature and has some other conditions as well (torticollis, benign extra axial

fluid of infancy, etc.). I asked for a referral to a geneticist to rule out any

sort of genetic disorder like a connective tissue disorder, etc. He also has one

side of his rib cage that protrudes out and that seems to be getting much worse

lately. The local orthopedic said that the rib cage was caused by the scoliosis.

Has anyone else's child had this? As far as I can tell and his physical

therapist agrees, I don't think his spine has changed considerably since his

last x-ray

at least not that I can tell, but his rib cage

seems to be protruding a lot more. I'm wondering if the rib cage is caused by

some other condition, or if this is something that is commonly seen with

scoliosis??? Also, has anyone else's children with scoliosis had low tone or

gross motor delays?

Thanks,

____________ _________ _________ _________ _________ _________ _

Be a better Heartthrob. Get better relationship answers from someone who knows.

Yahoo! Answers - Check it out.

http://answers. yahoo.com/ dir/?link= list & sid= 396545433